Aubagio and Hair Loss: What Users Say

• Gar...
• Taken for 6 months to 1 year
• March 31, 2019

For Multiple Sclerosis "Found out I have MS at 64 years old and Aubagio is working excellently. I take it after dinner, with lots of water. A little hair loss is my only side effect. Good luck to everyone. Stay positive! And many thanks to the people who developed Aubagio!"

• Mea...
• August 8, 2018

For Multiple Sclerosis "I was on it for two years. I wanted to stop, but my neurologist and husband insisted I had to take something, and I wasn’t willing to give myself shots. I had some side effects from the beginning. It just kept getting worse, and no one could tell me anything. Hair loss that still hasn’t come back, eye problems, severe headaches, messed-up periods (I had my period for three months straight and never knew when it would start again or how long it would last), spotting, brain fog, depression, I never felt well. Finally, I convinced my doctor and husband that I’m better off not taking anything, and I’m doing much better."

• Dee...
• December 3, 2016

For Multiple Sclerosis "Aubagio was very easy to take. That was the only perk of this medication. It did not help any of my symptoms or prevent any relapses. It caused extreme bowel upset for months, and I lost over three-quarters of my hair. Its side effects said hair thinning, not hair loss. I had extreme hair loss. When I called to talk to someone, all they wanted to tell me were the statistics from their studies. They had zero interest in documenting the real-world results and my issues. They had zero desire to help me either. They just kept telling me it would get better. If I would have stayed on the medication, I would be bald. I was extremely disappointed in the help (or lack thereof)."

• Sue...
• Taken for 6 months to 1 year
• October 3, 2016

For Multiple Sclerosis "I have been on Aubagio for 6 months. It is easy to take, especially after being on Copaxone for 5 years. No side effects except that I have been experiencing hair thinning and hair loss for the past 2 months. The amount of loss is moderate, and to be honest, it is worrisome. I can't find any information about when the hair shedding will stop. I had long, thick hair but just had 8 inches cut off, as shorter strands are easier to deal with than longer strands. I see my neuro this week and will ask. I called the one-to-one nurse, and it was a total waste of time. I asked about how long the hair shedding usually lasts, and she replied by reading to me, word for word, what is on the Aubagio site about hair loss."

• Sue...
• Taken for 6 months to 1 year
• October 3, 2016

For Multiple Sclerosis "I have been on Aubagio for 6 months. It is easy to take, especially after being on Copaxone for 5 years. No side effects except that I have been experiencing hair thinning and hair loss for the past 2 months. The amount of loss is moderate, and to be honest, it is worrisome. I can't find any information about when the hair shedding will stop. I had long, thick hair but just had 8 inches cut off, as shorter strands are easier to deal with than longer strands. I see my neuro this week and will ask. I called the one-to-one nurse, and it was a total waste of time. I asked about how long the hair shedding usually lasts, and she replied by reading to me, word for word, what is on the Aubagio site about hair loss."

• Ali...
• Taken for 6 months to 1 year
• December 3, 2016

For Multiple Sclerosis "I've had MS for 25 years. Been on every med there is, I think. Started Aubagio 7 months ago. The medication seems to be working, however, the side effects have been very real. Hair loss has been more than minimal for me but has slowed down now. Feeling out of it is how I feel most days, but I do have more energy. I do have headaches most days, but they are tolerable with increased water intake. Incontinence seems to be worse, but I just started a new med that is working there. I've had mouth sores and boils, which I've never had before. My depression has gotten worse, and I cry a lot, it seems. Stomach upset and diarrhea have subsided, but the dry skin is a pain. My brain lesion activity has stopped, however, my balance, vision, and endurance are worse."

• sin...
• Taken for 6 months to 1 year
• August 12, 2015

For Multiple Sclerosis "I have had MS since 1988. I was on Betaseron from 2001 to 2014 and switched to Aubagio in January 2015. About mid-April, I lost my sense of taste - not appetite, just taste. The weird thing is that I can taste salt and only salt. I also have hair thinning."

• kat...
• August 10, 2016

For Multiple Sclerosis "I have MS 20 years now, been on Betaseron, been on Avonex 16 years; I'm so happy a pill came out. Tecfidera was a nightmare, off it in 2 months. Been on Aubagio 5 months, little hair thinning; so far, so great, no side effects. I'm 57 and I have high BP for 20 years. I take Cymbalta 30 mg for stress."

• LR7...
• November 15, 2015

For Multiple Sclerosis "I have taken Aubagio for 6 months and no new lesions since I started. For the first couple of weeks, it upset my stomach and I had bad headaches, but those improved. After a month or two, the hair loss gradually increased and I'm still losing more after 6 months. I still have headaches every day, but they haven't been bad until recently. I now have face flushing and pins and needles that are much worse than normal. I also have a red sore on my arm that is slowly growing and just doesn't want to heal. I'm going to Neuro this week to decide if I should continue or not."

• ire...
• Taken for 1 to 6 months
• July 9, 2015

For Multiple Sclerosis "How does one know if an MS med works? It is a crapshoot. I have lost hair-no big deal. Most concerned about the accessibility of the packaging. It is an awful package for people with a neurological disorder. What is wrong with a bottle?"

• Tin...
• January 29, 2016

For Multiple Sclerosis "When I first started Aubagio, I had almost instant panic attacks that my doctor and pharmacist said were not from Aubagio. But every night after I had taken it for months, about 15 minutes in, I would have the most intense panic attacks that lasted six months. My attacks still lasted after that, not as severe but still every day until I just quit it three months ago. I also had severe stomach ache, flushing, incredibly high blood pressure, hair thinning. I am feeling now it did help me with energy. I wasn't sure if it was Aubagio or an antidepressant that was helping me, and the burning sensation is back in my body. My doctor is going to be upset. I have not seen him since I quit. I just can't handle the fear in panic attacks and the blood pressure."

• ABa...
• Taken for 1 to 2 years
• March 26, 2019

For Multiple Sclerosis "Love Aubagio. I've been taking it for about 14 months now and have no new activity/lesions based on MRI before starting Aubagio and one year later. Minimal side effects for me - initially some hair thinning, but that sorted itself out after a couple of months. Should've started this sooner. Injecting Rebif was awful."

• Blo...
• Taken for 1 to 6 months
• October 12, 2017

For Multiple Sclerosis "I have had MS since '99. Been on shots and different pills. So far, Aubagio has been really good. I take it at night, so I don't have side effects. I also take 2 Tylenol PM with it to keep any issues away, it works great! Just don't like the hair loss. I will be addressing this with a hair tech. The PM pill really does help, please try it for the people still in it. Bladder, I had fixed years ago, so I don't have issues with that. Please try..."

• Mic...
• Taken for 1 to 6 months
• August 23, 2017

For Multiple Sclerosis "Was on Aubagio for 5 months. Extreme hair loss even with biotin supplements. Nasty digestive issues that eased up after 2 months but never stopped completely. Early in month 5, I noticed some rather large masses growing under the skin in my forearms. Stopped the drug a few weeks later, and they stopped growing after 5 days. Had them surgically removed yesterday. The surgeon said it was not at all what he was expecting to find. The largest one had fingered into my arm, wrapping around tendons and bones, and required a lot of scraping. We thought they were shrinking, but they were actually just moving deeper. I did not like this drug at all and am glad to be off of it. Waiting for biopsy results with fingers crossed."

• Pre...
• October 26, 2016

For Multiple Sclerosis "I was diagnosed with MS in 2003 and used Betaseron, thrilled to take a tablet. So far, so good, started out with headaches, body aches, general all over not feeling good. Then I took medication at dinner rather than in the morning. I slept through the side effects, sometimes only waking up in the middle of the night with a headache that Tylenol would correct. Now I am free of side effects, only my hair is thinning out. I think I will stay with it. I have been free from any major problems, and that's the main idea!"

• Rex...
• December 18, 2017

For Multiple Sclerosis "I was diagnosed with MS in 2005 and started on Rebif in 2006. Side effects included weird cravings, depression, and massive nodules at the injection sites. Which didn't help as I am also diabetic and was running out of places to inject. Had four relapses. Then changed to Aubagio last year. One month in, I got chickenpox from severe immune suppression. Three months in, my hair fell out by the handfuls. Six months in, I started getting burning hands and feet (?Aubagio/?diabetes). Am currently having a relapse, but not as bad as before. My thighs have recovered completely. My hair is thicker than ever. And I've stopped taking my antidepressants. Only thing is the burning, which comes and goes. Love the packaging! Helps me remember if I've taken them."

• Anonymous
• Taken for 2 to 5 years
• October 12, 2019

For Multiple Sclerosis "I have been on Aubagio for two years. My hair fell out for a couple of months, but it completely stopped after that. This is the only medication that I’ve been on, so I have no comparison, but the minor hair loss is the only side effect I’ve had. So far, so good."

• Nik...
• Taken for 2 to 5 years
• July 11, 2019

For Multiple Sclerosis "I have been on Aubagio for about 2 1/2 years. I did lose a bunch of my hair a couple of months in, but it stopped after the 4th month and has grown back. I feel great, and I am very healthy. Take it with a grain of salt (may be a mistake or just a miracle), but I had a very bad old lesion on my brain, which is now not visible at all. The doctors can’t really say why, but at least for me, it was well worth fighting through the first few months to be so stable."

• Dru...
• November 26, 2019

For Multiple Sclerosis "It took me a day to figure out how to write a review on drugs.com. But! AUBAGIO IS STRAIGHT POISON! I’ve personally been on Aubagio for 7 very, very long months, and I’ve had EVERY SINGLE SIDE EFFECT! My neurologist keeps brainwashing me by telling me I’m not doing anything for my MS, but please note before I was on Aubagio I weighed 149 pounds! I weigh 198 pounds now in just 7 months! I’ve stopped taking Aubagio last night by myself, as my multiple sclerosis has greatly worsened ever since I started taking this medicine (aka poison!) Weight gain, hair loss, involuntary movements, stomach pain, irritable bowel syndrome, earaches, toothaches, muscle weakness, poor vision, loss of coordination, moody, irritable. I will try med-free as I would recommend for anyone to do as long as they can. To add, Aubagio stays in your blood for 2 whole years! Yikes! Good luck, all!"

• Jes...
• February 8, 2016

For Multiple Sclerosis "So far, my insurance hasn't covered the medication, but MS One to One covers it (the insurance company didn't get the Copaxone documentation that said that I had 3 relapses while on this). After the insurance finally covers it, my copay should be $0. I don't like the packaging and do punch out the pills to put in my pillbox. Hopefully, this doesn't cause issues with their efficacy. I had thinning hair before starting the medication, so I'm not sure if that's any issue, but I still have this now. I did go to Urgent Care as I was having deep burning pain in my sciatic region. I had fallen 10 days earlier and figured that it was residual pain from that. Then I noticed that is a side effect of this medication. Hopefully, that gets better with time."

• Me2...
• August 16, 2019

For Multiple Sclerosis "I’ve been on Aubagio for one month. Was leery of trying it due to the listed side effects. I take it at bedtime and haven’t noticed any bothersome issues. Minor tingling sometimes in my face, but not terrible. No hair loss yet or stomach issues, thankfully. Energy level seems good, some issues I had prior to Aubagio seem to have gotten a bit better. I’ll see how my MS is after 6 months!"

• Anonymous
• Taken for 1 to 2 years
• March 19, 2021

For Multiple Sclerosis "Aubagio caused alopecia and severe breathing problems, shortness of breath, heavy chest, severe panic attacks, and ground glass nodule in the lung. Pulmonologist tests, CAT scans, continual lung issues for years after stopping Aubagio. Very, very scary. Be aware that the side effects can be severe and listen to your gut if something seems off. Keep going in until someone listens and helps."

• Me2...
• Taken for 6 months to 1 year
• December 25, 2019

For Multiple Sclerosis "Have been on Aubagio for 6 months now. I had some hair loss, noticeable only to me. Absolutely no other side effects, feeling great, I get my days of fatigue if I do too much, but I generally feel good!"

• Mea...
• Taken for less than 1 month
• November 13, 2019

For Multiple Sclerosis "I was diagnosed with MS in 2004. Throughout my journey, I have been on Copaxone, Betaseron, and Avonex. I finally had enough of the shots - I'm over them and injecting myself. Just started Aubagio 3 days ago. I'm nervous about the side effects, but this pill is so much easier. Self-injecting meds caused a great deal of anxiety for me. Fingers crossed this med will keep me stable, and if my hair thins, I hope it comes back. Best wishes to all."

• Kit...
• Taken for less than 1 month
• August 30, 2019

For Multiple Sclerosis "I have been taking Aubagio for almost a month, and I can tolerate it with very low bothersome issues. I do think my hair is getting thin, lots of itchy feelings on and off. I do get some muscle pain and soreness, but tolerable. I get very tired a few hours after I ingest Aubagio, but a nap and I’m good again. I’m satisfied with the low side effects of this drug."