User Reviews for Aubagio
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Aubagio.
Reviews for Aubagio to treat Multiple Sclerosis
"I've had MS since I was fifteen, I'm fifty-four now. I started taking Aubagio in June. Since then I've had frequent diarrhea, extreme swelling of my ankles and feet because of water retention, a large kidney stone (1 cm), probably not from the Aubagio, but still, an antibiotic resistant bladder infection which led to two plus week hospitalization, my toenails are falling off, leading to cellulitis, and a cold (I hadn't had a cold in three years). I truly believe that this medication will kill me if I don't stop taking it and I plan to find another MS medication."
Jenny Lynne (taken for 1 to 6 months) October 3, 2017
0 users found this comment helpful.
"MS for 4 years, started first on Copaxone, which did not stop the lesions changed to Aubagio, after 1 year on Copaxone, by my Neurologist, who by the way is a world class expert ( lucky). I have had no further lesions or relapses. Hair thinning and loss, and nausea for the first 6 months, now resolved. Overall I feel better, with more energy, so I am happy with it"
Posy September 21, 2017
2 users found this comment helpful.
"Was on Aubagio for 5 months. Extreme hair loss even with biotin supplements. Nasty digestive issues that eased up after 2 months but never stopped completely. Early in month 5, I noticed some rather large masses growing under the skin in my forearms. Stopped the drug a few weeks later and they stopped growing after 5 days. Had them surgically removed yesterday. The surgeon said it was not at all what he was expecting to find. The largest one had fingered into my arm wrapping around tendons and bones and required a lot of scraping. We thought they were shrinking but they were actually just moving deeper. I did not like this drug at all and am glad to be off of it. Waiting for biopsy results with fingers crossed."
Michigan Mary (taken for 1 to 6 months) August 23, 2017
5 users found this comment helpful.
"On Aubagio for 18 months. My rating is for oral use and no new recent lesions on MRI results only. Had MS for 12 years, I am 49. Started on Rebif 3 yrs, then Copaxone 1.5, had horrible skin irritation on both so then Tysabri for almost 8 years. LOVED Tysabri!! Unfortunately tested JC Virus + and had too many risk factors so had to go off of it. I am not a fan of Aubagio. All these symptoms are since starting Aubagio: Numbness/tingling in hands/arms, legs/feet, bladder issues, vision issues (can hardly drive at night anymore), no energy, headaches, and overall just do not feel like myself. So far no new lesions, but a host of side effects. Not sure it's worth it. Do your research!"
Miss Mimi (taken for 1 to 2 years) February 11, 2017
27 users found this comment helpful.
"I've had MS for 25 years. Been on every med there is I think. Started Aubagio 7mos ago. The medication seems to be working however, the side effects have been very real. Hair loss has been more than minimal for me but has slowed down now. Feeling out of it is how I feel most days but I do have more energy. I do have headaches most days but they are tolerable with increased water intake. Incontinence seems to be worse but I just started a new med that is working there. I've had mouth sores and boils which I've never had before. My depression has gotten worse and I cry a lot it seems. Stomach upset and diarrhea have subsided but the dry skin is a pain. My brain lesion activity has stopped however, my balance, vision and endurance Are worse."
Alidawn (taken for 6 months to 1 year) December 3, 2016
23 users found this comment helpful.
"AUBAGIO was very easy to take. That was the only perk of this medication. It did not help any of my symptoms or prevent any relapses. It caused extreme bowel upset for months and I lost over 3/4 of my hair. It's side effects said hair THINNING not hair LOSS. I had extreme hair LOSS. When I called to talk to someone all they wanted to tell me were the statistics from their studies. They had zero interest in documenting the real world results and my issues. They had zero desire to help me either. Just kept telling me it would get better. If I would have stayed on the medication I would be bald. I was extremely disappointed in the help (or lack there of)."
DeeTh December 3, 2016
31 users found this comment helpful.
"I was diagnosed with ms 2003, and used betaseron, thrilled to take a tablet. So far so good, started out with headaches, body aches, general all over not feeling good. Then I took medication at dinner rather than in the morning. I slept thru the side effects, sometimes only waking up in the middle of the night with a headache that tylenol would correct. Now I am free of side effects only my hair is thinning out. I think I will stay with it. I have been free from any major problems, and thats the main idea!"
Pretty12 October 26, 2016
18 users found this comment helpful.
"I've had multiple sclerosis for almost 10 years and have been on pretty much every other MS therapy there is (Copaxone, Rebif, Tysabri, Gilenya, Tecfidera) and had horrible reactions with all these meds. Aubagio is the only medication that I don't have major side effects on. When I first started there was some nausea and flu-like symptoms but they dissipated after the first month. I haven't had any recent flairs and I used to take Nuvigil for fatigue, but have found that I don't need it since I've started Aubagio. The One-to-One nurses are friendly, but extremely unhelpful. They basically regurgitate the same verbiage that's on their website and can rarely answer my questions."
Pixie5335 (taken for 6 months to 1 year) October 14, 2016
25 users found this comment helpful.
"Hate the way the pills are packaged. This has helped me a lot but not completely. Still have bladder issues and muscle spasms and some tingling and burning. I did have elevated liver enzymes for the first 6 months but they were tested yesterday and now back to normal. I've had this relapse now since February but really it's much better than it was."
EllieGold October 6, 2016
14 users found this comment helpful.
"I have been on aubagio for 6 mths. Easy to take especially after being on Copaxone for 5 years. No side effects except that I have been experiencing hair thinning, hair loss for the past 2 months. The amount of loss is moderate and to be honest, it is worrisome. I cant find any info about when the hair shedding will stop. I had long thick hair but just had 8 inches cut off as shorter strands are easier to deal with than longer strands. I see me neuro this week and will ask. Called the one to one nurse and it was a total waste of time. I asked about how long does the hair shedding usually last and she replied by reading to me, word for word, what is on the aubagio site about hair loss."
Sue A. (taken for 6 months to 1 year) October 3, 2016
29 users found this comment helpful.
"42 yrs old, diagnosed @ 34. Was on Rebif(terrible for me), for about 5 yrs(3 shots/wk). Always felt like I had flue like symptoms. Constantly taking Advil, for aches and pains and chills. Tried tecfidera for about 2yrs. Worst abdominal pain and bloating ever!!(2 pills/dy). Now on Aubagio(1 pill/dy) and I couldn't be happier!! Small amount of bloating, but overall no issues. This one is working for me!!"
JLH42 (taken for 6 months to 1 year) August 17, 2016
29 users found this comment helpful.
"Ihave ms 20 years now been on betseron been on avonex 16 years ;im so hapy a pill came out tecferda was a nightmare off it in 2 months ;; been on aubigo 5 months little hair thinning ; so far so great no side effects im 57 and i have high bp for 20 years i take cymbalta 30 mg for stress"
kathy friend August 10, 2016
28 users found this comment helpful.
"It is awfully hard to open up the package containing the pills for me. I think Aubagio has helped my symptoms and other than thinning my hair a little no other side effects or relapses noted. Is there a way to change the packing to a pill bottle so they are easier to use."
Anonymous (taken for 6 months to 1 year) May 19, 2016
26 users found this comment helpful.
"I wish I could rate this medication a 0 - this nearly killed me. Too bad this site only allows you so many characters because I wish I could tell you my whole story of this medicine but will have to give you the highlights - I gave it a good 4 months before going off and I only got worse everyday. New symptoms I did not have - severe depression/ suicidal thoughts, pain and tingling, blurry vision, brain fog, panic attacks, couldn't think straight, just a general "off" feeling, like I wasn't all here. I have been off 6 months and a far cry from where I was, but still even some lingering symptoms - this made me WAY WORSE THAN I EVEN WAS BEFORE I STARTED IT - DON'T GO ON THIS MED - Also, check out a documentary on meds"
RuinedbyMEDS April 19, 2016
55 users found this comment helpful.
"Having an issue with frequent Relapses every few years and the Grey Matter/Atrophy of my Brain being the Main Topic Aubagio was recommended by my MS Neuro .. I prepared for the Minor Issues however had developed Bladder Issues and was getting horrible Headaches halfway through my 3rd month .. Had to stop use and see my Neuro .. Will find out results soon but will suggest that going into this one must have an Open Mind and be very aware of their MS .. Know mine was helpful in my determining I was having a "Flare" .. Along with the additional Issues .. The Nurse Program that is there to "Support" us is NOT HELPFUL at all .. They cannot answer any questions .. They however REFER you to the "Clinicians" who again do not Answer questions ..."
Hellenic1 (taken for 1 to 6 months) April 6, 2016
39 users found this comment helpful.
"I've never written a drug review before, but I finally figured out that it's the only way to find out the REAL side effects for all these new MS drugs. 47 now, but diagnosed at 21; Long before any of us had the three shots to choose from. Started there, then Tysabri, then Tecfidera, and now Aubagio. I will come back and adjust my rating in 6 months, but so far, I'm loving it. Little worried because it sounds like there are a few side effects that they didn't mention. DON'T think just because the drug company and your neuro say that's not a possible effect of the drug, it isn't. Thank you all who share your drug experiences. Without you, many of us would keep taking drugs that lower our quality of life."
tiredofdrugs (taken for less than 1 month) February 22, 2016
55 users found this comment helpful.
"So far my insurance hasn't covered the medication but MS One to One covers it (insurance company didn't get the copaxone documentation that said that I had 3 relapses while on this). After the insurance finally covers it, my copay should be $0. I don't like the packaging and do punch out the pills to put in my pill box. Hopefully this doesn't cause issues with their efficacy. I had thinning hair before starting the medication so I'm not sure if that's any issue but I still have this now. I did go to the Urgent Care as I was having deep burning pain in my sciatic region. I had fallen 10 days earlier and figured that it was residual pain from that. Then I noticed that is a side effect of this medication. Hopefully that gets better with time."
Jessica R W February 8, 2016
26 users found this comment helpful.
"When I first started Aubagio, I had almost instant panic attacks that my Dr. And pharmacist said, were not from Aubagio, but every night after I had taken it for months about 15 minutes in I would have the most intense panic attacks that had lasted six months my attacks still lasted after that not as severe but still every day until I just quit it 3 months ago. I also had severe stomach ache, flushing, incredibly high blood pressure, hair thinning, I am feeling now it did help me with energy, I wasn't sure if it was Aubagio or an anti depressants that was helping me and the burning sensation is back in my body. My doctor is going to be upset I have not seen him since I quit, I just can't handle the fear in panic attacks and the blood pressure"
Tina from CA January 29, 2016
33 users found this comment helpful.
"I have used Aubagio for 18months after being on Avonex for 8 years. I love that I no longer have to stab my thigh with an inch and a half needle. I don't have any of the problems that others have talked about. I haven't had an MRI lately, so I don't know if things have gotten any worse. I feel ok but have problems with balance and walking which I had before starting Aubagio. I will continue on Aubagio."
HatRak333 (taken for 1 to 2 years) November 27, 2015
34 users found this comment helpful.
"I have taken Aubagio for 6 months and no new lesions since I started. For the first couple of weeks it upset my stomach and I had bad headaches, but those improved. After a month or two the hair loss gradually increased and I'm still loosing more after 6 months. I still have headaches everyday but they haven't been bad until recently. I now have face flushing and pins and needles that are much worse than normal. I also have a red sore on my arm that is slowly growing and just doesn't want to heal. I'm going to Neuro this week to decide if I should continue or not."
LR75 November 15, 2015
35 users found this comment helpful.
"severe tooth decay...does anyone else suffer from rotting teeth?"
Amber143 August 27, 2015
21 users found this comment helpful.
"Have had MS since 1988. Was on Betaseron from 2001-2014 and switched to Aubagio Jan 2015. About mid April I lost sense of Taste - not appetite, just Taste. Weird thing is that I can taste salt and only salt. Also have the hair thinning."
singharmony111 (taken for 6 months to 1 year) August 12, 2015
43 users found this comment helpful.
"How does one know if an MS med works? It is a crap shoot. I have lost hair--no big deal. Most concerned about the accessibility of the packaging. It is an awful package for people with a neurological disorder. What is wrong with a bottle?"
ireneg (taken for 1 to 6 months) July 9, 2015
40 users found this comment helpful.
"As soon as I began taking this medicine, my vision became incredibly blurry. Nausea and other stomach issues not as bothersome, but present daily nonetheless. Neorupathic problems in legs occurring daily. Tingling, sharp pains and numbness in different areas of feet and legs come on intermittently."
ABOUTAB July 7, 2015
48 users found this comment helpful.
"The first 6 months on Aubagio were wonderful. I noticed a change for the better in my depression, with seemingly no side effects. Then, at the 6 month mark, things started to go very wrong. I broke out in boils. I had them in my ear canal, as well as on both legs. I've never had boils in my life. Then things started to get even worse. I had bronchitis, the flu, bronchitis again, the flu again, admitted to the hospital for TIA (which turned out to be a massive MS attack), bronchitis again, cellulitis, and finally, severe nausea and dizziness. So many side effects my doctor did an elimination to remove the medication quickly from my system. the ease of taking the medication did not offset the side effects."
hachismom (taken for 6 months to 1 year) April 29, 2015
62 users found this comment helpful.
More about Aubagio (teriflunomide)
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- Drug class: selective immunosuppressants