Prednisone for Sarcoidosis User Reviews

• hor...
• May 29, 2009

"This is the only drug doctors recommend for sarcoidosis. The side effects of other heavy-duty immune suppressant drugs are considered worse than the sarcoidosis symptoms. It's a dual-edged sword. It does reduce inflammation and makes breathing easier, but it also has permanent effects. For me, it permanently reduced thyroid function, increased puffiness in the face, overall weight gain, insomnia, and overall muscle stiffness to the point of spasms."

• tha...
• Taken for 1 to 2 years
• December 16, 2012

"I graduated from initial 40 mg to 2.5 mg. This was found to be ineffective as I was always in and out of the hospital with cough and other symptoms of sarcoidosis. I was later put on 20 mg and all symptoms disappeared. My doctor is considering reducing it to 10 mg."

• GiM...
• Taken for 1 to 6 months
• March 5, 2016

"Taking prednisone for 6 weeks, starting 60 mg daily. After the first week, it significantly reduced chest pain. In week 5, the dosage was already at 40 mg, started feeling anxiety, tremors, increased blood pressure and heartbeat 114-125, blurry vision, diarrhea, low potassium, decreased thyroid function, increased glucose, and muscle weakness in legs. The doctor reduced the dosage to 20 mg and prescribed a potassium supplement. Potassium came back to normal within a week. Now still on 20 mg prednisone. So far, my inflammation in mediastinal lymph nodes did NOT shrink and still having chest pain. Working on the right dosage and length of treatment."

• ral...
• September 8, 2015

Prednisone "Feeling hyperactive, like I can't walk fast enough, having to wait on a thought to process, always wanting sweet, salty, and crunchy food. Med after 7 p.m. keeps me awake at least 4 hours, although I feel tired. Only been on for 1 month for new sarcoidosis. Breathing much better! Chest tightness better! Energy level better!"

• Bc1...
• Taken for 6 months to 1 year
• August 20, 2021

"I went to the hospital in December 2020 with pains in my lungs. The doctor said it was muscles, then did a chest X-ray. Then told me it was pneumonia. In January, I had a lung biopsy and found out it was sarcoidosis. I was in the hospital for 4 days with a tube through my ribs into my lung because my lung collapsed. I have been on prednisone for 6 months, the sarcoidosis got a little better. But I have scarring. I was off the prednisone for 2 weeks, and my lungs started to hurt again. So the doctor put me back on. So I have been on prednisone for 7 out of the 8 months. They have me on a bone pill, magnesium, calcium, and vitamin D because of cramping in my hands, feet, and legs. I bruise really easily. People stare at my arms when they talk to me. My immune system is weak, so I get infections. I feel like rubbish every day."