Dilantin and Osteoporosis: What Users Say

• RLM...
• September 13, 2007

For Seizures "I have been taking Dilantin to control grand mal seizures for about 16 years now. It works very well for me. However, I recently learned that prolonged use can result in a higher risk of osteoporosis. Since women in my family three generations back have all had this condition, I'm now concerned about my bones and the continuation of this medication."

• Cal...
• Taken for 5 to 10 years
• August 20, 2016

For Epilepsy "Took Dilantin for several years, since the 1980s. Now it's apparent I have a secondary disability of osteoporosis after seeing an endocrinologist and having a bone density test done. My doctor says it is likely due to the regular use of epileptic medicines, with Dilantin being the most likely source."

• 55b...
• Taken for 10 years or more
• May 1, 2021

For Seizures "On Dilantin extended plus phenobarbital for 47 years for seizures. Not an episode for 38 years. Requires regular check of blood level with adjustment when elevated. Excellent dental hygiene is important. Bone loss after long-term use with moderate anemia. These effects are worth it for total control of episodes. Specialist prescribes brand only due to efficacy."