User Reviews for Votrient
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Votrient.
Reviews for Votrient to treat Renal Cell Carcinoma
"I have been on Votrient since April. Had to stop after 2 weeks because blood pressure put me in hospital being to high. Started taking it again at 1 a day . I am now up to 4(800mg) a day. Doing better the longer I take it. Have more good days where I feel like doing my house work. Food doesn't taste good. I can eat fruit. Pineapple, grapes, canteloupe things like that. Even some Chinese food some days like sweet and sour chicken. Chicken tastes best . No beef or pork tastes good. Took my second CT Scan this week waiting on results. First one said it hadn't grown any so that's a plus. I too have many side effects. Diarrhea the worst. Fatigue,taste, white hair everywhere, my hands are beginning to get very rough also. I have bruises comes up too"
Anonymous September 29, 2017
7 users found this comment helpful.
"I was diagnosed with Stage IV renal cel carcinoma in January 2012. After two unsuccessful IL-2 treatments, I started taking Votrient in June 2012. At first I had all of the written side-effects but after completely changing my diet, they diminish significantly. Fatigue and whitening of my skin being my only problems. My last CT's continue to show a all of my known tumors as principally stable. The drug works for me! 5 years and counting!"
Tezman (taken for 5 to 10 years) September 23, 2017
8 users found this comment helpful.
"Started treatment 7 days ago no real side effects only lethargic all the time."
manns man (taken for less than 1 month) August 7, 2017
1 users found this comment helpful.
"Update-tolerating Votrient 400mg. Last 2 scans status quo. Diarrhea controlled with immodium. Pattern of a couple good weeks followed by fatigue and general awful feeling. Medicinal marijuana has been a godsend for these bad times. Almost like setting a reset button both mentally and physically. Only do it when I feel awful and won't be leaving the house."
meo in pa. update (taken for 6 months to 1 year) August 4, 2017
1 users found this comment helpful.
"I'm 66 year old male. Had radical nephrectomy of left kidney in 2011. Scans showed huge tumor. 6years later had nonstop headache for about 4 weeks. Scans showed Tumor on cerebellum. Had surgery to remove that on 10th May 2016. That left me with palsey down my left side as tumor and surgery damaged 7th cranial nerve. Now use walker and wheelchair. Now a tumor has showed up in stomach. Went on Votrient, effects were vomiting, diarrhea, all hair turned white, unable to get out of bed, loss of appetite, no taste. I started using cannabis oil which helped alleviate nausea and loss of appetite. Last scans about two months ago, tumor couldn't be seen. Oncologist didn't say it was gone but it couldn't be seen, where as prior scan showed it clearly"
Anonymous (taken for 1 to 6 months) July 8, 2017
3 users found this comment helpful.
""Had a partial nephrectomy of the right kidney in 2005. The tumor was papillary renal cell. In Jan. 2016 the cancer reoccurred in several locations in the omentum. Surgery in June 2016 removed a portion of the frontal omentum including papillary renal cell tumors. Multiple nodules still remain in the omentum on both sides of my body. Have been taking 600 mg of votrient since Nov. 2016, now 8 months. Shrinkage by as much as 50% have occurred in some tumors. None have increased in size during the period. Some initial side effects, hypertension, nausea and weakness, have improved during the period; others, diarrhea, taste and poor appetite, remain. At the age of 87 I am trying to stay active. Praying for improvements for all of us."
G-Grandpa (taken for 6 months to 1 year) July 1, 2017
9 users found this comment helpful.
"Out of the blue, diagnosed after ct scan, stage 4 renal cell carcinoma, spots on liver also, spot on lung, adrenal glands involved, was told should expect to live 1-5 years. started Votrient 800 mg on April 13th and have not had a repeat scan yet. Side effects are horrendous to me. Scalp sore like a sunburn type feel, tender, have noticed hair thinning on top of scalp. Mouth is on fire to where I can eat few foods- puddings, water, ice cream mostly melted, soups. Some days mouth hurts so badI can not eat. Can not taste salt. A few days did not take votrient because I did not eat all day. Burning with urination, scalded. Burns with diarrhea also. Cracking of lips on each side of mouth. Keep telling myself it could be worse. God bless."
Debi L. (taken for 1 to 6 months) May 24, 2017
11 users found this comment helpful.
"I was diagnosed with RCC in my left kidney in May 2012. I thought I was cancer free, but a chest X-ray in February revealed tumors in both lungs. I was started on Votrient 600 mg initially for 4 weeks, and stopped taking drug for 3 weeks due to elevated liver enzymes. For the past 2 weeks I have been taking 400 mg. I have scans in 4 weeks, and am hoping for success. I now have fairly severe back, and flank pain, weakness, and elevated BP. I have labs repeated in a couple of days, and hope my enzymes are near normal. I guess this is the price we pay for trying to stay alive. Best of luck to everyone."
PH CRNA May 17, 2017
16 users found this comment helpful.
"Left nephrectomy in July 2015 for large renal cell tumor. First bad CT was in Nov 2016 which showed multiple lesions throughout abdomen and pelvis. Biopsy in Dec2016 confirmed recurrence of rcc. Started 800mg votrient in Jan 2017. Horrible side effects with fatigue and intense abdominal pain. Stopped after 3 weeks and took a week break before starting 600mg. Side effects eased slightly but blood work showed poor liver function after 3 weeks so took a week break and started 400mg. CT in March 2017 showed several lesions 10% smaller. Side effects have calmed down with the worst being daily diarrhea and inconsistent appetite. ALL hair turned white. Good Luck to everyone."
meo in pa. (taken for 1 to 6 months) April 29, 2017
15 users found this comment helpful.
"I was diagnosed with Renal cell Aug 2016 . Started in my left kidney met to lungs and vena cava . Still have both kidneys and have been on Votrient 800 mgs whole time I take it at night . Hair , all hair , is white. Side effects, tired, bad mouth taste, some gastric and lose of appetite. First ct tumours were shrinking have another soon . Good luck and God Bless to all cancer fighters ."
DIY April 21, 2017
19 users found this comment helpful.
"My husband's left kidney was removed in March 2015 . No signs of cancer for one and a half years. In October 2016 he had cough and lower back pain. Did PET CT and found mets in lungs and spine . Started taking votrient since December 2016. After 3 months tumours in lungs are found shrinking. Major side effects are vomiting ,muscle and bone pain. Nowadays he is full time on bed due to muscle pain. Acid reflux is overcomed with Pan D . We are hoping and praying for positive results."
sre April 14, 2017
10 users found this comment helpful.
"I have been taking votriant since Fall 2015. Bilateral Renal cell carcinoma. Left total nephectomy and partial right. Small spot on liver at that time. Remaining tumors on the right. Due to surgery complications after right kidney surgery, sepsis, heart attack and stroke. I am now 59 yrs old. Votriant 800 mgs daily for about 5 weeks was rough...but I would do it again. Vomiting, diarrhea, high blood pressure, body and tired all the time. My hair has turned white, most people like my highlights! My oncologist has been wonderful and I have responded well to lower doses of Votrient which has helped my side effects. September 2016 I received great news! I am cancer free. Continue on maintenance dose right now of 200 mg 3xwk"
Plpsrp (taken for 1 to 2 years) March 21, 2017
55 users found this comment helpful.
"I was diagnosed with renal cell carcinoma May 2015. I had right kidney removed due to huge tumor. Cancer mets. to my lungs. Tried several treatments that did not work. Finally I was prescribed Votrient! It worked immediately. I have been using it for about 7 months. The only side affects I experienced was high blood pressure. I just had scan a week ago and tumors are still shrinking or have gone away. I will continue to pray to GOD for your positive progress as well as mine. Stay positive and know that you will beat it!"
Blessedd1 (taken for 6 months to 1 year) March 18, 2017
47 users found this comment helpful.
"I am 70, female. 19 years ago had right kidney removed due to renal cell cancer. In spring of 2016 my shoulder began to bother me, and it got worse until my upper arm broke just below the shoulder, due to renal cell cancer which had metastized to my upper arm bone, my pancreas tail, and two spots on my liver. I first had two weeks of IL-2 which gave me awful side effects and no changes to the cancer tumors. Have been on Votrient since September 2015. November scan shows tumors shrinking. Feb 2017 shows tumors are still shrinking. Side effects are diarrhea every day, body and muscle pain, scaly sores on my bottom, fatigue, and just recently pain in my hands. I take 800 mg daily, late in the day. I take Tramadol for the body pain."
Grandma Gigi March 10, 2017
31 users found this comment helpful.
"I have undergone radical nephractomy of my left kidney in November, 2014 with staging T2 N0 M0. Doctor said that I am now ok. During 2015 I have undergone quarterly check up by USG of abdomen and chest X Ray. In November 2015 CT scan of thorax and done and found two suspicious small nodes in left lungs but positionwise very small. Next scan done after six months, there was no change in size of those nodes or new growth. Pain started in left shoulder joint and in back since October, 2016. Went for CT scan followed by bone scan, which detected tumors in left shoulder and D4 spine, also increase in size of lung tumors. mRCC confirmed by biopsy. Started Votrient 800mg daily from 14th December, 2016. No major side effect except testlessnes"
Bose U (taken for 1 to 6 months) February 5, 2017
15 users found this comment helpful.
"1/3/16. Was told had cancer bottom of kidney and it got large Dr. Said and is pressing into spine. Was on voltrient about 2 1/2 months and scan showed tumor size had not changed. After taking voltrient about 5 months I got very sick and could not eat or drink about 10 days. Did lot of vomiting. Stomach hurt for many days. Need to ask Dr if I should get back on it (mass must shrink a lot Dr says before they would consider surgery). This has been very scary as mass pressing and causing tightness twisting of left leg but I'm doing lot of praying for self and all cancer patients. We desperately need cures. I get scans Jan 16. "
Tamasinadaisym January 3, 2017
14 users found this comment helpful.
"My right kidney was removed in January 2016. My Oncologist had me undergo a CT scan every 2 months. In August 2016 tumors in my lungs and lymph nodes showed significant growth. A biopsy of several lymph nodes revealed renal cell cancer and I started taking 800 mg/day of Votrient in September. After 3 months, I just completed my first CT scan and virtually all of the tumors from the previous scan had reduced in size, some as much as 50%. I had difficulty adjusting to the Votrient initially. I take Prilosec for acid reflux and my Oncologist told me I could only take a dose in the morning if I take the Votrient at night. I have been able to control the acid reflux by drinking Aloe Vera juice before bed time and raising the bed headboard."
Rockcliff December 29, 2016
30 users found this comment helpful.
"My husband was diagnosed with right renal cell cancer May 2014. A brain tumor was found on an MRI that same month, along with small spots on lungs. Gamma Knife procedure done May 2014. Right Nephrectomy June 2014. Brain tumor removed September 2014. He didn't start Votrient 800 mg until December 2015 due to a small spot they found on the left kidney during a routine CT scan. Since taking the medication, his hair has turned from red to white. Other side effects include high blood pressure, nausea, diarrhea and being tired. He was on blood pressure medication prior to taking Votrient. Now he is on three blood pressure meds and now the blood pressures are within a normal range. Spots may or may not be cancer. So far, tolerating med well."
Kidney Bean (taken for 6 months to 1 year) November 28, 2016
23 users found this comment helpful.
"My father had passed away of taking pazopanib just for 3 months due to tumour rupture because of this tablet...please do not consume it.."
Sume (taken for 1 to 6 months) November 3, 2016
10 users found this comment helpful.
"I had my right kidney removed December 2014 they thought all cancer was gone but few months later they found cancer in my lymph nodes. I started on Votrient July 2015 at 800 mg but had Doctor reduce amount because of stomachs issues. I'm still nauseated daily and throw up almost every day. My hands are bright red my hair is white I have sores on certain parts of my body that act like blisters then go away after a few weeks. All in all the cancer is shrinking and I have another cat scan this month."
Deborah H. June 17, 2016
55 users found this comment helpful.
"I am taking Votrient for 14 days. My side effect are vomiting, some stomach problems and a temperature around 37℃. Half of my left kidney is removed on June 2015, but a year after I got results that I have MS on my sternum bone and 2 tumors appeared in the soft tissues around the sternum. After a 14 days one of the tumors is getting smaller, I hope this will happen with the other one. Reading the other comments I hope side effect will go away and tumors will be gone. I am 23 years old. God bless everyone."
Vlatko (taken for less than 1 month) June 8, 2016
49 users found this comment helpful.
"my husband has renal cancer . he did partial nephroctomy in his right kidney on 9/2010. many tumors appeared later in small sizes in both kidneys. now he is on votrient 800 mg 35 days ago.. he has high blood pressure treated .. rare weakness and bad taste.. little bit problems in stomach.. pain in leg.. his hair started to b white.. we r looking for positive result . hope this treatment can shrink or remove the total tumors"
Anonymous May 8, 2016
29 users found this comment helpful.
"Lost my first kidney 5 years ago two months ago cancer was found in my remaining kidney. It had metastasized to my brain and lungs. Had gamma knife surgery on brain tumor. Started votrient about 1 month ago. Side effects include fatigue and high blood pressure.So far doing well on 800 milligrams. Have lost about 45 pounds I know now I need to eat regular meals in order to keep up my strength. This also helps with the fatigue. So far lab work looks good looking for the best results with votrient"
chadandy (taken for 1 to 6 months) May 2, 2016
44 users found this comment helpful.
"My husband has been on Votrient for a year...some gastric issues,foot pain....but overall his tumors are shrinking"
Mrs.CN (taken for 1 to 2 years) January 12, 2016
58 users found this comment helpful.
"50 Y.O. male, diagnosed Stage IV mRCC on 1 may 2014. Radical nephrectomy of right kidney June 2015. Tumour had invaded surrounding fat, IVC and adheared to bowel. Mets appeared in Jan 2015 (liver). Started 800mg Votrient feb 2015; side effects included, white hair, gastric issues, loss of taste, high BP otherwise felt ok. After 1 Month high liver enzymes forced me to stop. After 4 weeks off, recommenced 400mg of Votrient. Side effects not as severe but similar to 800mg dose. Required a week off Votrient recently due to a bout of pneumonia. Liver Mets have shrunk from 20mm to 7.5 mm since Jan, 400mg seems to be working, lets hope it stays that way."
Deejay65 July 14, 2015
78 users found this comment helpful.
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