Botox for Urinary Frequency User Reviews (Page 3)

• Final...
• Taken for 1 to 2 years
• April 10, 2016

"I just had another round of Botox injections three days ago. While I did get a uti from the procedure and it was a bit difficult to void the first two days I am 100% now. I even went to work the following day. I also had this procedure in March of 2015. That one didn't go so well in the beginning but I think it was because I was in a INTERSTITAL CYSTITIS flare. If you have it I feel your pain. After my flare calmed down I noticed the Botox actually worked really well. This time I made sure I was not in a flare before Botox and all is good. This is a last line of treatment for me and at just 31yrs old I'm so glad I have found it. It is not a lifelong fix it will most likely require treatment every three months to a year everyone is different"

• Lovin...
• Taken for 2 to 5 years
• July 16, 2016

"I'm on my 3rd dose of Botox. I have bladder incontinence. My bladder was in a constant spasm. It was hard to leave the house After trying pills after trying Depends after having a few accidents I agreed to the Botox injections. I found the procedure uncomfortable but maybe for 5 minutes. It took most of the first year to get used to using a cath as a norm. You can get reusuable ones or pre-lubricated once. I now use the later but they are more expensive. The first round lasted 1 year the second round lasted 6 months and now I'm on my third round. The first and third round more Botox was used. I love it. No more leaks, accidents. I can sleep all night. Take long walks, long car rides."

• Donna
• January 16, 2019

"I had the Botox in October 2018 for an overactive bladder. I got told I could go into retention for a few days. This was the worst decision of my life. 3 days after the procedure I couldn’t pee I was in agony so I got taken to A&E I was admitted and was in for 13 days. I had an infection and was in retention fully, had a fullness feeling and was in chronic pain. I got discharged with catheters and I was so sore using the catheters I couldn’t use them. So ended up back to A&E admitted again another 5 days with a indwelling catheter in this time. Then came home 3 days later the catheter got blocked the pain was that bad I couldn’t walk, sit, stand or anything. I was sick so back again to A&E admitted again it’s now middle of January I’m no better. I’m still using catheters. I've got the fullness feeling and can’t get on with my life. I don’t get any feeling of needing a wee. All I can say is please look into it properly before deciding to have this. It is not worth it at all !!!!"

• Tired...
• November 1, 2016

"My husband had prostate surgery (TURP) for an enlarged prostate in January (11 months ago). Ever since, he has had annoying leakage. The doctor mentioned two options - Botox or an implanted device. He said Botox had "99% success rate" so my husband opted for that. Ever since, a nightmare. At first, he simply could not pee at all. He had an indwelling catheter for a while, and since has had to do self-catheterization four times a day (still cannot pee a drop). The Botox must have relaxed the bladder too much? Plus there was a LOT of old blood in his bladder, presumably from the Botox injections. The doctor said it was not possible to be from the catheters. And he has a UTI. The slight leakage seems like NOTHING next to this nightmare."

• Santa...
• Taken for less than 1 month
• June 5, 2019

"I had Botox for my overactive bladder and I must stay it is a miracle. 100%. Effective. Zero side effects. After almost 20 years of worsening incontinence, one treatment restored me to normal control, like when I was a teenager. The procedure is a little painful, but totally worth it. I’m 71 years old . Medicare covered it. I tried acupuncture in the ankle prior to this as a treatment, it was 100% ineffective."

• Chero...
• December 23, 2015

"Had the Botox for overactive bladder November 21, 2015. Two days ago had the follow up. Everything went well at the operation, I could void before going home, little bleeding which soon stopped. Having some trouble emptying showing over 200 after voiding. I'm going to work on voiding completely. I do not wake up the 6 to 8 times at night now to use the restroom, I may wake once now. When going anywhere, now I'm not tied to the need to use the restroom every half hour like before. My urgency, frequency are more like normal now. Taking this time to work real hard on keegle's see in six months if that helps at all. BTW I have secondary progressive multiple sclerosis. I would highly recommend this procedure."

• Momma...
• Taken for less than 1 month
• August 12, 2018

"I had a botox injection into my bladder on June 21st and last year for four days I was fine and it felt funny not having pee running down my legs then a couple days later I broke out really bad with rash all over my body and very sick and into the emergency room at two different hospitals. I had a hard time breathing, sick to stomach and I could no longer urinate and had to use catheters for two weeks and I had to be put on 1 and a half worth of steroids pills and injections. I almost died from not having anyone explain to me more about the dangers. I am not still feeling like I was before the Botox. I had one injection that almost killed me. You will not submit because you don't want other patients to know the truth about what happened to me. But I will make sure that the media will know and inform the public as to what Botox can and will do to some women like me."

• Drewry
• August 7, 2016

"I've had Interstitital Cystitis ( IC) for about 6 years or so. Some pain while peeing and bladder pain. Last Feb 2015 the Urologist inserted the Botox into my bladder. My life for the past year and a half has been miserable to say the least. Never had problems before with incontinence but boy do I have it now. For the past year and a half I've had to wear Depends during the day and at night I have to wear an External Catheter and drain bag. My desire to do anything is not there anymore where before I was always pretty active. My Urologist doesn't understand why I'm having this outcome. He has other patients that do the Botox for the IC and had good results. Never again. Don't know if this stuff will ever wear off."

• Clair...
• July 9, 2016

"I'm am shocked to hear how disappointed everyone is with Botox and I'm sad too. I completely understand the frustration, embarrassment and all round annoyance of peeing yourself. I started having Botox when I was 33 (I have MS). I had to start catheterising after my 2nd lot of Botox. This was the end of the world to me, 33 and having to use a catheter. Now, I think Botox is a huge benefit to my life and using a catheter is the norm. Obviously, everyone has different experiences but I love it x"

• Mia
• May 22, 2019

"I had Botox for overactive bladder December 13, 2018. Within a week I couldn’t urinate at all and had to start self cath. 6 months later I’m still having to cath and have had 6 bladder infections that are becoming resistant to most antibiotics. I’ve even had to have a PICC line for IV antibiotics. This has changed my life and not in a good way. I see no end in site for the self caths and scared this could be continue forever."

• Insane
• August 26, 2018

"Worse decision ever. Prior to receiving Botox , I used to go to the restroom 5-6 times during the day and night. Now I go approximately 8 times during the day and 11 at night. I have not been able to sleep at all. Most of the time is just the urge to go but not able to empty my bladder. My life has become a living hell!!!!....Please, Please do not have this procedure."

• Ricky
• January 4, 2017

"I had botox injections into bladder about 3 weeks ago but it has made no difference to my OAB so far. The procedure itself is quite uncomfortable and I actually felt my symptoms were worse the week after I had it done. I know it takes two weeks to take effect so was really hoping to see a difference as the constant need to go to the toilet is so stressful. But unfortunately 3 weeks in and I don't see much if any difference. I do seem to be able to go longer through the night but daytime is no better. I've had no other side effects so don't regret trying, just wish it would work!"

• Alana
• December 28, 2018

"I had Botox a year and a half ago for OAB and it has never worn off. I’m in constant agony. I have to self catheterise nearly every hour or two, sometimes more. There’s times I’m cathetering every 20mins if I’ve had a drink. What ever goes into my bladder has to come out right away or I am in agony. It’s ruined my life wish I had never got it done!!"

• SuzyR
• June 19, 2017

"I had 200 units of BOTOX injected into my bladder 4/52. Worse decision ever! I struggled to pee on the first night and requested an indwelling catheter to be able to rest. On discharge I could void a little, but not too well. By the following week the retention was so uncomfy I went to the GP who sent me for a scan. I was retaining 380ml. Drained bladder and showed me how to self cath. I wasn't very successful. Had a day with Gyny and nurses following week and they ended up putting in an indwelling cath. Been weeks now. Had it out for 2 hours and retained 680ml I couldn't void. Awful awful feeling of being so •full• Huge regrets I took this route, 4.5 years post a TVT for stress + urge incontinence that didn't help."

• CAB
• Taken for 1 to 6 months
• March 12, 2016

"I have tried numerous medications and everything has failed. I got Botox January of 2016 and it wore off 3 months later. My bladder has reverted back to how severe it was. I do not recommend Botox to anyone."

• Cat
• May 3, 2019

"I shared my experience earlier. I had botox on November, 2018 and 6 months later, I am still having to self-cath. I go to the bathroom more now than I did before, it has been horrible. I didn't think I would have to live on the toilet but I am. The botox has really affected my life and job negatively. I have exhausted all other options and am wandering if I am going to have to live like this for the rest of my life. This has been such a horrible experience."

• Pam...
• September 8, 2019

"I am so very lucky. I have had Botox into my bladder 5 times. Approximately every 6-9 months. I have it under general anaesthetic and recover well. This procedure works so well for me that when I feel it is starting to wear off, I contact my consultant. It has transformed my life. Previously when I had urge incontinence, I was reluctant to join in any social activities. With the Botox injections, I actually feel normal. My rescue bag has place of honour in my bedroom cupboard than my handbag: As I said,I am so lucky that Botox works for me!"

• snookie
• Taken for 6 months to 1 year
• January 12, 2019

"We were going on a 90 day trip, and I was used to doing PTNS (Percutaneous Tibial Nerve Stimuation) every month. I decided to try the botox so I would not have a problem on my trip. Actually if I had read some of the horror stories on this blog, then I probably would have opted out. I am glad that I had it done. The procedure was painful. Then the twinges afterwards were like mild labor contractions for about 12 hours. Tylenol helped a lot. I told my husband that I would never have it done again. After the initial twinges and a few days it worked, and it has been amazing for 6 1/2 months, and it is still working. I feel free from rushing to the bathroom. I am now just wondering when it will wear off. I will definitely be doing it again and just taking Tylenol that first day. Just know that it hurts, then it cramps for a while, but to me it is so worth it. I am hoping I can go without another treatment for 8 or 9 months."

• Dano
• May 6, 2021

"I had Botox 8 months ago all I was told was how good it would be to help my over active bladder, 2 days after the procedure I couldn’t pee at all for 3 months I wore a bag on my leg then I ended up real sick and got sepsis and almost lost my life. I was on 3 different antibiotics while in the hospital. Then after 7 days in the hospital then still had to come home on 2 weeks more of levaquin which is dangerous in itself. I still had to come home and self cath which I am still doing in an 8 month time frame and have had 3 more kidney infections since coming home from the hospital now my kidneys have scarring on them and I still can not use the bathroom on my own or empty my bladder!!! Everyone has their own experience and mine hasn’t been good!!! I would read all reviews and do ur research before having this procedure done!!!"

• bluer...
• February 7, 2016

"I had this treatment in January 2015 and it worked for me almost immediately. I will say that I was already doing catheters and I still do them twice a day if I didn't I would probably never pass urine so something to think about. I wish that I had this years ago when I was scared to leave the house or was always trying to think of where I could get to a public toilet. I have secondary Multiple Sclerosis and would like to ask if anyone has had problems with their legs since this procedure? I am falling at least once a day and this had started since the Botox."

• Littlev
• Taken for 6 months to 1 year
• October 17, 2017

"I had 200mg ( a large dose) of Botox injected into my Bladder in August 2017. I got an infection within days of having the procedure. I went straight into retention. It has now been about 12 weeks since the procedure. I am still having to use catheter and I am never free from infection. I have spent nearly three weeks in hospital due to complications with UTI resulting in Kidney damage. I am on a very rare Antibiotic that my own GP and local chemist had not heard off. I truly hope that this Antibiotic does the trick as I don't think that I am going to be able to cope with the outcome of the Botox injections for much longer. I wasn't given an Antibiotic after the procedure, the outcome may have been different if I had."

• Benny...
• Taken for 1 to 6 months
• January 7, 2019

"Had procedure in August 2018 and have suffered with constant infections ever since. Wish I could turn the clock back as I would not have had this done- BIG mistake. I don’t think the risks are explained enough and they most certainly should be as a lot of people suffer negative effects from this treatment. Think very carefully and ask LOTS of questions before making a decision."

• Leelee
• January 13, 2020

"Worst experience i have ever had, its has been bad since day one, 1st of all the procedure hurt, then I could not pee at all. I went to the doctor and was informed this was a side effect and now I should be able to pee on my own, well I still could not, the spasms almost drove me crazy, she prescribed my some med and they stopped. I am still unable to urinate of my own, just a few drops come out and I know my bladder is full. I hope this stops soon, I hope I don't have to self cather until this wears off... never again...."

• Kona...
• August 22, 2016

"Botox Bladder Beware........ I agree with that person who wished they had not let Botox anywhere near them. I had the Botox bladder procedure 8 (yes, eight) weeks ago, and I haven't peed yet (on my own). Four semi-permanet catheters the first 6 weeks and then self catheters since. Now I don't dare go out more than 3 hours after I cath....... or I'll be stranded. No hike or other lengthy activities, etc...... picture cathing behind a tree????? Another problem is that I'm getting very little info from my doctor..... maybe she's never done this before. PS--- for males it's very expensive; generally they need to put you out, and requires a surgey room. Very bad decision. Males..... don't do it; carry a bottle, & look for rtrms."

• Tissa
• Taken for less than 1 month
• October 22, 2015

"I was terrified to do it but couldn't stand running to the bathroom twice per hour anymore. My injections wereworst case scenario as I owed out the lidocaine. Out of 20 injections I didn't feel 10 at all. The other 10 hurt but it was fast and 48 hours later my life had changed. I highly recommend this but do research on your urologist. How many does he/she do? What's the rate of needing a straight cath post procedure? What's his/her failure rate? Find someone good and then do it of nothing else worked. Life changing!"