Omalizumab and Rash: What Users Say (Page 2)

• Ell...
• Taken for 6 months to 1 year
• April 18, 2018

For Urticaria "Xolair literally saved my life. Before I started taking it, I was in the ER three times within a week with hives and swollen lips and throat. I went to an allergist who tried several antihistamines without success. He then gave me a Xolair injection (free, he had samples). No hives for 2 weeks, but when they came back, they weren't severe. Next time, no hives for 3 weeks. That was in July, and I haven't had a hive since! I come to the hospital procedure center once a month and actually enjoy talking to the nurses."

• mel...
• Taken for 6 months to 1 year
• December 31, 2021

For Urticaria "It brought back my normal life. Aside from the urticaria, I had 6 severe anaphylaxis episodes in one year, one included ICU. After 3 months with the biologic, none. Thanks to everyone that made this blessing."

• Sch...
• Taken for 1 to 6 months
• June 28, 2024

Omalizumab "Was diagnosed with Mast Cell Syndrome after getting diagnosed with MCAS due to non-stop hives, anaphylaxis, etc. Started a month before my appendix burst and at the onset of thyroid issues. I was taking a massive amount of antihistamines, EpiPens, prednisone (which only temporarily helped then it would worsen). First shot...no hives, just had the second shot...still have hives on legs and feet, but no face swelling or chest pain, so I will take it. Fingers crossed it keeps improving, but so far so good."

• Gre...
• May 17, 2022

Omalizumab for Urticaria "Xolair helps with the hives, but has serious side effects. I still need double doses of antihistamine, but I'm able to continue working, so it seems worth it. I still have issues, especially in winter when I am less active. Exercise really helps! Main symptoms are brain fog, random joint and muscle pain (annoying but not terrible), a bad rash on my leg, burning feet in bed at night, burning itchy scalp, face, and neck (not as bad as hives, but sometimes distressing). Also makes me very sleepy on certain days, and not fit to drive-so I've started working at home mostly. In winter, I need one shot every three to four weeks. In spring/summer, not as often. Stay active! The dopamine and testosterone seem to counter the effects of the drug. Don't take this drug unless you seriously need it. It is a medicine of last resort."

• Joy...
• Taken for 1 to 6 months
• July 29, 2021

Omalizumab for Urticaria "My hives and angioedema flare up worse after the injection, and I have to go on steroids."