Nerlynx and Fatigue: What Users Say
Reviews for Nerlynx
- Mon...
- March 13, 2021
For Breast Cancer, Adjuvant "I have been on it for 10 days. I felt nothing for the first 3 days and got so constipated from the Imodium that was prescribed that I had to go on laxatives. I thought perhaps taking it with my morning smoothie (fortified with calcium) was interfering with it, the pharmacist agreed, and it was! As soon as I switched to taking it with lunch, the diarrhea started that night. The next day it stopped, so I stopped the Imodium and was fine for three days. Then I had duck for dinner, and I was so sick with diarrhea that night! For the past three days, I have had no meat and no grease and have had no diarrhea. I am starting to believe it is influenced by what you eat. My fingers are crossed! Anyone else agree? Other than that, I am fatigued, and this depresses me."
- Anonymous
- September 3, 2019
For Breast Cancer, Adjuvant "My oncologist put me on Nerlynx. I was diagnosed with stage 4 breast cancer in 2017. I had a recurrence in July 2018 when I found a huge lump on my neck. I started IV infusions with Kadcyla every 3 weeks. The cancer went to my brain. I was disappointed to find out after the fact that Kadcyla does not permeate to the brain! My oncologist was adamant that I start Nerlynx. He started me on 3 daily. I took it for one day.... severe diarrhea, stomach pain, dizzy, fatigue, crying, angry.... I will never take this drug again! Let alone it causes severe liver damage and heart damage! I will continue CyberKnife radiation."
Frequently asked questions
- What’s the difference between tucatinib and neratinib?
- When does diarrhea start when taking Nerlynx?
- Is Nerlynx (neratinib) a chemo drug?
- Can you drink alcohol with Nerlynx?
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For Breast Cancer, Adjuvant "Just completed my year with no dose reduction needed. Yes, I had some episodes of soiling myself, yes, the fatigue wasn't the best. I also had bladder pain that needed morphine and a clot in my inferior vena cava, which was yellow card reported (UK). However, I would do my year again in a heartbeat. I have arthralgia from letrozole and have another 8 years on it. Again, I'll just keep doing what I can. The feeling of knowing I'm giving myself even a tiny bit of risk reduction gives me the determination to pick myself up and keep going. Six feet above is better than six feet under!"