Nerlynx and Nausea: What Users Say

• Tin...
• Taken for less than 1 month
• July 15, 2018

For Breast Cancer, Adjuvant "The jury is still out for me on this new adjuvant treatment. I finished Herceptin and Perjeta on June 28th and started Nerlynx July 7. The first 24 hours were manageable with diarrhea, but we’ve been off to the races since then. 12-15 times a day in the restroom. I’m taking the prescription strength Imodium per the directions, but I see many here take it every two hours. I’m calling the oncologist today to ask if I can take it that frequently because if not, I will have to stop taking Nerlynx. It is disrupting my life, and the nausea and belching aren’t helping either."

• Mis...
• Taken for 1 to 6 months
• October 18, 2018

For Breast Cancer, Adjuvant "Was determined to continue with Nerlynx despite severe diarrhea, nausea, vomiting, and total loss of appetite. Most side effects stopped at the three-month mark, thankfully. Lost 10 kg in that three months (needed to lose weight)."

• que...
• February 2, 2018

For Breast Cancer, Adjuvant "I have taken Nerlynx (Neratinib) for 1 week. Today, the 7th day, I'm going back to the Imodium every 6 hrs. Within the first 8 hours, my stomach was cramping, diarrhea, and nauseous. After the 3rd day of diarrhea more than 15 times a day, my oncologist increased the Imodium to every 2 hours. I'm still tired but have high hopes in continuing for the full 12 months."