Canasa for Ulcerative Proctitis User Reviews

• Dav...
• December 30, 2016

"When I first started taking it, it didn't have any effect except minor stomach cramping, which I wasn't even sure if it was from the drug. I stopped taking it, but my doctor told me to take it once in the morning and once at night. I also began taking Lialda, which has the same ingredients, again morning and night, two pills. After about a month or two, I had a dramatic positive effect. I've tried getting off it, but my symptoms return. It is effective for bleeding and liquid stool. I sometimes still feel the need to evacuate without anything there, but as long as I consistently take it, I have little, if any, problems."

• Cat...
• Taken for 2 to 5 years
• September 25, 2020

"I had ulcerative proctitis for 5 years before getting pregnant. Only 1 flare since diagnosis during that time (and it was while off the medication). Canasa suppositories worked within a week and completely maintained me in remission. Then a new doctor told me not to use suppositories if I got pregnant (I told her we were trying to get pregnant and I wanted to check if the medication was okay). I stopped it 2 months before I got pregnant and flared 2 months into pregnancy, but throughout the entire colon this time. I’m now on Lialda, Canasa, and prednisone. It’s been extremely difficult to control the flare, which is typical of flares during pregnancy. I wish I had never stopped taking Canasa. It might be too early to judge Lialda after 4 days, but Lialda has given me so much nausea it feels like I’m back in the first trimester. For anyone wondering, you obviously can take Canasa while pregnant, if clearly needed and the benefit outweighs the risk, as I am currently back on it and 29 weeks."

• Pat...
• Taken for 2 to 5 years
• November 5, 2020

"I have been using Canasa for 2 years. First, I wasn't paying for it until I turned 65 years old last year. I now pay a $75 copayment. Three months ago, I tried the generic brand and I noticed lots of symptoms: heart palpitations, lots of bloating, really bad pains. My blood pressure elevated, nervousness, muscle pain in my left calf, pain in my left side, and a really bad headache. I can't deal with it anymore, I am even losing body mass."

• Pec...
• Taken for less than 1 month
• November 20, 2019

"I can't afford Canasa. 2 doctors have prescribed it for me. I am on Medicare, and it will put me into the coverage gap in just a few months. Then I pay lots more for all my drugs. What a scam. I tried Apriso, and it gave me tinnitus."

• Emi...
• Taken for 10 years or more
• April 27, 2022

"I have had ulcerative colitis and proctitis since I was 25 years old. It started after using Accutane for my acne. My GI doctor prescribed Canasa, and it worked. After two weeks of use, it went into remission and stayed there for years. Recently (I’m in my 50s now), it has been flaring up, and when I use Canasa, it works every time. I use it nightly for two weeks, then taper off by switching to every other day for a week and then once every 3 days. It works well as long as I stay away from the triggers (dairy, caffeine…). It’s expensive, so when the generic became available, I used it last year. Not the same! I used it for two weeks and saw no improvements whatsoever. I went back to Canasa, and all is well again. The price difference is huge between generic and brand, but I have no choice and can’t afford to be sick all the time. Insurance used to cover the brand, but now it doesn’t cover it entirely. This is unfortunate for those who can’t afford it."

• Pat...
• Taken for 1 to 2 years
• August 15, 2021

"3 years ago I was diagnosed with ulcerative colitis. Was prescribed Canasa, it works well. Before I retired, I did not have to pay for it, but now I have to pay a $75 copayment. No side effects so far."

• prm...
• Taken for 1 to 2 years
• May 23, 2024

"I've been using Canasa for more than a year, and I definitely see a difference whenever I miss a dosage, so I try to stay on schedule. It's easy to administer and stops the discharge and cramps. My current concern is that Avenue will no longer be making it, and getting through the pharmacy is not feasible for me since I can't afford it. I'm bracing myself for having severe cramping and discomfort along with discharge. Hoping the suspension for production is temporary. Such a shame that I found something to work, and due to financial constraints, I have to go back to square one. Just the same, I appreciate the time I had with relief."

• poo...
• Taken for 6 months to 1 year
• July 21, 2023

"First time, it worked in 6 weeks. This time, it's taken much longer."