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Infliximab for Uveitis User Reviews

Brand names: Remicade, Inflectra, Avsola, Renflexis, Zymfentra, Ixifi

Rating: 9.0

Infliximab has an average rating of 9.0 out of 10 from a total of 5 reviews for the off-label treatment of uveitis. 80% of reviewers reported a positive experience, while 0% reported a negative experience.

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  • Red...
  • June 5, 2011

"My son will be 17 next week. He was diagnosed with idiopathic bilateral panuveitis 6 years ago. He had double cataract surgery at age 14. He was treated with 6-7 different immunosuppressant medicines, nothing worked. Last August, he was placed on Remicade, once a month. His inflammation has been almost quiet for nine months. His vision is stable. He is back to school, and for the first time in five years, he is able to enjoy being a normal teenager."

10 / 10
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18 Report
  • Sho...
  • September 8, 2014

"I am a 28-year-old African American female. Four years ago, I was diagnosed with an autoimmune disease called sarcoidosis. Upon being diagnosed with that autoimmune disease, I was also diagnosed with chronic uveitis in both of my eyes. I was placed on several immune suppression medications, as well as an oral steroid called prednisone. The prednisone left me with unbearable side effects. About a month ago, my rheumatologist started me on Remicade and also upped the dosage of my methotrexate. Since my condition is so aggressive, I have to use the maximum dosage of the medication to see progress. I have only received two infusions of Remicade, and I can literally see a difference. I was lucky to receive the Remicade for free through a foundation."

9 / 10
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15 Report
  • sta...
  • March 8, 2009

"My 15-year-old daughter was diagnosed in January 2008 with uveitis. We did drops for 5 months with no result. Starting in May of 2008, we began an infusion treatment of Remicade, and today, her flare is controlled. Life has returned to 'almost' normal. We started at every 4 weeks and have progressed to every 6 weeks. We hope to make it to 8 and still control the flare. I am calling it a miracle drug. The issue is health care. We have insurance due to the grace of God. Each treatment comes with a price tag of $12K."

10 / 10
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17 Report

Frequently asked questions

  • Sup...
  • May 23, 2009

"I am an 18-year-old male. I have been on Remicade for about a year now. I got uveitis about 4 years back. My thing, according to the doctors, is chronic bilateral panuveitis. I have it in both my eyes. I had been on so many medications, including 6 months on steroids. But a miracle came with Remicade - my inflammation is under control now. I will be on it for about a year or two more."

10 / 10
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17 Report
  • sla...
  • Taken for 1 to 2 years
  • July 19, 2013

"My daughter is 15, was diagnosed 2 years ago with chronic bilateral anterior uveitis, developing secondary glaucoma due to corticosteroids. She has had 2 trabs in the right eye and 1 trab in the left eye. She was on methotrexate, not working well, decided to put her on Remicade. Things were great for almost a year. The minute her doctor slightly reduced it, the inflammation was back in 3 weeks. They had to up her dose, and she is still on Remicade every 4 weeks. The medicines are stabilizing her but not putting her into remission, that's what we are striving for."

6 / 10
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12 Report

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