Fludrocortisone and Shortness Of Breath: What Users Say

• KC8...
• Taken for 1 to 6 months
• December 7, 2022

For Dysautonomia "Some people have wonderful results with this medication, but I am not one of those people. So please take this with a grain of salt. I was very hesitant to take this medication because of the long list of side effects. Nonetheless, I gave it a shot, and it did not end well. Over my three-month trial, I gained 12+ pounds and developed edema, shortness of breath, and insomnia. I just stopped the medication and am already losing weight. I have always had a small frame, so it was particularly painful for me. I jumped for joy after seeing my feet shrink back to their normal size. I wish that doctors didn't downplay the side effects. I'm writing this to warn others and to encourage you to ask questions before starting."

• Mid...
• Taken for 5 to 10 years
• February 18, 2020

For Dysautonomia "I've taken fludrocortisone for almost 10 years. It helps a lot with orthostatic hypotension. Questionable impact on breathlessness with exertion or mental fogginess. It does require monitoring blood pressure. The medicine can cause BP to be above normal, healthy levels."

• jlm...
• Taken for 10 years or more
• March 4, 2016

Fludrocortisone "When I was in my early 20s, I was always sick, weak, fainting, felt like a hangover or morning sickness 24/7 (even taking a shower was a huge event for me). Went through many tests and other meds until I started taking this. Worked great at stabilizing my body, allowing me to live a normal life, no side effects really. Tried to wean myself off a few times (or even if I forgot to take a pill), I would feel very, very weak and short of breath, heart palpitation-kind of like a really bad hangover feeling. **side note-I had been on birth control since I was 18. Eventually, I decided to stop taking BC (at 28 years old), and now have completely stopped taking Florinef...no struggle or signs of weakness/sickness. I am feeling great. It has been 1 mo."