Fingolimod and Tiredness: What Users Say

• Dal...
• Taken for 1 to 6 months
• April 4, 2013

For Multiple Sclerosis "I have been on Gilenya for 4 months now. The first two weeks I was tired, blood pressure was running low, and I felt lethargic all the time. But starting week 3, I was back to normal. I have had zero issues and no side effects. It's so easy to just take a pill a day and not think about it. I love the convenience of it all. I recently had an MRI after completing 3 months on it - no new lesions. I guess it is too early to say if it is working, but it sure 'feels' like it is."

• Dal...
• Taken for 1 to 6 months
• April 4, 2013

For Multiple Sclerosis "I have been on Gilenya for 4 months now. The first two weeks I was tired, blood pressure was running low, and I felt lethargic all the time. But starting week 3, I was back to normal. I have had zero issues and no side effects. It's so easy to just take a pill a day and not think about it. I love the convenience of it all. I recently had an MRI after completing 3 months on it - no new lesions. I guess it is too early to say if it is working, but it sure 'feels' like it is."

• My ...
• May 13, 2013

For Multiple Sclerosis "Very easy to take a pill form of medicine vs. injection. I experienced very low white blood cells with terrible headaches, body aches, tiredness, and nausea after taking the medicine for 4 months. I am slowly feeling better after just two weeks without any medication; I have an appointment with the doctor next week."

• Day...
• Taken for 5 to 10 years
• November 14, 2014

For Multiple Sclerosis "I was in a clinical trial and continued on Gilenya for 5 years after. Overall, awesome medicine regarding the management of my multiple sclerosis progression based on MRI of the brain. Symptoms did worsen over time as it is not a cure, and well, progression happens. Made a decision with my neuro to switch to another treatment (Aubagio) due to lesions showing on the spine and a black hole showing on the brain MRI - never had side effects to mention except maybe additional tiredness after dosing, switched to nights for 3 months but then went back to mornings. Blood pressure ran low from an hour till about 3 hours following dosage but never to a point of dizzy or passing out. Was usually 50/70 to 60/80, which freaked out nurses, but my BP was always around 80-82. I recommend it!"

• Jus...
• Taken for less than 1 month
• May 2, 2013

For Multiple Sclerosis "I just started Gilenya through a research study (or I couldn't afford it) a week ago. I had minor flu-like symptoms the first 72 hours and then increased energy the past several days. I have experienced hot flashes at night sometimes. I have never been on any meds since being tested for multiple sclerosis in 2005. I am thankful I don't have to take the injections. Tired and oddly depressed today. Hoping that goes away soon and isn't a lasting side effect."

• Lil...
• Taken for less than 1 month
• March 6, 2013

For Multiple Sclerosis "Have been on the meds for 5 days now. It has made me feel tired, dizzy, and I have a pain in the heart area. This is nothing to do with the heart, as I have had another few ECGs to check this pain. They don't think it's related, but it's strange that I have only started this medication and this happens. But will be sticking with it."

• Non...
• Taken for less than 1 month
• September 10, 2018

For Multiple Sclerosis "I’ve been on Gilenya for 2 weeks... awful! Exhausted beyond measure. Sinus issues. Sleep talking/walking. No desire to do anything. Notified my doctor immediately, but doesn’t think the medicine could cause these issues. Not sure what to do."

• KTa...
• Taken for 6 months to 1 year
• July 26, 2019

For Multiple Sclerosis "Been on Gilenya for nine months. I was on Avonex for many years before that, but got extremely weak and shaky and couldn't get better no matter how much rest I got. Starting was an administrative nightmare because Gilenya couldn't figure out how to have my private insurance/Medicare combo pay for it, so I was off all meds for two months and felt like utter garbage. Finally, my doctor had to admit me to the hospital to get my first monitored dose. After getting steroids and months of rest, I guess I'm pretty much back at my baseline. I felt tired and got chills easily for the first several months, which faded over time. But at about eight months in, I started getting all kinds of minor infections. Two very painful urinary tract infections, a sty, a plantar wart, toenail fungus, and ringworm. I know they're not serious, but I find it upsetting that contagious things are growing on me."

• Pal...
• Taken for 5 to 10 years
• July 29, 2020

For Multiple Sclerosis "I have been using Gilenya since 10 years back for my multiple sclerosis. It's easy to take and is working well for me without serious symptoms or side effects except tiredness and sleeping disturbances. I don't know for how long I will continue taking it, I guess until the insurance stops covering Gilenya's cost. I have been strongly holding my job for 8 years because of insurance covering the medication expenses. Excellent results, but very expensive."

• Mar...
• June 21, 2017

For Multiple Sclerosis "Was on Rebif over 10 years, went on Gilenya for trial. Stayed on it after trial ended. Tired, slight headache sometimes. Better than taking Rebif. I will take these symptoms any day."