Fingolimod and Nausea: What Users Say

• aus...
• Taken for 2 to 5 years
• April 18, 2014

Fingolimod for Multiple Sclerosis "I started Gilenya in early 2011 as I had a severe relapse. Beforehand, I was on Copaxone, but it wasn't very effective and left itchy sore red marks. Gilenya has been very effective as my lesions have stabilized and have shrunk a little. The downside for me is that if you get an infection or a wound, it takes a long time to heal. You have to keep an eye on it and maintain it if it happens to you as it might get worse. I suffer lightheadedness when standing up and nausea as well. You are more susceptible to colds and flu as well, so make sure you ask your doctor for a flu shot every year. The side effects are tolerable. I have NOT had a relapse since, and given there isn't a cure for Multiple Sclerosis, this is the best medicine available in Australia."

• GoW...
• March 7, 2013

Fingolimod for Multiple Sclerosis "I have Multiple Sclerosis, and work for my neurologist. I have been on Gilenya for 6 months. I am so thankful for a pill rather than an injection. I have had no side effects, that I can say for sure. I have had dizziness and nausea prior to the change in medicine. I am unsure if everyone on these disease-modifying medications is aware that they do not 'cure' or get rid of MS symptoms you already have. These medications are to put the MS in a remissive state."

• Anonymous
• February 14, 2011

Fingolimod for Multiple Sclerosis "I started this medication 3 weeks ago. I absolutely love it. I have just a little bit of nausea and that's it. Taking Gilenya with food seems to help the nausea. So far so good! I really hope it stays that way!"

• Gra...
• April 13, 2012

Fingolimod for Multiple Sclerosis "I have been on Gilenya for 5 weeks with minimal side effects. Had some nausea the first 5 days and took meclizine over the counter, and it quickly resolved. Due to the MS, I was dizzy and felt like I was pitching forward when driving and going down steps. I am not nearly as dizzy, and the feeling of falling forward is much less. I hated the Copaxone injections, which began making dents in my thighs, not to mention the pain, itching, and swelling at the injection site."

• My ...
• May 13, 2013

Fingolimod for Multiple Sclerosis "Very easy to take a pill form of medicine vs. injection. I experienced very low white blood cells with terrible headaches, body aches, tiredness, and nausea after taking the medicine for 4 months. I am slowly feeling better after just two weeks without any medication; I have an appointment with the doctor next week."

• KJM...
• Taken for 1 to 2 years
• May 23, 2017

Fingolimod for Multiple Sclerosis "I was constantly getting sick or an infection from it, leading to an increased number of relapses. It gave me cystic acne from my belly button to my knees, a lot of nausea, and I suspect it affected my lung function, but they quit testing that side effect. I also mentally did not feel like myself somehow. I felt so much better and like myself again after coming off of it."

• Anonymous
• January 26, 2011

For Multiple Sclerosis "I have been on this medicine for almost 3 months and must say it has a really big impact on my MS. I have improved. Who improves when having this disease for 10 years? I have had side effects such as nausea, malaise, headache, and GI problems, but it's worth it for the benefits."