Fingolimod and Flu-Like Symptoms: What Users Say
Brand names: Gilenya, Tascenso ODT
Reviews for Fingolimod
- Anonymous
- Taken for 6 months to 1 year
- November 6, 2013
For Multiple Sclerosis "I have been taking Gilenya for close to 10 months now. I was on Rebif and suffered horrible side effects that never did go away (flu symptoms, migraines). I had a very severe relapse where I lost the ability to walk for months. I started the new pill medication and have had no side effects whatsoever. What a relief! I can't tell if it's working, I guess time will tell and if I ever relapse again. It's a very expensive medication, thankful my extended benefits cover it. I would recommend this if Tysabri is not for you (JC virus positive). A few laughs in light of a serious health problem... I am a mad cow! lol. And those of you who are JC positive - you will know what I mean."
- Mas...
- Taken for 1 to 2 years
- November 16, 2018
For Multiple Sclerosis "I switched to Gilenya from being on BetaSeron for 15 years (which kept me without any disease progression). BetaSeron started to give me flu-like symptoms every time I took the shot, so I decided to switch to an oral med. For me, Gilenya was awful. I felt awful and I looked awful. When I see pictures of me, I can almost pick out the ones when I was on Gilenya. My first side effect was extreme vertigo, then on top of that, I just felt like my head was a 'brick.' I used to have to go home on my lunch hour and just lay there. Although it stopped disease progression (which was a plus), the side effects, for me, were miserable."
Frequently asked questions
- Gilenya vs Tecfidera. How do they compare?
- How much does Gilenya cost?
- What happens when you stop taking Gilenya?
- Does Gilenya suppress the immune system?
See also:
Copaxone
Copaxone is used to treat relapsing forms of multiple sclerosis (MS) in adults (including ...
Tecfidera
Tecfidera (dimethyl fumarate) is used to treat relapsing forms of multiple sclerosis. Learn about ...
Kesimpta
Kesimpta is used to treat relapsing forms of multiple sclerosis (MS), including clinically isolated ...
Aubagio
Aubagio (teriflunomide) is used to reduce flare-ups in people with relapsing multiple sclerosis ...
Avonex
Avonex is an interferon used to treat relapsing multiple sclerosis. It is given by injection into a ...
Tysabri
Tysabri is used to treat multiple sclerosis and Crohn's disease. Learn about side effects ...
Gilenya
Gilenya (fingolimod) is used to treat relapsing forms of multiple sclerosis. Includes Gilenya side ...
Betaseron
Betaseron is used to treat relapsing multiple sclerosis (MS). Learn about side effects ...
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For Multiple Sclerosis "I just started Gilenya through a research study (or I couldn't afford it) a week ago. I had minor flu-like symptoms the first 72 hours and then increased energy the past several days. I have experienced hot flashes at night sometimes. I have never been on any meds since being tested for multiple sclerosis in 2005. I am thankful I don't have to take the injections. Tired and oddly depressed today. Hoping that goes away soon and isn't a lasting side effect."