Fingolimod and Flu-Like Symptoms: What Users Say
Brand names: Gilenya, Tascenso ODT
Reviews for Fingolimod
- Anonymous
- Taken for 6 months to 1 year
- November 6, 2013
For Multiple Sclerosis "I have been taking Gilenya for close to 10 months now. I was on Rebif and suffered horrible side effects that never did go away (flu symptoms, migraines). I had a very severe relapse where I lost the ability to walk for months. I started the new pill medication and have had no side effects whatsoever. What a relief! I can't tell if it's working, I guess time will tell and if I ever relapse again. It's a very expensive medication, thankful my extended benefits cover it. I would recommend this if Tysabri is not for you (JC virus positive). A few laughs in light of a serious health problem... I am a mad cow! lol. And those of you who are JC positive - you will know what I mean."
- Mas...
- Taken for 1 to 2 years
- November 16, 2018
For Multiple Sclerosis "I switched to Gilenya from being on BetaSeron for 15 years (which kept me without any disease progression). BetaSeron started to give me flu-like symptoms every time I took the shot, so I decided to switch to an oral med. For me, Gilenya was awful. I felt awful and I looked awful. When I see pictures of me, I can almost pick out the ones when I was on Gilenya. My first side effect was extreme vertigo, then on top of that, I just felt like my head was a 'brick.' I used to have to go home on my lunch hour and just lay there. Although it stopped disease progression (which was a plus), the side effects, for me, were miserable."
Frequently asked questions
- Gilenya vs Tecfidera. How do they compare?
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For Multiple Sclerosis "I just started Gilenya through a research study (or I couldn't afford it) a week ago. I had minor flu-like symptoms the first 72 hours and then increased energy the past several days. I have experienced hot flashes at night sometimes. I have never been on any meds since being tested for multiple sclerosis in 2005. I am thankful I don't have to take the injections. Tired and oddly depressed today. Hoping that goes away soon and isn't a lasting side effect."