User Reviews for Etanercept to treat Psoriatic Arthritis
Also known as: Enbrel, Erelzi, Eticovo
Etanercept has an average rating of 8.1 out of 10 from a total of 46 ratings for the treatment of Psoriatic Arthritis. 80% of reviewers reported a positive effect, while 13% reported a negative effect.
Enbrel (etanercept): “I was on it for 15 years. It changed my life. I have psoriasis really bad. Thanks to Enbrel, no more psoriasis on my head, in my ears, legs, toe nails, finger nails, etc. I also switched to Cetiphil to wash myself and Tide Free to wash my clothes. Completely symptom free! Years later, I developed psoriatic arthritis as that’s very common once you have the psoriasis marker. Enbrel helped that as well. Now I have a new job and new insurance. They made me try Humira. It’s been extremely difficult for me and I’m having my worst ever flare up. I’m so sick right now. The pain in horrible! My doc is having me take steroids until I’m hopefully approved for Enbrel. I also have burning as a symptom. I feel like I’m on fire. The insurance companies care about money, not our health unfortunately.”
Enbrel (etanercept): “I had my first shot of Enbrel yesterday for psoriatic arthritis. I feel amazing this morning. I was able to get out of bed with no knee pain and hold my cup of coffee with no pain. The side effects I have read scare me, but I have to try. I am 51 years old and could not continue with that pain still too young to deal with that. Oh and let me tell you how I actually ran down the stairs this morning. I just pray this continues to help.”
Enbrel (etanercept): “My wife has found great relief using Enbrel for the last 5 years after she was diagnosed with aggressive psoriatic arthritis. My main complaint is the cost of a drug that was introduced 20 years ago. We were co-paying $10 every 90 days until my wife turned 65, when the debit card provided by Enbrel was cancelled. She has to sign up for a Medicare Part D plan now and her co-pay is over $4,800 a year for just that medicine, not including the monthly premiums for the Part D plan. With dual Medicare Part B and Medicare supplemental, our out of pocket cost for 2019 is $10,601, not including other deductibles, and we are healthy. Question: Why do the makers of Enbrel (Amgen) get to charge these exorbitant rates after 20 years on the market. I guess that's why they invented lobbyists.”
Enbrel (etanercept): “Good but very risky medicine. I am Psoriasis Psoriatic Arthritis patient. After 8 years of using Enbrel I developed Lymphoma. Warning labels are not enough. If you think that you will be among the 90 % of patients that are lucky enough, go ahead. But think more than twice before taking an Enbrel shot.”
Enbrel (etanercept): “Been using Enbrel for 5+ years. when I started I was in terrible pain and could not even close my hands more than 20%. I had joint pain all over. From the second shot the improvement was amazing and the relief has continued to date. I would say Enbrel is a miracle drug for me.”
Enbrel (etanercept): “I took Embrel from 2004 to 2012 until it stopped working and I switched to Humira. I was on a double dose due to the severity of the arthritis- in nearly every joint. Psoriasis is mild. Enbrel was a miracle drug that took me from barely walking to 80% mobility. Still can't kneel or run but that's minor. I can WALK!!!! I had no side effects. I took it with methotrexate for 3 years and then stopped the mtx cause Enbrel was so effective. Alas the day came when Enbrel quit working but 8 years was a nice run compared to some people. Humira is almost as effective but the psoriasis was better with Enbrel. I've had PsA for 45 years and Enbrel was a God-send.”
Enbrel (etanercept): “Have been on Enbrel for 10+ years with great results. Pain is way down and psoriasis 95% clear. Only now getting a bit of a flareup. We will see. Only side effect I have noticed is a bit of inflammation at the injection site early on.”
Frequently asked questions
- What are the new drugs for the treatment of rheumatoid arthritis (RA)?
- What are the new drugs for the treatment of plaque psoriasis?
- How many biosimilars have been approved in the United States?
- How long does it take for Enbrel to work?
Enbrel (etanercept): “Excellent , no need to say more. Life changing for me. I am happy and don't hurt anymore. I actually have knuckles and can close my hands. I wake up not hurting, since I just have got use to the pain I did not realize how bad my condition was. You have no CHOICE if you understand. I had taken all types of pills and creams, fish oil, vitamins and none helped. Third shot 12-11-2012.”
Enbrel (etanercept): “I have got psoriatic arthritis all of my body, fingers, shoulders, knees, neck, but not on my skin. I just have a little psoriasis skin on my head. Had my first shot and within 12 hours my all pain gone. I can walk again. It's like magic.”
Enbrel (etanercept): “I took enbrel for about 8 yrs with great satisfaction and little side effects.Then it lost its effectiveness and I changed to Humira with even better results.Now after 7 more years it appears its effectiveness is starting to wane .I'm considering going back to enbrel and trying it again hopefully with comparable results as the first time. good luck to all and I hoped this helped someone.”
Enbrel (etanercept): “I had been suffering from psoriasis for 5 years and began to feel arthritis pain 3 years ago. The psoriatic symptoms and arthritis pain disappeared when I was pregnant but had since come back three fold. My debilitating arthritis pain in my hands and wrist, knees and hips prevented me from being the best mom I could be. I could not take it anymore. I'm relatively young (38) so I had to be very proactive in my diagnosis and treatment. I was sure that I did not want to take methotrexate and wanted a biological. I did my research and knew the risks. Enbrel is a miracle for me. The pain relief was instant, within 5 hours of the first shot. It's been three months and I have full movement, minimal to no pain. I am excited to ski again!”
Enbrel (etanercept): “I started enbrel over 20 years ago for psoriatic arthritis. It worked in 3 weeks and and in 6 week my psoriasis was diminished. No one knew that would happen. Well now 20 years later the enbrel is not working. It was a miracle through this time. Before I couldn’t walk, get out of bed, turn a doorknob. I started Cosentyx 5 weeks ago and the arthritis is at full force and psoriasis is creeping back. What do I do? I was so lucky enbrel lasted so long. Thinking Humira is along the same line? Any thoughts?”
Enbrel (etanercept): “I was diagnosed with PA and I have no psoriatic symptoms except on the heels of my feet. I suffer from arthritic pain in my right hand (thumb mostly) and both big toes. I was prescribed Embrel and after taking the first injection (which caused extreme nausea) I was perplexed that my symptoms worsened. Now I was experiencing pain on my left hand and other places I hadn’t noticed pain before. I thought maybe I have to have a few doses before I see any relief from symptoms, so I administered a second injection and although I didn’t experience the nausea of my previous experience, I noticed no relief and a worsening of pain again, continuing to affect areas that were never painful previously. I have decided not to continue treatment.”
Enbrel (etanercept): “After negative side effects from another "biologic", I went on Enbrel. It did help the joints, quite a bit, reducing joint pain and increasing mobility. I was able to walk up and down stairs, and started walking from 1 to 5 miles a week! ( A near miracle after 45 years with Psoriatic arthritis!!) Most of the symptoms of Transverse myelitis, which started on another biologic and was much more severe on that previous drug went away, with the exception of Bladder Incontinence.... made a life outside the home very difficult. That side effect stopped within 3 days of taking Enbrel, and has not returned in the past 2 years.”
Enbrel (etanercept): “I've been diagnosed with psoriatic arthritis (although I don't get psoriasis) and have had one injection of Enbrel. It's amazing. Worked straight away. I've been on multiple NSAIDs, DMARDs, etc. for many years and this is the first thing that's worked properly. Fingers crossed it continues.”
Enbrel (etanercept): “I have taken Enbrel for 17 years - since I was 30. I would not be a functioning individual without it. I have not had psoriasis since I started taking it, either. I know this sounds too good to be true, but it is my miracle drug. I've never had any side effects or problems. I am currently on the Sureclick but have also had to fill syringe needle and inject. If you let medicine warm alittle, it doesn't burn as bad.”
Enbrel (etanercept): “Enbrel worked wonderfully controlling my moderately severe psoriasis clearing it up completely. My swollen and painful hands from psoriatic arthritis quickly had no more swelling, no more pain, and the joint damage was slowed to next to nothing. The injections can burn sometimes, but the pain was worth it. I had insurance to cover it for a year and a half. It is VERY expensive at almost $500 per shot. I needed one shot per week, sometimes two. Now, I have no insurance and my Enbrel will be running out. I am so worried about the future. Without Enbrel, my life will be painful and the joint damage will quickly progress as well as severe psoriasis again!”
- How long can Enbrel be left unrefrigerated?
- How and where do you inject Enbrel?
- Do Enbrel injections hurt?
- What is the difference between Erelzi and Enbrel?
Enbrel (etanercept): “Works extremely well. The day after I give myself the injection, I feel like I have a cold (common side effects) ... Two days after, I'm fine. I get sick easily when inconsiderate people ride public transportation sick and don't take care about coughing. Grocery shopping is another hazard as sick people run into the store "for just a second" and head home to be sick. Buying masks for the hazard areas is a good idea. I always ask at Drs offices for a few and have never been refuses. Even with the one day colds and the hazard if getting sick frequently, IT'S MORE THAN WORTH TAKING DUE TO BENEFITS. (I wouldn't even regret taking it if I got the most severe rare side effect alone or in combination with methotrexate)”
Enbrel (etanercept): “I was diagnosed with psoriatic arthritis in my twenties and was on methotrexate and indomethicine as well as occasional prednisone. While the drug regime helped, my arthritis was continuing to damage joints and was really debilitating. Going on Enbrel changed everything and gave me a new lease on life. No symptoms and I'm very active. I feel like methotrexate took me to 60% and Enbrel did the rest-I have to continue to take both to get the results.”
Enbrel (etanercept): “I have been on Enbrel for 15 years and it has been a life changer. I was literally pain free. Until about a year ago, shortly have the injection I started feeling nauseous, thought maybe it was something I ate but I have since tracked it and every single time to give myself an injection I get nauseated and it lasts for about 36 hours. Has something in the formula of Enbrel changed?? I'll take being nauseated any day over the pain.”
Enbrel (etanercept): “I'm diagnosed with psoriatic arthritis. Have only scalp issues and joint swellings and pain in legs, knees, ankles, hand and fingers. Got approved for Enbrel and did 2 weeks ago the first shot. All went well other than I got a cough, night sweat and high blood pressure which it controlled. The second shot gave me a small red stain after 3 days of the size of a quarter which grew to the size my hand palm within a day. My cough is like crazy and my throat itchy. Blood pressure high... I went to the doctor who told me I have to get off I'm allergic to it and a next shot could be life threatening. Benadryl did not help, I got 20 mg Prednisone and it's slightly got better with the redness and pain. I will be changed to Humira.”
Enbrel (etanercept): “I have been using Enbrel for almost 5 years now, but before I started on it I was almost pushed into disability because I was not able to do my job anymore, now I am about to turn 48 and I am thinking about taking up golf again, which was the first thing that I had to give up. Enbrel gave me a few more years to enjoy my life and not have to think about using a walker or worse.”
Enbrel (etanercept): “I loved it. I had taken it for almost ten years. It got the arthritis under control almost 100%, and the psoriasis was almost gone but, after ten years, the doctors tell me I have built up an immunity to it. So we try some new medicines.”
Enbrel (etanercept): “A complete life changer! I've been taking Enbrel for almost 17+ years. I had just turned 30 and I was hobbling through the grocery store on swollen ankles. The pain was constant. My fingers were termed sausage digits. Now I'm 50 and doing pilates and an hour on the elliptical some days... taking my kids on 10 mile hikes up mountains. I had not heard that it was linked to colitis and Crohn's until these posts. I've had those show symptoms twice during my Enbrel years. But I am still an Enbrel fan all the way. Miraculous!”
Enbrel (etanercept): “My first injection of Enbrel caused me more pain and stiffness then I had before I used the medicine. The right side of my body and my hands hurt so much... happens to be the side I injected. NO way is this for me, it made my skin red and so painful, my joints are stiff and I have so much more pain. My scalp is much more itchy. Also gave me chills and made me feel like I had the flu. I wish I could fine something to stop the pain and my joints from getting deformed.”
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.
Learn more about Psoriatic Arthritis
Symptoms and treatments
Mayo Clinic Reference
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- Drug class: antirheumatics
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