Aimovig and Fatigue: What Users Say (Page 2)

• Spi...
• May 10, 2019

For Migraine Prevention "I have suffered with migraines for over 41 years. I used Aimovig 70 mg for 3 months. This was my price tag for a slight and almost negligible improvement: 1. 1st injection, within 3 hours in the hospital for migraine rescue. 2. Next day, partial blindness in my right eye. That migraine caused a 'leak' in my retina. 3. Constipation! And diarrhea - EXTREMELY painful cramping!! 4. Lactose intolerance develops (NEVER had issues with dairy before). 5. Flu/cold lasting 3 weeks (sore throat). 6. Gained 18 lbs in three months of use!! 7. Fatigue, low energy. 8. Muscle cramp from shoulder up to the back of the neck lasting 3 weeks. 9. Kidney stones, UTI, lower back pain. 10. Brain fog, depression, don't-care feeling. 11. Nausea. 12. Memory loss! Migraines are debilitating. So if the objective is just to improve migraine status … I can concede that it did a little bit … but if it is to improve quality of life … then Aimovig (for me) is a FAIL!"

• Spi...
• May 10, 2019

For Migraine Prevention "I have suffered with migraines for over 41 years. I used Aimovig 70 mg for 3 months. This was my price tag for a slight and almost negligible improvement: 1. 1st injection, within 3 hours in the hospital for migraine rescue. 2. Next day, partial blindness in my right eye. That migraine caused a 'leak' in my retina. 3. Constipation! And diarrhea - EXTREMELY painful cramping!! 4. Lactose intolerance develops (NEVER had issues with dairy before). 5. Flu/cold lasting 3 weeks (sore throat). 6. Gained 18 lbs in three months of use!! 7. Fatigue, low energy. 8. Muscle cramp from shoulder up to the back of the neck lasting 3 weeks. 9. Kidney stones, UTI, lower back pain. 10. Brain fog, depression, don't-care feeling. 11. Nausea. 12. Memory loss! Migraines are debilitating. So if the objective is just to improve migraine status … I can concede that it did a little bit … but if it is to improve quality of life … then Aimovig (for me) is a FAIL!"

• Boo...
• June 3, 2020

For Migraine Prevention "I just took this 2 days ago, so I can’t say if it completely works to prevent migraines yet. I absolutely have no energy, and I’m super spacey. I read the reviews for this medication after the injection, and I’m kicking myself now. I listened to my doctor, who told me that the only side effect was constipation. From what I’m reading, people about 10 days after taking this medication have severe fatigue. Well, I’m only 2 days out, and can’t keep my eyes open barely to write this review. I have a 2-year-old toddler, and this has been difficult, so I can’t imagine how the rest of the month will be. I’m regretting this decision so much. I normally have slight fatigue because I have a toddler, so if you normally feel a little fatigue, then my suggestion would be not to take this drug. The first day after taking it, I had a migraine all day long. Normally, I have them at night. Today it’s severe fatigue. I’d rather take other medication than deal with this for a month! Never again!"

• Sev...
• Taken for less than 1 month
• September 16, 2019

For Migraine Prevention "I don't want to discourage anyone from trying this medication. Like others, we will try anything and everything to get rid of the pain. I have, I guess, a cross between NDPH and chronic migraine. I have had a headache nonstop for over years now. It's believed to be caused by untreated Lyme disease. Anyhow, I took my first shot on Sept 1st. Within hours, I felt, well, disconnected from my body. I didn't feel good at all. I have continued to get more and more side effects every day. Muscle aches and pains, brain fog, anxiety, word jumbling, forgetting things easily. Just an overall feeling of not feeling good. Like the tail end of a flu. Like you can function, but you just don't feel well. Tired, fatigued, weak, etc. So needless to say, I won't try this again. Plasma half-life is 28 days. I can't wait for all this medication to get out of my system. Best wishes to all."

• Bab...
• Taken for 6 months to 1 year
• November 11, 2019

For Migraine Prevention "I have taken Aimovig for between 6-8 months. The migraines improved tremendously, but I have had more fatigue, not feeling well, and after the last injection over three weeks ago, almost a nonstop headache, burning hands and feet. I have taken Frovatriptan and Sumatriptan during this time, but the headache always comes back. If you take the Aimovig, be aware of the side effects which I have had and others too: constipation, fatigue, prolonged headache, burning of hands and feet."

• Dee...
• January 10, 2020

For Migraine Prevention "I got this medication, Aimovig, on August 9th, 2019, after I had a CT scan and an MRI, and the only thing they found was on my left side some white area that is linked to migraines. So I can say that it did stop the migraines, but the fatigue, muscle ache, and constant vertigo were not worth it! Worst of all, YOUR HAIR WILL FALL! If I was allowed to post photos here, I would show you in August I started losing it, September even more, October, and November I lost so much hair I became very depressed and it's slowed down by December and January of 2020. It's still going, but not as bad. The problem with this medication is that it stopped a lot of blood flow to the scalp so it started falling, and when I say my hair was falling, it was falling by the roots! A lot of research has to be done about this medication. Yes, it works, but the side effects are way too much, they need to work on it a little more."

• Ach...
• Taken for less than 1 month
• January 15, 2020

For Migraine Prevention "Side effects have been very bad: lower back pain, cramps, bloating, constipation, fatigue. About a week after taking the injection, I had one of the most severe migraines I've ever experienced. Previously they were cluster headaches, but this was intense pain all around my head, even at the base of my skull. I understand Aimovig has worked for some, but would advise trying all other options first. From what I've read here, many others have also had serious side effects."

• Kar...
• Taken for 1 to 6 months
• January 1, 2020

For Migraine Prevention "I only had two doses and am discontinuing Aimovig. I started feeling fatigue, nausea, dizziness, stomach pain, blurred vision, increased anxiety, heart palpitations, shakiness in chest, eye pressure/pain, and a crazy upper respiratory infection/sinusitis with fever started. I am on the second round of antibiotics, and that's finally clearing up. There is no other explanation for all these side effects to come on all at once. I was told by my neurologist that the ONLY side effect was constipation, which can be an issue since I take a double dose of iron daily for anemia-I didn’t notice that getting any worse. Go figure. After doing my own research and finding that so many other people were reporting these same side effects, I decided to stop. My migraines are hormonal but can be triggered by stress. Since my stress level is way down, I was only getting one or two migraines per month. Now, like so many others, I’m waiting for this scary new drug to be out of my system!"

• Hop...
• Taken for 1 to 6 months
• September 19, 2018

For Migraine Prevention "I took my third injection of 140 mg on September 4th. My last Botox was in August. I have had a solid migraine since taking the Aimovig. The migraine is not on the right or left of my head, but it is coming up from the back of my neck to the top of my head. I have felt and sounded like I have a bad congested cold, and I have had a urinary tract infection. My energy is zero, I am so fatigued. There are definitely more side effects than constipation, and they need to list them. Constipation is definitely a side effect, but not the only one. I believe the 140 dose was too much. I will definitely go back to 70 mg in October and try that. God bless you all. Praying for all that suffer."

• Tam...
• Taken for 6 months to 1 year
• October 23, 2019

For Migraine Prevention "I have severe fatigue, and my eyes hurt. My vision is getting bad ever since I started taking it. I noticed I was having numbness in my arms and legs every time I took an injection. I’m going back to my neurologist to see what’s going on. I think I could sleep all the time. I have a dull headache all the time and my eyes hurt every day."

• azu...
• Taken for less than 1 month
• March 8, 2019

For Migraine Prevention "Heart palpitations/funny pressure in chest that comes and goes. Freezing hands and feet. Random chills throughout the day. Haven't slept properly since the first dose, but there's an odd fatigue feeling unrelated to sleep, too. Oddly vivid dreams. I think it did help mostly block a weather-triggered migraine, and my acute meds (Amerge) definitely worked better, but the side effects listed above make it not worth it for me. I still had to take acute meds, it didn't stop the migraine, but it did help. Do your research. The information from the manufacturer is biased and doesn't list side effects properly. The manufacturer reporting is only for those who had success and completed the studies, you have to dig and use other resources to find the dropout rates and the reasons why."

• DAN...
• September 9, 2019

For Migraine Prevention "I never am sensitive to drugs, but this one I think almost killed me! I was injected in the left arm, and that day began having weird symptoms I’d never experienced before! I had chest pain, severe, thought I was having a heart attack! My chest still hurts, never hurt before in my life, but post-Aimovig has hurt for about 4 months nonstop now!!! High blood pressure, irritable/depressed, flu symptoms, cramps, chills, extreme fatigue, bedridden, and I’m normally very active! Doctors couldn’t find anything but very high CRP (C-reactive protein), and I think that’s due to inflammation caused by Aimovig! Was injected only once in April, and side effects persist still but have dissipated. It’s like they peaked around post week 10 or 11, and I know it’s not eliminated for 23 weeks! The manufacturer doesn't know what they’re doing! Worthless drug! Only inject this if you WANT TO BE SICK OR POSSIBLY DIE! Oh, and it made my migraines WORSE!!!!"

• Jul...
• Taken for 6 months to 1 year
• September 13, 2019

For Migraine Prevention "I started Aimovig in May. It was really cutting down on my migraines, but the other side effects were terrible. When I first started, the only side effect listed was constipation. I have been to the doctor and had several tests ran checking my thyroid, rheumatoid factor, hemoglobin, but everything seemed to be OK. I had severe fatigue, joint pain in my hands and knees, brain fog, weight gain, depression, you name it. I thought something was seriously wrong with me. I was due to take it nine days ago again, but I held off to do more research. I have been reading that other people have been having similar symptoms. I think I will go back to having migraines several times a month. It has got to be better than what I am experiencing now. Today is the first day I actually had a little bit of energy and was able to look up some of the other people's side effects. I would not recommend this drug."

• ZKa...
• Taken for less than 1 month
• September 6, 2018

For Migraine Prevention "I guess I need to wait it out to be fair. Took my first shot two weeks ago. I was told it may take more than one shot. However, I have had many or more of the side effects mentioned. I'm grateful for this site, as the Aimovig site states no side effects. These are mine: blurred vision, numbness, left arm sore, body sore, fatigue, lightheaded, head pressure, increased sensitivity to light and sound, shooting pain, electric types, shortness of breath, insomnia. After two weeks, things are getting better, but I still have the same headache as after I took the shot. My only question is, do I take the second shot in two weeks? I'm happy the shot has worked for others. Keep the information coming so we can keep helping each other get better."

• uua...
• Taken for 1 to 6 months
• May 22, 2020

For Migraine Prevention "If you like splitting headaches, nausea, sleep disturbances/nightmares, fatigue, bowel problems, and muscle aches, this is the drug for you! I've had chronic migraines and cluster headaches since 2016 and haven't even been employed since then. Started Botox in 2019. It is the only treatment that has really worked for me-it's a miracle. However, I was having really bad rebound migraines between injections... enter Aimovig. What followed was a splitting, incredibly painful, multi-day headache. Not a *migraine,* just a really, really bad headache. After that initial phase, I would be overcome with fatigue, nausea, nightmares, and general malaise. My migraines respond best to diet restrictions and Botox. I'm sensitive to a lot of meds and didn't have much luck with most migraine medications, including triptans. So, if your migraine profile is similar to mine, skip Aimovig!"

• uua...
• Taken for 1 to 6 months
• May 22, 2020

For Migraine Prevention "If you like splitting headaches, nausea, sleep disturbances/nightmares, fatigue, bowel problems, and muscle aches, this is the drug for you! I've had chronic migraines and cluster headaches since 2016 and haven't even been employed since then. Started Botox in 2019. It is the only treatment that has really worked for me-it's a miracle. However, I was having really bad rebound migraines between injections... enter Aimovig. What followed was a splitting, incredibly painful, multi-day headache. Not a *migraine,* just a really, really bad headache. After that initial phase, I would be overcome with fatigue, nausea, nightmares, and general malaise. My migraines respond best to diet restrictions and Botox. I'm sensitive to a lot of meds and didn't have much luck with most migraine medications, including triptans. So, if your migraine profile is similar to mine, skip Aimovig!"

• Red...
• Taken for 6 months to 1 year
• October 10, 2019

For Migraine Prevention "At first, a wonder drug. The next dose, a week after the injection, dizziness and severe fatigue. I’m on my 8th injection and now headaches worse than before, although not as many. Also, extreme hair loss and weight gain of 15 pounds! Sad to say, this will be my last injection."

• Pin...
• Taken for 1 to 6 months
• September 7, 2018

For Migraine Prevention "I've been on Botox for 4 years and decided to try Aimovig. First month (140 mg) injections. The first 7 days, I felt nauseous, lightheaded, extreme fatigue, and hot flashes. I honestly thought I was pregnant. And I also had a 7-day migraine that was awful. I've also experienced the worst menstrual cramps. Not normal for me. It's my 2nd month (140 mg). 3rd day in and I feel nausea, lightheaded, extreme fatigue again. And, 95% of my migraines are on the left side of my head. This time, I've had a 2-day right-headed migraine and 1 sinus migraine, and my teeth hurt. I don't take any onset medication because they don't work for me. In fact, I had more migraines and the intensity was the worst I've had in years. I don't think I will continue on my 3rd month. I'm really sad and mad that this is happening to me. I had high hopes for this medication. But I am glad that some of you are having good experiences with Aimovig."

• Don...
• Taken for 1 to 6 months
• August 19, 2019

For Migraine Prevention "The neurologist did a loading dose with Emgality in June 2019, which my insurance would not cover, so now I'm on Aimovig. The first month, I was more stressed and depressed, maybe saw a 15% decrease in my migraines. After the second shot, I started having more neuropathy pain in my arms specifically while sleeping and waking every hour or two. The doctor put me on diclofenac. Also, the worst depression, very bad irritability, and fatigue throughout the day that was more than my usual. The doctor put me on amitriptyline. Since I began these injections three months ago, I have now added two other pharmaceuticals to my life, do not have a very good reduction of migraines, gained 20 lbs, and feel annoyed and sad about everything. Of course, the doctor doesn't think any of this is because of the injections. They never want to blame the medicine they give you."

• Hop...
• Taken for 1 to 6 months
• May 3, 2020

For Migraine Prevention "I took my fifth shot of Aimovig a week ago, but last month I already noticed the migraines were coming back. This time, depression is the companion. Should I blame the coronavirus quarantine for this? I don't believe it is helping. But the fatigue and the muscle pain are not going away. I want to do my yoga, and I only have the energy to practice the tree. Kind of pathetic, don't you think? I am also wondering if this drug is affecting my thinking ability. I get distracted more easily and cannot concentrate the way I used to. Next month, I'll try to go without it, use the ice hat instead, and see what happens."

• Jud...
• Taken for 1 to 6 months
• June 19, 2019

For Migraine Prevention "63-year-old female with migraines for 7 yrs after a failed surgery on C5-C7 vertebrae. Debilitating migraines 18-20 days/month. After a year of being on the highest dosage of Oxy allowed, my pain management doc offered Aimovig. I've had 2 injections and a 3rd is in my refrigerator where it will stay. For a couple of days after the 1st injection, I felt hungover, with dizziness similar to vertigo. A week later, I developed this rash all over my legs that looked like chigger bites. The itching and skin sensitivity are unbearable and wake me up in the middle of the night. Skin is hypersensitive and I can no longer stand anything hotter than lukewarm water, which makes me feel like my skin is on fire. I have bruises all over with no explanation, fatigue and depression along with constipation. I still have at least 8-10 migraines/month. The side effects are so awful I can't recommend it. I just hope they aren't permanent."

• Tex...
• August 27, 2018

For Migraine Prevention "I took my 1st injection on 08/17. I gave the 70 mg injection to myself in the stomach with no pain. It did get a little sore for a few hours after, but nothing at injection time. Later that day, I got a migraine that lasted 3 days and also flu-like symptoms. The flu-like symptoms came on first with muscle weakness, fatigue, muscle spasms, and nerve pain. I have since experienced very mild constipation and awful stomach cramps. I had Botox 5 days later, and it helped some. Aimovig was given to use each month to fill in the gaps from Botox. I have daily debilitating migraines averaging 25-30 days per month. I have arterial thoracic outlet syndrome (ATOS) & neurogenic thoracic outlet syndrome (NTOS). I’m very curious if anyone else has this? My first Aimovig was my last one! This medication (that was hyped up to be a migraine miracle cure) is NOT for me. I wanted to put my experience out there for others to see. I feel like there are WAY more side effects yet to be discovered from the use of this medicine."

• ImA...
• Taken for 6 months to 1 year
• December 26, 2019

For Migraine Prevention "Yes, this medication got rid of my migraines. Since taking Aimovig, I have gained weight uncontrollably. I have also been diagnosed with hypothyroidism, even though previous tests showed no thyroid issues. I have severe fatigue that comes on within 3 days of getting the shot. Leg cramps start almost immediately and continue daily."

• Anonymous
• Taken for 1 to 6 months
• July 17, 2019

For Migraine Prevention "I have been on Aimovig for 4 months now, taking the 140 mg dosage. The migraines have just now stopped completely. I went from having 14-19 migraines a month to having only one. Although Aimovig has worked greatly for the migraines, I’ve noticed that many side effects came into action. I’m constantly fatigued to the point it’s hard to get out of bed. Daily routines are difficult to perform. My body aches all the time. I have gained 5 pounds so far. My brain feels foggy. I have a hard time concentrating. Also, I’ve been sleeping for 8-10 hours, and when I wake up, it feels like I haven’t slept enough. I don’t have constipation, but my body weakens every day. I’m not sure what I’m going to do just yet, but I’m definitely considering stopping the injections."

• Rin...
• Taken for 6 months to 1 year
• July 11, 2021

For Migraine Prevention "I should have read the reviews before I got suckered into taking this drug. I'm now on about month 9 of the drug. I started with 70 mg and then was increased to 140 mg. I've been having extreme dizziness/vertigo, terrible constipation, and a distended belly (it feels like food is just sitting at the top of my stomach for weeks on end!), overall lack of energy, confusion, and odd pressure in the side of my head where I used to get migraines. I am going to stop this drug right away. It has cut down my migraines but at the cost of my overall health."