Denosumab and Headaches: What Users Say (Page 2)

• Anonymous
• Taken for 1 to 2 years
• November 1, 2022

For Osteoporosis "I have had three doses of Prolia. Initially, I was skeptical, but the nurse assured me that she gave lots of these injections to patients and sure most people were okay. She then went on to say, sure, the common pain medications gave side effects, so you will be fine. I realize she thought she had my best interests at heart. But with hindsight, she probably didn't know the full extent of this very dangerous drug, as I sure doctors also are not well informed either. After the second injection, I had really bad headaches. Since the third one, my neck, shoulders, and arms are very painful. My hands and arms have muscle weakness. Despite the fear of stopping it and breaking bones, I won't get another injection. Shame on this pharma company for ruining so many lives worldwide."

• Joa...
• May 3, 2021

For Osteoporosis "After a severely painful experience with a Reclast infusion (which are once per year), I was put on Prolia injections every six months. After a yearly infusion of Reclast and two 6-month intervals of Prolia, I have pain in my joints, muscles, groin, tendonitis in my Achilles tendons and thumb, headaches, nausea, confusion, weakness, fatigue, at least 40 pounds of weight gain, and severe back and hip pain. Before, I was on the go all the time, walking, exercising, and busy constantly, now I don't feel like doing anything because I never feel good and hurt all the time. Needless to say, I canceled my next injection and will take nothing for the osteoporosis. Even though I have a pretty good chance, even more so now, of having a fracture since I took the injections. Can you believe this? When you stop taking Prolia, you are more at risk than you were before you took it! Thanks to all the doctors that only think of how much money they can make off of someone instead of thinking of their health."

• Liz...
• Taken for less than 1 month
• June 5, 2022

For Osteoporosis "After one injection of Prolia, I began experiencing severe muscle and bone pain. My joints also ache horribly. Then the headaches began. It took me a week of this pain to make the connection. THIS DRUG IS AWFUL! I will refuse to continue with this drug. At least broken bones will heal and not be nearly as painful. I urge the FDA to re-examine this stuff. The side effects are not worth it. Think twice before agreeing to start Prolia."

• Joe...
• Taken for 6 months to 1 year
• July 10, 2019

For Osteoporosis "I am female, 80 years old. I just had my second shot two days ago. I felt a little dizzy and weak this morning, with a slight headache. Not sure this is from the Prolia. I have no other symptoms, so I plan to continue taking the shots, hoping my bones will get stronger."

• No ...
• Taken for 1 to 6 months
• May 4, 2022

For Osteoporosis "I had my first shot of Prolia in Feb 2022. No immediate observations. However, within 3 or 4 weeks, hair started falling out in handfuls, noticing joint aches and mild headaches, lasting days. I have lost half of my hair volume, and I had thin hair to begin with. When I researched Prolia since the hair loss, it said hair loss was reported 'after' the trial. I was told, literally, no side effects from my doctor. It has been around for years and is very safe. Now I read these responses. My fault, I never researched this in advance and trusted my doctor. I will not take any more pharmaceutical options. Load myself with calcium (diet and vitamins) and go back to nature. I knew better. No more for me!"

• Dor...
• Taken for 6 months to 1 year
• February 21, 2022

For Osteoporosis "Purely awful! This drug should be taken off the market immediately! After one shot, I suffered severe pain in arms, legs, and shoulders. Pretty much all over my body, headaches, muscle aches. To a point, I could not sleep. I wish I had never got this. My doctor has no answer for this pain. I will NOT get another injection of Prolia. After reading all the adverse side effects, I can't believe it is still being prescribed."

• Suf...
• Taken for 1 to 6 months
• August 1, 2021

For Osteoporosis "The day after having the Prolia injection, I developed a 3-day headache, followed by chronic fatigue and vertigo. A week later, all my joints-neck, shoulders, elbows, wrists, hips, knees, and ankles-all started cracking. In the third week, I developed sciatica on my right side. I was unable to sit, I could only stand, walk, or lay flat. Sitting was unbearably painful. I have been medicated with Tramadol for pain. I have tried acupuncture, therapeutic massage, and hot mineral springs. Nothing has helped. I take natural vitamin supplements and calcium, nothing helps. I have read that Prolia weakens the immune system, so there is no way I would ever have the Covid vaccine in my situation. My body is very compromised. I would caution anyone considering Prolia. I had no ill health symptoms before I had this, and now I’m incapacitated."

• dep...
• May 17, 2015

For Osteoporosis "I just got my 3rd shot. I feel miserable. Back, arm, legs pain, headaches, weight gain, along with other side effects. I WILL STOP this Prolia treatment."

• Nic...
• March 8, 2016

For Osteoporosis "Headaches, lower back pain, visual problems, increased reflux, foot swelling, fatigue"

• Muc...
• Taken for 1 to 2 years
• July 4, 2019

For Osteoporosis "I took Prolia 4 times now. The first two no problem. The second two I had mild fever, dry cough, headache, nausea, dry heaves, just plain flu-like symptoms. Never. Again!!"

• Maj...
• August 29, 2019

For Osteoporosis "Pain, tooth problems, jaw pain, headaches after just one shot. I refuse another."