Denosumab and Bone Pain: What Users Say (Page 2)

• San...
• Taken for 5 to 10 years
• November 12, 2021

For Osteoporosis "I have been having Prolia injections for the past 5 years. I suffer most of the common side effects related to this drug, particularly severe back pain and bone pain, which seems to get worse the longer I am on it. It is particularly bad at night, so it affects my sleep. On the plus side, a recent bone density scan showed my T score had gone down from -3.1 to -1.8, putting me from the osteoporosis diagnosis to osteopenia. Has it been worthwhile? I don't know. What frightens me is the warning that it should not be stopped, as the spine is likely to fracture within 7 months. None of this was explained to me before I started having the injections. It does work, but at a high price."

• She...
• Taken for 1 to 6 months
• August 2, 2021

For Osteoporosis "Horrible drug. I felt my doctor was overbearing and wanted me to take Prolia. I have been miserable ever since. Bone, joint, muscle pain, difficulty walking. Extreme fatigue. Some days I feel like I am actually dying, nausea, bowel problems. My quality of life is definitely worse. Never again. Only took one injection."

• Wee...
• June 20, 2018

For Osteolytic Bone Metastases of Solid Tumors "Terrible side effects: bone pain, weakness, groin, and hip pain."