Ampyra for Multiple Sclerosis User Reviews (Page 3)

• Octavia
• Taken for 5 to 10 years
• November 28, 2019

"I have been on 4 amino pyridine for Nine years. It is the very old generic version before the original version and the new generic. It says on the ampyra literature to not take ampyra if you are taking 4AP. 4AP was approved years ago for spinal cord injuries and used off label for MS. Company went back for FDA for approval for MS and got a new patent. I get 4AP compounded for $104 for 180 pills for 3months’ supply. It has continued to help tremendously. Check out 4AP!"

• Mo Li...
• Taken for 6 months to 1 year
• October 31, 2017

"Hello. It's been 6 months since I've started taking Ampyra. It is still a miracle drug, and I would recommend it to anyone with MS. The only side effect I've had was slight back pain. That side effect only lasted about 2 weeks. I've noticed a difference in my walking immediately, and still stand by this med. I do notice if I forget to take a pill, then I have to wait to get back on schedule. that's the only complaint."

• Miracle...
• Taken for less than 1 month
• July 13, 2022

"My day is great & I must share this news with you guys in hopes that you to may have these awesome results as well, this is day 5 On Ampyra omg omg omg this is really the miracle pill for me just last week I had to use my walker just to get to and from the car. After today I'm only hopeful that I'll keep improving I hadn't used my walker for about 2 days now. I definitely noticed me getting up and down the steps a lot easier ,I couldn't lift my right leg . Since starting this medication I am definitely improving this is how I'm calculating how well it works for me, my toes in right foot are dead I can't wiggle them spread them etc after day 5 on Ampyra I finally was finally able to spread them, they say give it 4-6 weeks I can only remain optimistic that I'll continue to get better I am not exaggerating, I'm in complete disbelief at this medication it is truly amazing! Ampyra makers your the absolute Best ❣️"

• DOROTHY
• Taken for 10 years or more
• February 2, 2023

"I have had multiple sclerosis since 1994 when I was 37 years old. I am now 65 years old. I have used Ampyra since 2010, and now I use its generic form, Dalfampridine. If I miss a dose, I notice a significant difference as I become very weak. Without Ampyra, I would not be able to stand up and use a walker to go to the bathroom. Although I have gradually worsened over the past twelve years and use a wheelchair sometimes, I still take Ampyra as it provides good benefits. I will continue to stand and walk for as long as I can. I have experienced no side effects from Ampyra."

• great...
• Taken for 5 to 10 years
• December 7, 2017

"I have been taking Ampyra for 5 or 6 years. It has greatly improved my walking and my cognitive ability. It helps me to continue to be a productive person. I would be afraid of a generic. It is a serious medication I feel I would be taking a chance on my health and abilities. I have talked with my Doctor and he agrees."

• Mark
• June 15, 2019

"I started on Ampyra 7 weeks ago and have not noticed much difference. I am 59 with RRMS (relapsing-remitting MS) . It is hard to rate because I am not sure. I am leery about stopping because I had high hope's for this drug. I may stop for a couple of weeks then try it again. It seems like it helps many so I am hoping this will be me the second go around. Peace and happiness"

• Deena
• Taken for less than 1 month
• January 20, 2022

"I was diagnosed with MS in 2018. Fatigue, balance, and heavy legs were my major issue. Started Ampyra 2 weeks ago and its AMAZING the difference! I have more energy, my balance and walking distance has improved significantly. I experienced dizziness the first week but went away week 2. Highly recommended!!"

• Vynde...
• Taken for less than 1 month
• November 10, 2016

"I am very disappointed. I had tried Ampyra about 3 years ago and found no effects at all. At the urging of my neurologist, I tried again this year. For symptoms, I am taking Provigil & Baclofen. I take Copaxone as a disease modifying agent. Previous to restarting Ampyra, I was doing 1/4 mile on a treadmill 3 times per day plus one mile on the elliptical at night. My legs felt very heavy on the first day of Ampyra. I might have done just one rep on the treadmill. I thought possibly that my body was adjusting to the medicine, so I gave it about one week. I found it difficult to do my daily treadmill. Legs also were throbbing slightly at the end of the day. This medicine had a negative effect. I am out a $300 copay."

• Leap
• Taken for 1 to 6 months
• September 9, 2021

"I've had "mild" MS (only 2 "episodes") for 40 yrs. with mild symptoms despite my brain looking like Swiss cheese, and lesions continuing down my spinal cord. 4 years ago I started loosing power. I could walk around the house but I was slow & wobbly. For safety I used a rollator whenever I left the house. My right arm & leg were much diminished. I've been on dalfampridine 10mg, 2X p/day, for 5 weeks now, and becoming disillusioned. I had no side effects, but also, really no improvement. I suppose it's possible that my condition is worsening faster than the Ampyra can improve me, or maybe I'm just one of the unlucky ones for whom it will not work."

• Heather
• Taken for less than 1 month
• August 21, 2023

"I was diagnosed with PPMS in 2016 when I was working full-time. I'm now on FTD and getting weaker each year. Over the past year, I've been getting noticeably worse, depending on my power chair more and more. My MS Clinic suggested I consider taking Ampyra a while ago, and as it was getting nearly impossible to stand for more than 10 seconds, I decided to give it a try. It's definitely helping my mobility. After 3 days, I noticed an improvement. I did have a bit of nausea the first 3 days, but no more. I have to take fiber daily to avoid constipation, but presently I have no symptoms and am using my power chair less and my walker more. I have noticed a bit more mobility in my core as well and can clean places I haven't been able to reach for quite a while. I overdid it a few days ago by cleaning both bathtubs, and I seemed to revert. So I am taking it easier now. I'm on day 13 of 10 mg twice daily. I hope my mobility will continue to improve as I concentrate on walking more."

• Super...
• Taken for less than 1 month
• June 13, 2022

"June 2022,after breaking my leg, then Covid so no physio. I had drop foot and walking became hard. I was initially put on Fampyra (France) before about 5 years ago, but took myself off it as I didn’t need it as was walking well anyway. After my fractured leg and realising I was loosing the ability to walk and flex my knee I thought now maybe the time to try again. Contacted my consultant and he prescribed for me. Wow, noticed a difference after 3 hours! Been on it now 10 days, 10mg x2 daily and my drop foot seems to be easing and my walking action seems more normal. It is hot at the moment which of course won’t help but I can really see the difference after my dose seems to wear off and I am due to take the next dose in a couple of hours. Easy to use, no side effects. I feel hopeful again and can see possibilities after only 10days. My physio can see an improvement the minute I walk towards her, next thing is to get in the pool, with care of course."

• RUTHIE
• Taken for 1 to 6 months
• June 11, 2022

"I have had MS since 1979 and have been on an injectable DMT since 2004. Before that, I took massive doses of Imuran. My neurologist started me on Ampyra to help the slight stumbling that had started bothering me. In 5 weeks I asked him if I could stop. The very subtle good it did to start, slowly has been making my walking and balance worse than it has been in the decades I have had MS. I'm hoping PT may help some but I don't think I have felt this disheartened over the course of the last 43 yrs."

• ciccioi
• July 15, 2014

"I love Ampyra. I have been taking Ampyra for 3 months I feel much stronger I'm back going to the gym every morning for 2 hours."

• milit...
• Taken for 1 to 2 years
• October 3, 2013

"I feel that my legs are a bit stronger on this medication. It's great to feel a bit more confident when walking."

• Anonymous
• April 14, 2011

"I've taken Ampyra for seven months. I went from wheel chair to walker to cane in two months. Now I only use the cane when going out. It has done wonderful things for me."

• Liza...
• Taken for 2 to 5 years
• December 26, 2014

"My experience with Ampyra is... really great. I love the medicine because even when I don't want to walk I walk fast."

• Anonymous
• April 1, 2012

"Caused constipation, but the medicine has definitely increased the quality of life. I have been on it for 6 months and it is as good today as that first couple weeks."

• Anonymous
• June 14, 2012

"This medicine leaves me feeling exceptionally dizzy and off balance. After seven months it is doing nothing to help me walk."

• carla...
• Taken for 1 to 2 years
• February 26, 2015

"I've been on Amprya almost a year and still able to walk a short distance without assistance. Maybe 3 steps but its better then not moving."

• carlt...
• May 20, 2011

"I love Ampyra. It's such a shame it is expensive to get. I can now make it to the bathroom in time. HUGE improvement with that alone. But I can walk upstairs without lifting my legs with my hands."

• lyste
• July 20, 2010

"I've only been taking Ampyra for 2 months, but all I have noticed is heavier legs and falling much more. I use my walker more than my cane."

• Anonymous
• Taken for 1 to 2 years
• July 23, 2012

"On Ampyra for over a year with no real benefit."

• Steph...
• Taken for 6 months to 1 year
• June 3, 2020

"I was excited to start Amprya..was hopeful..but it did not help me whatsoever.;("

• Anonymous
• August 20, 2018

"My daughter has had MS since 2002, she was 20 when diagnosed.... ampyra has helped a lot but now she has started having seizures. This is a side effect. I'm not sure this caused them but be careful"

• squat...
• Taken for less than 1 month
• February 12, 2023

"Within 2 hours of taking the first oral tablet, I felt the effects it definitely works. Not a cure but definitely is a strong help."