Corticotropin User Reviews & Ratings

• Hon...
• Taken for 1 to 2 years
• September 20, 2018

Corticotropin for Sarcoidosis "Been taking Acthar for 1 year. I wasn’t able to be up before I started taking Acthar. In 3 months, I was able to stay up almost all day. In 3 more months, I’m able to be up all day. Do things around the house. Now I go to the grocery store and church. I still don’t have a lot of energy. But have more energy, less pain than I had before."

• Clu...
• Taken for 6 months to 1 year
• September 25, 2014

Corticotropin for Rheumatoid Arthritis "I have been on Acthar for about a year. It has been the first medicine since my diagnosis (12 years ago) that has helped me. My only concern is the long-term side effects, which are not known. It is expensive, but I have not had to pay anything out of pocket with the help from the Chronic Disease Fund and my insurance."

• App...
• Taken for 1 to 2 years
• June 1, 2019

Corticotropin for Sarcoidosis "This medication has given me a better quality of life. Before, I was unable to do simple things like walking, talking, or even maintaining my home. Because of this medication, I feel as though I have been given a second chance in life. I have my off days, but they are much fewer than before. Been on medication now for 2 years."

• Chr...
• February 23, 2012

Corticotropin for Multiple Sclerosis "I've used this twice for a flare-up as it was thought that I was allergic to steroids. This medication is a gel, injected. It's about a 2-week course (2 vials) and slowly stimulates your own steroid production to help with flare-ups. My own experience is that I felt very ill during the first week. As steroid production amps up, you get the typical steroid feelings. It is very expensive, but my insurance paid for this."

• Ann...
• July 19, 2009

Corticotropin for Multiple Sclerosis "I have done the once-a-day application for five days straight on the Acthar gel, followed a week later by another five-day dose. Stings like all get up going in, kind of reminds me of peanut butter shots. Felt much better after the first treatment, again after the second. After a month or so later, MS symptoms were back. I have had a headache beyond the pain of migraines (I get those too) and I get medicines for it, but I can't take that unless someone can watch my kids as most of them make me so sleepy. Tried Provigil...got hallucinations...about to start Nuvigil, hope that works a bit better. I take Betaseron. Starting pulse therapy - first three days of the month take Acthar, keeping all the rest of the medicines the same."

• kil...
• May 25, 2013

Corticotropin for Multiple Sclerosis "I am allergic to steroids, and we used this once in my first flare-up after a year of relapse. The initial results were great, but the episode returned in less than two weeks after the treatment ended. The worst side effect was a huge increase in blood sugar. The cost of the medication is outrageous, even with great insurance."

• Anonymous
• January 10, 2018

Corticotropin for Multiple Sclerosis "This medication works great for me, it knocks out my optic neuritis quickly. It takes about a week to calm down my other relapse symptoms. It has allowed me to work during my relapses. The drug company paid my copay, so it cost me nothing."

• Gig...
• Taken for 1 to 6 months
• May 19, 2018

Corticotropin for Multiple Sclerosis "This is the 2nd time I have had to do a dose of Acthar, and I would have to say it is so much better than the Medrol IV that I was doing. I was allergic to the other, and having to sit for an hour and a half for the infusion, which was a pain. This is simple, and I can do it myself. It helps with my relapse, and my insurance covers the cost! (big help)"

• Anonymous
• Taken for less than 1 month
• October 3, 2015

Corticotropin for Multiple Sclerosis "I've been on Acthar Gel injections now for 2 days and have 3 more to go. So far, I have noticed no difference in anything. My balance is horrible still, I'm dizzy, electric shock down my neck, back and arms, and eyes messing up, also still having bladder issues. I've been on IV steroids, which did little to help, 2 rounds of steroids in pill form, which finally got my right hand feeling somewhat decent. So, this is my 4th try to get back to feeling decent since early to mid-August. Really hoping this does something and it's not permanent damage. I pray to God my kids never get this!"

• Kil...
• Taken for 1 to 2 years
• February 26, 2022

Corticotropin for Allergies "Given this for nephrotic syndrome. Bloating to extreme edema. Allergic reaction? Prescribed as prednisone replacement. Daily dose to begin therapy, then twice a week. Doctor did therapy in reverse. Complete immune loss. After administering therapy for over a year, my wife died. It was downhill all the way."

• Tla...
• November 18, 2016

Corticotropin for Polymyositis/Dermatomyositis "I'm a 36-year-old woman who has polymyositis. It's been a struggle for the last 7 years, ups and downs. I have relapsed very often. The Acthar treatment seems to work, I guess, once it gets into your system. Side effects are kind of unbearable. I live every day grateful but hoping it will go into remission. But from what my doctor says, the Acthar treatment helps get my CPK levels under control."

• Che...
• January 14, 2014

For Multiple Sclerosis "This is my first experience with Acthar Gel for an exacerbation of Multiple Sclerosis (I am allergic to steroids), and I will rate my experience as a 10! I feel like 'myself'... which had truly been long forgotten. This is the first time in months I am not experiencing pain (excruciating lower back pain from an unsteady gait and muscle spasms in my lower back)... the 'cheerleader kicks' which randomly occur during all hours of the night are GONE... as are the creeping crawling sensations that drive me nuts. I did have to deal with incredible 'munchies,' but it's a small price to pay for how great I feel. My insurance covered the entire cost of the medicine, with only a hundred dollar copay. I am MYSELF. FEELS AMAZING!"

• Bel...
• Taken for 6 months to 1 year
• September 30, 2016

For Focal Segmental Glomerulosclerosis "I've been using this medicine for about 7 months now for my kidney disease. Before this medicine, I was taking prednisone, and if you don't know... prednisone is Satan's pills!! They are absolutely terrible and have terrible side effects. So my kidney specialist wanted me to start taking this instead because it's better, and I have to agree 100%. I don't have any bad side effects like I did with the prednisone."

• Kat...
• Taken for less than 1 month
• December 24, 2020

Corticotropin for Multiple Sclerosis "This product costs a fortune and did not work for me. I’ve had double vision for 11 weeks due to an MS attack. I had so much faith in it from what my doctor told me it would “fix” all of me. It did not. Definitely would not recommend to any MS patients."

• Sah...
• August 13, 2017

Corticotropin for Juvenile Rheumatoid Arthritis "Been on this medicine for 12 weeks, and at first, it was great, and then here come the side effects. Raised blood sugar, increase in sweating, bruising, skin discoloration at the injection site, itching at the injection site, abdominal weight gain. Then, of course, the price of the medication. Insurance and the Acthar Foundation covered the cost, but still, yikes."

• Jul...
• Taken for less than 1 month
• March 22, 2021

Corticotropin for Multiple Sclerosis "After five injections, I developed thrush. I’m wheezing now, possibly due to pneumonia or an upper respiratory infection. I didn’t have any of these symptoms prior to this drug. I will discontinue immediately. The medicine stopped pain and stiffness from MS, but it’s not worth the side effects for me."

• Anonymous
• Taken for 1 to 2 years
• March 21, 2018

For Rheumatoid Arthritis "My mother has RA for the past 30+ years; she went on Acthar after she experienced a severe flare-up. This medication is like a miracle; she has become so active and energetic since being on the medication. It seems to put her RA at bay. Recently, she fell and was hospitalized. She did not have this medication for a week; she looked like she was at death's door. We brought the Acthar from home so the hospital could administer it; she was finally back. I would recommend this medication based on what I have witnessed with my mother's health and the benefits it gives her to have a quality of life like she has not had in some time."

• Cap...
• April 30, 2015

For Multiple Sclerosis "Outstanding! Back on my feet without the steroid side effects. Much more effective than steroids."

• JD5...
• Taken for 1 to 6 months
• April 25, 2014

For Focal Segmental Glomerulosclerosis "After 3 months, my proteinuria has majorly decreased. I have had no side effects and have been able to lose the 20 lbs I gained with prednisone."

• Dr ...
• Taken for 6 months to 1 year
• December 20, 2024

For Keratitis "An excellent choice, gaining more popularity in ocular diseases. Insomnia seems to be the most common side effect. No elevated IOP concerns."

• Ano...
• Taken for 1 to 6 months
• November 14, 2020

Corticotropin for Polymyositis/Dermatomyositis "I tried the Acthar gel injections for dermatomyositis, and it did nothing for me. I did have a mild rash side effect on and around the injection sites, but other than that, I felt no difference."