User Reviews for Corticotropin to treat Multiple Sclerosis
Brand names: Acthar, ACTH, H.P. Acthar Gel
Corticotropin has an average rating of 5.5 out of 10 from a total of 10 ratings for the treatment of Multiple Sclerosis. 40% of reviewers reported a positive experience, while 40% reported a negative experience.
Reviews for Corticotropin
H.P. Acthar Gel (corticotropin) "I have done the once a day application for five days straight on the Acthar gel, followed a week later by another five day dose. Stings like all get up going in, kind of reminds me of peanut butter shots. Felt much better after the first treatment, again after the second. After a month or so later, MS symptons were back. I have had a headache beyond the pain of migraines (I get those too) and I get medicines for it, but I can't take that unless someone can watch my kids as most of them make me so sleepy. Tried Provigil...got hallucinations...about to start Nuvigil, hope that works a bit better. I take Betaseron. Starting pulse therapy - first three days of month take Acthar keeping all the rest of the medicines the same."
H.P. Acthar Gel (corticotropin) "I've been on acthar gel injections now for 2 days and have 3 more to go. So far I have noticed no difference in anything. My balance is horrible still, I'm dizzy, electric shock down my neck back and arms, and eyes messing up, also still having bladder issues. I've been on iv steroids which did little to help, 2 rounds of steroids in the pill form which finally got my right hand feeling somewhat decent, so this is my 4th try to get back to feeling decent since early to mid August. Really hoping this does something and it's not permanent damage. I pray to god my kids never get this!"
Acthar (corticotropin) "I've used this twice for a flare up as it was thought that I was allergic to steroids. This medication is a gel, injected. Its about a 2 week course (2 vials) and slowly stimulates your own steroids production to help with flare ups. My own experience is that I felt very ill during the first week, as steroid production amps up, you get the typical steroid feelings. it is very expensive, but my insurance paid for this. "
Acthar (corticotropin) "This medication works great for me it knocks out my optic neuritis quickly. It takes about a week to calm down my other relapse symptoms. It has allowed me to work during my relapses. The drug company paid my co pay so it cost me nothing."
Acthar (corticotropin) "I am allergic to steroids and we used this once in my first flare up after a year of relapse. The initial results were great, but the episode returned in less than two weeks after the treatment ended. Worse side effect was a huge increase in blood sugar. The cost of the medication is outrageous even with great insurance. "
H.P. Acthar Gel (corticotropin) "This is the 2nd time I have had to do a dose of Acthar and I would have to say it is so much better than the medrol IV that I was doing. I was allergic to the other and having to sit for a hr and a half for the infusion which was a pain. This is simple and I can do it myself. It helps with my relapse and my insurance covers the cost! (big help)"
"This is my first experience with Acthar Gel for an exerbation of Multiple Sclerorsis (I am allergic to steroids) and I will rate my experience as a 10! I feel like " myself"....which had truly been long forgotten. This is the first time in months I am not experiencing pain (excruciating lower back pain from an unsteady gait and muscle spasms in my lower back) ...the "cheerleader kicks" which randomly occur during all hours of the night are GONE...as are the creeping crawling sensations that drive me nuts. I did have to deal with incredible "munchies", but its a small price to pay for how great I feel. My insurance covered the entire cost of the medicine, with only a hundred dollar co pay. I am MYSELF. FEELS AMAZING!"
Acthar (corticotropin) "After five injections, I developed thrush. I’m wheezing now, possibly due to pneumonia or upper respiratory infection. I didn’t have any of these symptoms prior to this drug. I will discontinue immediately. Medicine stopped pain and stiffness from ms, but it’s not worth side effects for me."
Acthar (corticotropin) "This product costs a fortune and did not work for me. I’ve had double vision for 11 weeks due to an ms attack . I had so much faith in it from what my doctor told me it would “fix” all of me. It did not. Definitely would not recommend to any ms patients."
Acthar (corticotropin) "Great experience!!"
"Outstanding! Back on my feet without the steroid side effects-Much more effective then steroids."
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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