User Reviews for Corticotropin
Brand names: Acthar, ACTH, H.P. Acthar Gel
Corticotropin has an average rating of 6.4 out of 10 from a total of 23 ratings on Drugs.com. 55% of reviewers reported a positive experience, while 35% reported a negative experience.
|Multiple Sclerosis||11 reviews||99 medications|
|Sarcoidosis||3 reviews||49 medications|
|Focal Segmental Glomerulosclerosis Off-label||2 reviews||3 medications|
|Rheumatoid Arthritis||2 reviews||364 medications|
|Polymyositis/Dermatomyositis||2 reviews||11 medications|
|Allergies||2 reviews||56 medications|
|Juvenile Rheumatoid Arthritis||1 reviews||167 medications|
|Summary of Corticotropin reviews||6.4||23 reviews|
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published.
Reviews for Corticotropin
Acthar (corticotropin) for Sarcoidosis "Been taking Acthar for 1 year. I wasn’t able to be up before I started taking acthar. In 3 months I was able to stay up almost all day. In 3 more months I’m able to be up all day. Do things around the house. Now I go to grocery store and church. I still don’t have a lot of energy. But have more energy less pain than had before."
Acthar (corticotropin) for Sarcoidosis "This medication has given me a better quality of life. Before I was unable to do simple things like walking, talking, or even maintain my home. Because of this medication I feel as though I have been given a second chance in life. I have my off days but, they are much more fewer than before. Been on medication now for 2 years."
H.P. Acthar Gel (corticotropin) for Multiple Sclerosis "I have done the once a day application for five days straight on the Acthar gel, followed a week later by another five day dose. Stings like all get up going in, kind of reminds me of peanut butter shots. Felt much better after the first treatment, again after the second. After a month or so later, MS symptons were back. I have had a headache beyond the pain of migraines (I get those too) and I get medicines for it, but I can't take that unless someone can watch my kids as most of them make me so sleepy. Tried Provigil...got hallucinations...about to start Nuvigil, hope that works a bit better. I take Betaseron. Starting pulse therapy - first three days of month take Acthar keeping all the rest of the medicines the same."
Acthar (corticotropin) for Rheumatoid Arthritis "I have been on Acthar for about a year. It has been the first medicine since my diagnosis (12 years ago) that has helped me. My only concern is the long term side effects which are not known. It is expensive but I have not had to pay anything out of pocket with the help from the Chronic Disease Fund and my insurance."
H.P. Acthar Gel (corticotropin) for Multiple Sclerosis "I've been on acthar gel injections now for 2 days and have 3 more to go. So far I have noticed no difference in anything. My balance is horrible still, I'm dizzy, electric shock down my neck back and arms, and eyes messing up, also still having bladder issues. I've been on iv steroids which did little to help, 2 rounds of steroids in the pill form which finally got my right hand feeling somewhat decent, so this is my 4th try to get back to feeling decent since early to mid August. Really hoping this does something and it's not permanent damage. I pray to god my kids never get this!"
Acthar (corticotropin) for Multiple Sclerosis "I've used this twice for a flare up as it was thought that I was allergic to steroids. This medication is a gel, injected. Its about a 2 week course (2 vials) and slowly stimulates your own steroids production to help with flare ups. My own experience is that I felt very ill during the first week, as steroid production amps up, you get the typical steroid feelings. it is very expensive, but my insurance paid for this. "
Acthar (corticotropin) for Multiple Sclerosis "This medication works great for me it knocks out my optic neuritis quickly. It takes about a week to calm down my other relapse symptoms. It has allowed me to work during my relapses. The drug company paid my co pay so it cost me nothing."
Acthar (corticotropin) for Multiple Sclerosis "I am allergic to steroids and we used this once in my first flare up after a year of relapse. The initial results were great, but the episode returned in less than two weeks after the treatment ended. Worse side effect was a huge increase in blood sugar. The cost of the medication is outrageous even with great insurance. "
H.P. Acthar Gel (corticotropin) for Multiple Sclerosis "This is the 2nd time I have had to do a dose of Acthar and I would have to say it is so much better than the medrol IV that I was doing. I was allergic to the other and having to sit for a hr and a half for the infusion which was a pain. This is simple and I can do it myself. It helps with my relapse and my insurance covers the cost! (big help)"
H.P. Acthar Gel (corticotropin) for Polymyositis/Dermatomyositis "Im 36yr old woman who has polymyostsis it been a struggle for the last 7 years ups and downs. I have relapsed very often. The acthar treatment seems to work I guess once it gets to your system. Side effects are kind of unbearable. I live everyday grateful but hoping it will go into remission. But from what my doctor says the acthar treatment help get my CPK levels under control."
For Multiple Sclerosis "This is my first experience with Acthar Gel for an exerbation of Multiple Sclerorsis (I am allergic to steroids) and I will rate my experience as a 10! I feel like " myself"....which had truly been long forgotten. This is the first time in months I am not experiencing pain (excruciating lower back pain from an unsteady gait and muscle spasms in my lower back) ...the "cheerleader kicks" which randomly occur during all hours of the night are GONE...as are the creeping crawling sensations that drive me nuts. I did have to deal with incredible "munchies", but its a small price to pay for how great I feel. My insurance covered the entire cost of the medicine, with only a hundred dollar co pay. I am MYSELF. FEELS AMAZING!"
Acthar (corticotropin) for Multiple Sclerosis "After five injections, I developed thrush. I’m wheezing now, possibly due to pneumonia or upper respiratory infection. I didn’t have any of these symptoms prior to this drug. I will discontinue immediately. Medicine stopped pain and stiffness from ms, but it’s not worth side effects for me."
Acthar (corticotropin) for Multiple Sclerosis "This product costs a fortune and did not work for me. I’ve had double vision for 11 weeks due to an ms attack . I had so much faith in it from what my doctor told me it would “fix” all of me. It did not. Definitely would not recommend to any ms patients."
For Focal Segmental Glomerulosclerosis "I've been using this medicine for about 7 months now for my kidney disease. Before this medicine I was taking prednisone , and if you don't know....prednisone is satans pills!! They are absolutely terrible and have terrible side effects. So my kidney specialist wanted me to start taking this instead because it's better and I have to agree 100%. I don't have any bad side effects like I did with the prednisone."
Acthar (corticotropin) for Juvenile Rheumatoid Arthritis "Been on this medicine for 12 weeks and at first it was great and then here comes the side effects. Raised blood sugar, increase in sweating, bruising, skin discoloration where the injection site, itching at injection site, abdominal weight gain. Then of course the price of the medication. Insurance and the Achtar foundation covered the cost but still yikes."
Acthar (corticotropin) for Allergies "Given this for Nephrotic syndrome Bloating to extreme edema. Allergic reaction? Prescribed as prednisone replacement. Daily dose to begin therapy, then twice a week. Doctor did therapy in reverse. Complete immune loss. After administering therapy for over a year my wife died. It was downhill all the way."
For Rheumatoid Arthritis "My mother has RA for the past 30+ years; she went on Acthar after she experienced a severe flare up. This medication is like a miracle, she has become so active and energetic since being on the medication. It seems to put her RA at bay. Recently she fell and was hospitalized, she did not have this medication for a week, she looked she was at death's door; we brought the Acthar from home so the the hospital could administer it, she was finally back. I would recommend this medication, based on what I have witnessed with my mother's health and the benefits it gives her to have a quality of life like she has not had in some time."
Acthar (corticotropin) for Multiple Sclerosis "Great experience!!"
Acthar (corticotropin) for Sarcoidosis "amazing medication"
For Multiple Sclerosis "Outstanding! Back on my feet without the steroid side effects-Much more effective then steroids."
Acthar (corticotropin) for Allergies "very good"
For Focal Segmental Glomerulosclerosis "After 3 months my proteinuria has majorly decreased. I have had no side effects and have been able to lose the 20 lbs I gained with prednisone."
Acthar (corticotropin) for Polymyositis/Dermatomyositis "I tried the achtar gel injections for Dermatomyositis and it did nothing for me. I did have a mild rash side effect on and around the injection sites but other than that I felt no difference."
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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