User Reviews for Kapvay
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Kapvay.
Reviews for Kapvay to treat ADHD
"My son has used various stimulants for 5 yrs. Still struggling because of impulsivity & super high metabolism, the docs wanted to add non-stimulants. We started w/ Intuiv, which dropped his bp way too low (75/43) so stopped after 2 wks. Tried Clonidine IR and it worked GREAT the 1st 2 days, then fine (not great, just fine). The doc changed to Kapvay for long-acting effects, but we stopped after 2 wks because he got awful insomnia (took 2-3 hrs to fall asleep instead of his usual 15 mins). Last night we went back to Clonidine IR - he fell asleep quickly and slept great! I give Kapvay a 2 because it decreased his impulsivity a bit, but the insomnia was awful, he got more aggressive/emotional, and really affected him negatively."
MaryChi (taken for less than 1 month) January 6, 2017
7 users found this comment helpful.
"My granddaughter started Kapvay and she is almost 10 years old. She has been diagnosed with ADD. She was using Intuniv, but 1 mg not enough for attention and 2 mg made her so so tired. Started Kapvay and WOW…cannot sleep….huge blister on her lip….legs hurt so bad. She is almost 10 but small, she weighs 47 pounds (she was 2.8 lb preemie-11 weeks early). Have to stop medicine. I also read that it was not a great choice for ADD alone."
susanjane2222 (taken for less than 1 month) October 11, 2016
10 users found this comment helpful.
"My son was diagnosed with ADHD in 1st grade. He's now in 6th. We've tried so many meds...Concerta, Intuniv, Focalic, Metasomethingoranother, and more. The stimulants caused massive mood swings. And the other stuff just didn't work well either. He's now on Kapvay, the generic form of it, and so far, so good. He takes .1 mg in the morning and we just increased evening to .2mg. The only trouble we've had is sleep. He falls asleep but wakes up by 4am. And then, doesn't fall back to sleep until 6 but has to be awake by 7:30. So, right now, he's texting me to bring him coffee. Not sure what to do about the lack of sleep but I'm really happy with how he's responding otherwise. The mood swings have lessened. Now they just seem tween-typical."
Melbs1969 February 26, 2016
40 users found this comment helpful.
"Depression for fifteen months hinged on the fact that my inattention was so bad. Every day it was constantly "OH MY GOD CAN'T DO ANYTHING." I had so many motivations and ambitions for projects and was so overwhelmed by ADHD that I could not do any of it. All I can say is that I am really disappointed with Strattera... I fought and fought to get a stimulant to no avail and they finally gave me Kapvay for bedtime. It's been two weeks and my depression has finally lifted because my inattention and distraction is gone. They are symbiotic with each other. And now I can DO STUFF and not have to binge watch Impractical Jokers anymore. To ADHD I stand atop a tram in a superhero costume and say "SUCK IT!!!""
Emmie Rotherham (taken for less than 1 month) February 11, 2016
105 users found this comment helpful.
"My son is 6 years old and was diagnosed with ADHD, ODD, Aspergers syndrome, and possible bipolar disorder. We have tried so many medications, Ritalin, Adderall, Focalin XR, Risperadal, Seroquel, and regular Clonidine. He is now taking 300 mg of Trazadone which doesn't help, 15 mg of Abilify, and Kapvay. I've spaced the three medications out but he still wakes up at 9 am and goes to bed at 3 am. I am at a loss right now because the psychiatrist says he's limited as to what he can put him on but the Trazadone I swear seems to wire him up. He's wide awake as I am writing this post. The Kapvay does make him cranky and irritable during the afternoon, any advice please."
Amichellec33 June 29, 2015
20 users found this comment helpful.
"I'm a 44 year old female, was in a car accident. Placed on pain meds for the last year. Had two surgeries and now I ask Dr to help me get off pain meds. He prescribed me Kapvay 0.01 mg. It has been a God send. It allowed me to sleep and took edge off my withdrawals...thanks."
greatful February 27, 2013
59 users found this comment helpful.
"My 9 year old son has ADHD. Kapvay was the seventh medicine that we have tried to help him with impulsivity and concentration. He has been on this medicine for nearly one year. We switched to Focalin last month but the tics came back and the restlessness at night. His school performance was no better than before so we are back to Kapvay. Since the medicine must build up in the bloodstream to be highly effective, we are in the very sleepy stages but I know this will pass as soon as his body is accustomed to the medicine. I have learned my lesson. There is no stimulant that will help my son. Kapvay will help reduce the impulsivity but improvement to concentration must come from age and proper training."
Anonymous (taken for 1 to 2 years) May 15, 2012
157 users found this comment helpful.
"My 7 year old daughter has been on Concerta 18mg for a year. She started to tolerate that medicine, but I did not want to increase the dosage. My doctor recommend we add Kapvay to her current concerta dose. This has made all the difference. She is no longer bouncing off the walls, jumping on the couch, or leaving half way through a meal. She is engaged, focused and less moody. Her emotions are more regulated and we did not tell her teacher but she even commented on the change without us sharing the news. We are so happy, and this medicine is worth the time it takes to condition to the sleepiness that happens in the initial 2 weeks. Hope the changes stay."
Anonymous February 14, 2012
125 users found this comment helpful.
"My son has been on every medicine available for ADHD and it didn't work. I thought to myself one day how about giving him his night medicine during the day. I asked the doctor and he said if we were going to do that I prefer giving him Kapvay rather than the Catapres he's on so we did and I could not be more happier. On his color chart everyday he was bringing home green which is great, the past 3 days though in the afternoon they change it from green to a warning which is yellow so maybe I need to increase his afternoon pill just a little. Other then that Kapvay is great!"
adhd tired. January 26, 2012
61 users found this comment helpful.
"My 6 yo tried this after Intuniv failed. It made him constantly tired and irritable, and actually made his impulsiveness worse since he just seemed cranky and emotional all of the time. It also constipated him to the point that ended up with fissures. It never made a meaningful dent in his ability to concentrate or sit still, and he became more argumentative in school and less willing to comply. I've yet to meet anyone that these work for, but it sure would be nice if there were a non-stimulant that worked. We're on stimulants now and still haven't found a miracle there, either. I will say that it didn't affect his appetite, which was nice."
Anonymous January 20, 2012
50 users found this comment helpful.
"My daughter has tried several other stimulant medicines with the most horrible side effects. Kapvay was tried and very well appreciated in our home and at her school. The teachers were amazed at the change and the relief for myself was a God send. "
momofanangel January 1, 2012
67 users found this comment helpful.
"My 5 year old son was diagnosed with ADHD just yesterday, the Behavior Specialist said his was one of the worst cases that she had seen in a while, she had suggested putting him on a stimulant medication, I told her i would like to a non-stimulant medication first and she prescribed him Kapvay. My son took it for the first time last night before bed, he went right to sleep and when he woke up this morning he was the calmest most pleasant, helpful and nicest he had ever been in his life. I could not believe the overnight change. I'm so glad it worked so fast, he has not gotten in trouble once today which is a new record! His teachers are going to be thrilled on Monday! Thank you to the makers of Clonidine!"
VERYhappyMOM! April 30, 2011
158 users found this comment helpful.
"We have a 8 year old who we adopted from foster care last year. He was diagnosed with ADHD soon after. He was put on Concerta. We saw definite improvement. But early this year, he started exhibiting increased symptoms of ADHD. He could not fall asleep until late so we used Melatonin. His doctor started him on Kapvay about 5 weeks ago. We started seeing a great improvement the first week because he fell asleep without Melatonin and started getting 10 hours of sleep. The second week we added the morning dose. Mornings immediately became incredible. We no longer needed check lists for him. The teacher said he still needed better focus so he is now on .3mg. He is doing incredibly well. His doctor is going to ween him down on Concerta."
River143 April 18, 2011
83 users found this comment helpful.
"My 7 year old son has severe ADHD, ODD, and anxiety. We started him on Vyvanse 20mg, Depakote twice a day, and Kapvay .1 in the evening last week. We were worried because he talked SO much like he was on speed, and ran around the house looking for paper, books, pens to write with and never sat still but he was very pleasant when we started the Vyvanse. However, he was Always saying I'm sorry for blurting, please, and thank you which was unheard of before starting the Vyvanse. We were noticing around 4:00 the Vyvanse wearing off and the aggression and whining came back with a vengeance! We added another .1 mg Kapvay after school with his Depakote and the result was AMAZING. He is pleasant ALL day long."
hmurphy April 16, 2011
65 users found this comment helpful.
"My 8-year old son has been on various stimulants, in addition to regular clonidine, Intuniv, Risperdal, Seroquel, Strattera and Abilify. My son is extremely impulsive and aggressive to our family on a daily basis, and I had been thinking that nothing would help our son. Our new psychiatrist recommended Kapvay and we were very skeptical, as our son was irritable and even more aggressive regular clonidine with Kapvay, there has been a SIGNIFICANT decrease in our son's aggressiveness. He is still very obsessive, rude and defiant verbally. So physically, we rate Kapvay a TEN in decreasing aggression. But only rated it a seven due to other factors. It is the ONLY medicine that has helped physical aggression for our son."
Rampage April 4, 2011
61 users found this comment helpful.
"I started my son on this medicine on Friday. He is doing well. No emotional break-downs, no crying. The only issue I am having is he is falling asleep around noon every day. He hasn't had a nap since he was 16 months old. He is 7, going on 8. I can't imagine his teacher will be all that amused when he goes to sleep during class tomorrow."
BeckyBeird March 20, 2011
55 users found this comment helpful.
"My 6 year old son was diagnosed with ADHD last year. I saw signs during the preschool years as he was kicked out of three schools. This has been a trying year as we started him on Concerta, Focalin 2.5, & Focalin ER, Intuniv:(Although the stimulants were great and we saw the benefits, it was difficult for me to see the negative side effects (tics and meltdown). I had mentioned to my doctor a month ago about Clonidine to reduce side of effects of stimulants. She declined as she was uncomfortable with providing adult medication to children. However, she contacted me about Kapvay which has been wonderful. Day 6 and a bit sleepy unlike Intuniv (sedated). I will keep you up to date."
phenomenalmom February 7, 2011
56 users found this comment helpful.
"I have a 8 year old son with ADHD. He is extremely hyper and unable to focus, school and friends became a true nightmare. We see a wonderful and highly respected psychiatrist. He is very knowledgeable on ADHD medicines. I was told when their is an emotional factor to the ADHD, Clonidine is the best medication for this. We tried Clonidine after MANY stimulants and non-stimulants also anti-psychotics. Clonidine 1.0 mg 2x a day this was the only medicine that we saw immediate results with. The only side effect was the tiredness, which did go away. I started him on the Kapavy 2 weeks ago. This medicine is a true GOD send. He is calm, focused, and far less emotional. We can't say enough great things. Please give this medicine a try."
Aliathome4 February 5, 2011
189 users found this comment helpful.
More about Kapvay (clonidine)
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- Drug class: antiadrenergic agents, centrally acting