Entocort EC for Inflammatory Bowel Disease User Reviews

• She...
• December 5, 2013

"I was prescribed this for Collagenous (microscopic) Colitis, and it worked immediately with the first dose. I take three 3mg capsules at once in the morning. I've been on it for 15 months straight with no side effects, but I do have to have a bone density scan once a year. I have tried weaning off the medicine, but my symptoms return so it looks like I'm on this for life. Entocort is my miracle. It helps me live a normal life."

• She...
• Taken for 1 to 2 years
• February 8, 2014

"Microscopic Colitis: I have already given a review on this medication but I wanted to add important information. The one thing I found is the generic Budesonide (bright pink capsule) does not work well as the brand Entocort EC (gray and pink). I take whatever the pharmacy has available. This last refill was generic and while on it, all my symptoms returned. Saw my gastro and told him about it and he said he had one other patient that stated generic didn't work for them. He prescribed brand only and it works like a charm. If you find you aren't doing well on the generic, ask for brand. See if it makes a difference. It did for me."

• Not...
• Taken for 1 to 6 months
• February 7, 2021

"Was prescribed Entocort after a colon biopsy positive for microscopic colitis (and a high calprotectin level in stool tests). I experienced improvement from Day 1 and was cured by the end of the 90-day course of therapy. This felt like a miracle after being misdiagnosed with IBS for 5 years and nothing helped."

• mer...
• March 31, 2010

"I have been suffering with severe diarrhea due to Lymphocytic Colitis for 2 years. I have taken many different prescriptions for it with no help. Entocort was prescribed to me 10 days ago, and I feel terrific! The diarrhea and cramping have stopped. I really feel great. For the first 4 days, I did have a moderate headache, but that has gone. The only side effect I have now is some mild ache on my face. For me, Entocort has given me my life back."

• Anonymous
• December 1, 2011

"This medicine changed my life. I have taken it for 2 years, but now I have no health insurance and can't afford it. I have severe cramping and constant diarrhea. Food is repulsive to me, and I am losing weight like crazy. I sure do miss it."

• Sal...
• Taken for 1 to 6 months
• January 14, 2020

"I have microscopic colitis and was prescribed 9 mg for 30 days, 6 mg for 30 days, 3 mg for 30 days. I took this for 30 days with no relief, was also taking Imodium and cholestyramine, still with no relief. Got prescribed Lotolil, 2 pills up to 4 times a day, still no relief. So unfortunately, it has not worked for me."

• Anonymous
• July 17, 2011

"I've been taking Entocort for almost 3 months now. My symptoms of inflammatory bowel disease are almost nonexistent. However, since taking this medicine (almost from the beginning), I now have psoriasis all over my body, including pustular psoriasis on my hands and feet, which is very painful. I believe this medicine is causing the psoriasis, I've never had this condition before."

• 10y...
• September 22, 2009

"Reidcaro - Be careful. Less than 2 weeks' time is not enough time to judge the results. Don't expect a cure for IBD. Look at yourself as managing it. Realizing this at the start may avoid a letdown each time you change medicines."

• rei...
• June 21, 2009

"I have only been taking this medicine for a week. I am being treated for inflammatory bowel disease, and nothing else has worked. So far, I think I am on the way to being cured. I am keeping my fingers crossed. After two weeks, I have to report back to my physician as to my experience with this medicine."

• Don...
• Taken for 1 to 2 years
• November 19, 2020

"I was diagnosed 1 and 1/2 years ago with lymphocytic colitis. I have had 3 flare-ups and have been on Entocort for each one. Great drug for me, unfortunately, my sugars have elevated because I have type 2 diabetes. I stop the drug at the end of December, very anxious to see what will happen. Lost 34 lbs since the beginning of this horrible disease, and my symptoms return every 3 months after I stop taking Entocort."

• Jo-...
• Taken for 10 years or more
• November 18, 2021

"I've had stomach and intestinal issues for many, many years and have sporadically been using Entocort for over 10 years. I'm sensitive to most medication and don't take it daily as it has side effects (i.e., vision and bone density issues). There have been times when the gastroenterologist prescribed it every day for about 4 weeks, tapering off after that time frame. Although I wish I didn't have to take this steroid, it is the only medication that helps, even if for short periods. I'm amazed there is no cure for these debilitating intestinal diseases."

• Dre...
• Taken for 1 to 6 months
• June 25, 2015

"Did not work. Severe psychological and physical side effects requiring hospitalization."