Imuran User Reviews & Ratings (Page 2)

• No...
• November 9, 2016

For Ulcerative Colitis "Have been on Imuran for 6 years, and it has helped some off and on. In the beginning, I went to the bathroom about 10 to 12 times a day, thus losing a lot of weight, which I didn't expect. Now I go about 3 to 4 times a day, and I do have a flare-up every now and then. Was finally weaned off of prednisone. Have gained some weight back. Overall, the medication has helped, though my immune system has been weakened."

• Mel...
• Taken for 1 to 6 months
• April 10, 2018

For Lupus "I started on Imuran 6 weeks ago. At 4 weeks, I noticed a huge improvement in my hand pain and stiffness. At 6 weeks, I have noticed a general overall improvement in all my joints, the pain in my knees has been reduced by 2. I can do more stairs with less pain. I also take Celebrex, Plaquenil, and Methotrexate too."

• chr...
• April 29, 2019

For Inflammatory Bowel Disease "Shortly after commencing Imuran at a low dose (50 mg/day), I developed a severe and persistent headache and also felt very tired and listless. One week later, everything got a lot worse: within 24 hours of commencing the higher dosage (100 mg/day), I began to feel extremely nauseous, and about an hour later, non-stop vomiting commenced. I couldn't even swallow a mouthful of water without bringing it up almost immediately. That night, all the joints in my body began to swell up and become very painful. By 3 a.m., I could barely walk, and by 7 a.m., my husband had to call in emergency services: my BP had dropped to 56/40, so I was immediately taken to the hospital, where I was treated with copious amounts of IV fluids, antiemetics, and high doses of corticosteroids. Over the next few days, I very gradually began to improve and was discharged from the hospital 6 days later, but it took many weeks before I was anywhere near back to normal."

• PEN...
• April 25, 2009

For Crohn's Disease, Maintenance "I have been taking 50 mg daily and have been for six months. I had a serious flare six months ago and a small bowel resection two months later. I feel that the Imuran and Remicade combination is keeping me well and feeling perfectly normal. No side effects so far. I am very glad to have tapered off Prednisone and am happy with Imuran and Remicade for Crohn's maintenance."

• Soh...
• Taken for less than 1 month
• May 24, 2018

For Rheumatoid Arthritis "I was put on Imuran for RA and RA-ILD (Rheumatoid arthritis, interstitial lung disease). As another mentioned, this drug is not widely used for RA, nor is it widely accepted as a treatment for ILD caused by RA. My docs are hoping to cover both bases with one drug. So far, the side effects are monstrous. Willing to go back on a 'regularly prescribed' RA med and hope for the best in the lung flare-ups."

• But...
• Taken for less than 1 month
• April 20, 2017

For Lupus "At the 2-week mark on Imuran 50 mg TID, I developed a high temp, severe muscle aches, chilling, and started coughing up green mucus. I also had severe weakness. Went to MD and put on antibiotics. Called rheumy, and I was taken off the med. CBC and CMP lab was normal."

• Aya...
• January 4, 2020

For Lupus "I have been on Imuran three years for SLE, and it works really well for me. The side effects I had diarrhea for the first few months, but it has improved. I barely get any pain, and it has improved my kidney function."

• ThM...
• August 28, 2010

For Lupus "Imuran caused a 10-day hospital stay for me. I was on it about 2 weeks, started running a fever of 104, had chills, very short of breath. I was treated for regular flu, swine flu, tested for all sorts of other breathing problems."

• Sys...
• December 8, 2015

For Lupus "Have been on it for over a year, works okay at this point, still having some fatigue and still have pain and swelling in feet and hands. Also take Plaquenil, so this may be helping also. Would love to feel as good as the people on Benlysta :)"

• she...
• February 6, 2010

For Crohn's Disease, Maintenance "I have had Crohn's disease for 19 years and have been on many different medications. I have been hospitalized 6 times, where they shut down the colon to leave it to rest (no surgeries). I have taken Imuran for 7 years and, until last month, have only had 4 flare-ups to account for. My doctors put me on a steroid (not something that you want to take a lot of). For me, this is usually about a 2-3 month process. Unfortunately, my thyroid has gone from hypo to hyper, and my Crohn's disease and blood pressure are out of control. So my doctors have suggested I try Remicade... I have just had my second infusion, still taking Imuran and 30 mg of steroid, hoping to see some results soon."

• Anonymous
• January 8, 2010

For Crohn's Disease, Maintenance "I was prescribed Imuran but had to come off it within 2 weeks due to acute depression and complete loss of appetite! But some medicines work better on other people, I think you have to find the right one for you!"

• G E...
• Taken for 10 years or more
• December 2, 2015

For Crohn's Disease, Maintenance "I was taking Imuran back in 2012 for Crohn's disease. I switched to Remicade and was doing well until the 6th infusion when I contracted drug-induced lupus. After a short time with prednisone, I went back on Imuran. After 3 years, I seem to be doing well (no flare-ups), etc. I do have a lot of trouble with my skin. I don't know if the Imuran has anything to do with that or not."

• sco...
• Taken for 5 to 10 years
• March 28, 2015

For Crohn's Disease "I've been on Imuran for about 9 years now. After trying the medicine Pentasa, where I was taking 4000 mg a day, and it still didn't control my flare-ups. This medicine has its side effects too, but I haven't experienced many other than pain in my joints recently, which is good since I've been taking Imuran for 9 years!"

• Anonymous
• October 3, 2016

For Crohn's Disease, Maintenance "I was only diagnosed in May and have been on Uceris and Imuran. Currently taking Imuran 50 mg, and now that I have been on it for a few months, I have been getting nausea every time I take it. Zofran does not even help, they are talking about doing the infusion now. I'm just so tired of being sick. Did this happen to anyone else?"

• Imu...
• Taken for less than 1 month
• January 24, 2016

For Crohn's Disease "Imuran seemed fine for the first couple weeks, until I got a fever of 103 degrees. My doctor instructed me to stop taking the Imuran if my temperature reached 103 degrees, so I stopped for a week or so. My temperature returned to normal, so my doctor instructed me to start Imuran again. After one day's dosage, I experienced the worst imaginable pain in my whole torso. It turns out the Imuran gave me pancreatitis. I had to spend 3 days on an IV drip in the hospital and an all-liquid diet for a week after."

• Anonymous
• November 23, 2009

For Crohn's Disease, Maintenance "My doctor has put me on Imuran for about three weeks now, and I am starting to feel some side effects, such as weakness, body aches, and breakouts all over my body. So far, not so good with the treatment. I will be calling my doctor for sure."

• Nic...
• Taken for 1 to 6 months
• January 26, 2022

For Lupus "I took it for a month. The first week it made me nauseous, which I just took promethazine to help with, but it didn't take the feeling completely away. I wasn't really eating, and the diarrhea started at 2 weeks. By the 4th week, I felt horrible! Headache, weakness, stomach pain, vomiting, and diarrhea from Sunday to Friday. It was then I knew, although effective for some, and I'd really hoped it would help after seeing so many great reviews, but I requested something else."

• Jun...
• Taken for 10 years or more
• September 10, 2022

For Ulcerative Colitis "I have been taking this drug for 11 years. I was 82 lbs and almost dead from collagenous colitis. I was going to the bathroom 17 times a day. This gave me my life back! I didn’t have any side effects at all. Now, I have lupus. This doesn’t seem to be helping with that. I’m worried what will happen if I have to switch immune suppressants."

• Jod...
• Taken for less than 1 month
• February 20, 2021

For Crohn's Disease "I took Imuran many years ago. After 2 weeks on it, it gave me pancreatitis. Five days in the hospital, 4 days with nothing by mouth! It was awful! Because I was only on Imuran for two weeks (and it really was so long ago), I don't honestly remember if the medication itself helped my Crohn's. All I know is that my doctor shared with me that the Imuran could cause pancreatitis, although rare, he wanted me to be aware of the possibility. I even joked with him. I said if it's rare, it'll probably happen to me, lol, and 2 weeks to the day, it did!"

• Cam...
• Taken for less than 1 month
• January 6, 2022

For Rheumatoid Arthritis "I've been taking Imuran for 2 weeks now to treat my inflammatory arthritis, since no other drug seemed to help. I haven't noticed any improvement yet, but the nausea is unbearable. I'm not able to eat anything, and I'm constantly hungry. Reminds me of my pregnancy morning sickness, though it's not as bad as methotrexate was. I've already lost a bit of weight due to this. Yesterday, I started taking anti-nausea medication to be able to cope. I hope the side effects end soon and the drug helps treat my symptoms."

• bar...
• Taken for 10 years or more
• March 17, 2014

For Lupus "I have been on Imuran for at least 25 years. I have had few, if any, side effects. My lupus is basically in remission most of the time. I also take prednisone."

• Jud...
• April 28, 2009

For Lupus "Worked fantastic for systemic lupus erythematosus (SLE) that included heart and lung involvement."

• Bam...
• July 6, 2010

For Ulcerative Colitis "I started Imuran after yet another dose of steroids, and now I have got my confidence back. I will only use the bathroom four times a day on a normal day, but I am careful with my diet, no fiber."

• ric...
• December 7, 2009

For Lupus "Had an allergic reaction about three weeks into treatment. Broke out in hives. Was taking it for systemic lupus."

• Anonymous
• March 22, 2010

For Renal Transplant "Have been using Imuran for the past 39 years following a kidney transplant. Still healthy and going strong."