Abaloparatide for Osteoporosis User Reviews (Page 3)

• S-marie
• Taken for 1 to 6 months
• December 1, 2022

Tymlos (abaloparatide) "After 6 weeks, the following side effects have not improved with my pre-bed shots: heart burn, and gas on & off all day. Fatigue. Spend 11-13 hours in bed. Trying to sleep or fatigue so strong, getting up is a challenge. Brain fog, which I assume is from constant fatigue. L1 fracture is more painful now than first 3 months of healing. Not sure I can stay on this as depression is becoming the newest side effect. More power to those who succeed"

• Anonymous
• Taken for 1 to 6 months
• June 24, 2023

Tymlos (abaloparatide) "I’m two weeks into my second pen. The side effects have been surprisingly mild. Noticed an increased heart rate for a bit, and lately, foot and leg cramps becoming a thing. Completely manageable and worth it if it helps with severe osteoporosis diagnosis. Injections are going well. My rheumatologist told me I can also inject it into my thigh."

• Hank
• Taken for 1 to 6 months
• January 9, 2023

Tymlos (abaloparatide) "I have been on Tymlos for 3 months. I was scheduled for back surgery and the surgeon wanted my bones as hard as possible. I have put off the surgery for a while but kept on with the Tymlos. I have joint pain and feel flu-like symptoms more days than not. I also have to urinate more often right after taking it. I do not think I will stay on it for the whole year unless these side-effects dissipate. I will say I am getting over my needle phobia!"

• Elaine
• Taken for 1 to 6 months
• March 23, 2022

Tymlos (abaloparatide) "I took Tymlos for almost 3 months. Racing heart, palpitations, being winded and fatigue were my most severe symptoms. I am told these symptoms should have subsided in 7 or 8 hours after an injection but that did not happen in my case. These symptoms, especially the palpitations, persisted off and on 24/7 and are still with me even though I've been off off the medication for 2 weeks. So now I have to have a cardiac workup to make sure there is no damage to my heart and I guess try to pin point what is happening. I did not have heart problems/issues before I started this medication. Right now my heart is my main concern before I start to address my osteoporosis. I feel like I traded one problem for two."

• Janey
• Taken for 1 to 6 months
• October 14, 2021

Tymlos (abaloparatide) "I have been on Tymlos for two months. I immediately had a drop in my blood pressure. I then had pressure behind my eyes and was off Tymlos for two weeks. I restarted but found that my blood pressure still dropped and I had a racing heart rate as well as insomnia. After being off of it again for two days have felt lightheaded and my pulse slowed to what was not normal for me, a drop of 10 to 15 beats per minute. I have come to the conclusion that the risks and side effects are not worth it. As I have dental issues I cannot take other medications. Forteo is the only other alternative and it is the same class of medication and has similar or maybe more side effects."

• llctr...
• Taken for 1 to 6 months
• February 23, 2023

Tymlos (abaloparatide) "I've only been on Tymlos for about a month and the headaches, and full spine have gradually increased in pain, I've felt as though I've gotten worse since I started. My bones hurt worse and get even worse when trying to sleep, and when my bladder has the least urge to urinate seems to increase the pain. Still not feeling better or well for that matter. It seems the side effects explained are lasting throughout the day and night. Should I just stop using it? As it has in hand made it more difficult to eat as the Pain and Dizziness are over the top. Nauseous all the time."

• Scary
• Taken for less than 1 month
• November 13, 2021

Tymlos (abaloparatide) "I was on tymlos for 8 days. My side effects got worse everyday until it got to the point where I thought I was going to have a heart attack. Will never take another injection. The side effects are scary and dangerous. I'm a 67 year old woman with severe osteoporosis but taking this medication to improve my bone density is not worth the risk. Stay away from it."

• Sophia
• Taken for less than 1 month
• August 31, 2021

Tymlos (abaloparatide) "I am 81 and have broken my wrist twice in the last eight years. Nothing else. I have been on Fosamax and Alendronate for years on and off. The last fracture occurred 5 years ago. Since my Dexa scan has gotten to be very poor. -4, I started Tymlos with hopes and in good faith. However, I found the side effects intolerable: ongoing dizziness that made me very afraid of falling; headaches lasting hours, brain fog, pain in my spine, generally feeling terrible. I stopped after 15 administrations of the drug and felt better quickly. New approach in addition to relevant nutrition: I am doing weight-lifting plus physical therapy. Result: No brain fog, more energy, improved balance. I am surprised and relieved that my doctor, an endocrinologist, supports this approach."

• Cardm...
• Taken for 6 months to 1 year
• January 8, 2021

Tymlos (abaloparatide) "I had a hysterectomy at age 27, unable tolerate hormones later was unable to tolerate osteoporosis medications tried several. Have been on Tymlos 7 months only side effect is the fatigue, but I can get through that. Hoping that this helps as the cost is going to keep me from staying on it. I am 69 my hip score was -3.5"

• Wytser
• Taken for less than 1 month
• November 1, 2021

Tymlos (abaloparatide) "I'm on my fifth injection. My numbers were 4.7 in the left hip. My calcium and vitamin D are excellent so I can't improve with nutrition. I didn't get any instructions; the VA sent me the pen and, later, the needles. When I asked for instruction, they told me to look at the YouTube videos! Which I did. Bunches of them, but they don't tell you where to inject or what to look for after. No one mentions all the stuff you all are telling me. So, I'm sorry but glad to hear the back pain, palpitations, insomnia, brain fog, general malaise, severe headache, and pains in my legs and ankles are fairly typical. I'm not surprised at the health care professionals dismissing our concerns. After all, years of living with the pain of a condition and knowing our own bodies are not equivalent to that two-week course the health provider took. I experience burning and itching at the injection site that seems to grow bigger with each injection. It was the first time the needle actually hurt... a lot."

• ABS
• Taken for less than 1 month
• July 13, 2022

Tymlos (abaloparatide) "Just started 3 weeks ago after breaking 6 bones in 6 months, I am 57. First week severe dizzy , headache and nauseous. The dizziness got better after the first week. The headache is daily, the bones hurt at night when I do the injection and am very cold for a few hours, and can not sleep. Seem very fatigued."

• Lynn
• Taken for less than 1 month
• May 22, 2023

Tymlos (abaloparatide) "I took my first Tymlos injection today. Ten minute later I began feeling pressure in my head. This side effect progressed to bilateral throbbing in the back of my neck (I'm supposing that was in my vertebral arteries b/c it was bilateral). Then throbbing in my back began bilaterally as well ( I'm supposing in my kidneys) this pain ramped up in head and back to an 8/10 pain scale. I was writhing in pain and my respirations were rapid. My blood pressure remained normal though slightly higher than my normal. My Pulse elevated to 120 when my normal is about 75/min. These side effect tapered off after about 50 minutes. Now it is an 1.5 hr after the injection and I am feeling like myself again except I can tell I recently had a headache. I don't think I will continue Tymlos."

• Bella...
• Taken for less than 1 month
• November 1, 2022

Tymlos (abaloparatide) "I am two weeks into my Tymlos injections. Side effects have included palpitations, increased heart rate, nausea, and fatigue. The fatigue has been the hardest part so far. But I am in my early 30s and have sustained 20+ non-traumatic fractures so I feel that this is my only option at this point. I am hopeful to see what my next DEXA looks like."

• Bendor
• Taken for 1 to 6 months
• June 1, 2021

Tymlos (abaloparatide) "I have been injecting Tymlos in the evening and having severe back pain in the morning. The body pain has been increasing. Without moving I can feel my legs and feet hurt. My hips are-3.7 and I was hoping this was the drug that would help me. The results from my recent lab work showed an increase in ALP. My endocrinologist switched me to Tymlos because it doesn’t require refrigeration. My latest ALP increased from 128-202 after 6 weeks of treatment. From what I’ve read it looks like it’s time to give it up."

• mimi
• Taken for 1 to 6 months
• July 31, 2021

Tymlos (abaloparatide) "Have been on Tymlos for 2 months, starting 3rd month. Began having severe itching all over body about a month ago, especially in one area (front middle) chest. Itching keeps me up for hours at night and sometimes I can't distinguish between pain and itching. Has anyone else had a similar experience?"

• Troy
• Taken for 1 to 6 months
• September 22, 2021

Tymlos (abaloparatide) "Am on my 3rd pen; since the beginning side effects have been palpitations and fatigue so I moved (an hour at a time) injections from morning to about 2 hours before bed. I tried bedtime but it disturbed my sleep so I made the adjustment. Palpitations were mild, might last 15 minutes. Two nights ago I went through my regular routine and within 10 minutes my heart was literally beating out of my chest. Very fast, very hard. It was very alarming and kept up for 1 1/2 hours, and then another 1/2 hour before settling back into rhythm. I contacted my doctor the next day and detailed past side effects and this episode. The response was that these were not side effects of TYMLOS and maybe I needed to see a cardiologist or I had "anxiety" and he didn't think I should discontinue the injections. I thought this was very dismissive, and careless. I have other health issues that require doctor visits on a regular basis. Pretty sure if I had heart problems someone would addressed this."

• owee...
• Taken for less than 1 month
• July 3, 2022

Tymlos (abaloparatide) "Not good. Not good at all. I finally overcame the terror of self-injection, and now I'm dealing with awful side effects: within 20 min my heart starts to race, and that goes on for hours. I have increased pain in my spine and joints. I feel like I have the flu for about 4-5 hours a day, every day, within an hour of taking Tymlos. Jittery, achy, and generally miserable. Now I'm reading that as soon as I stop taking this drug my bones are back to screwed anyway, so I'm considering dropping this drug for good."

• Mari
• Taken for 1 to 6 months
• March 21, 2023

Tymlos (abaloparatide) "I have been taking Tymlos for about 6 months now. I rarely had a side effect other than tiredness, until about 3 weeks ago, when I started having pain in my knees and legs. It gets difficult to work out or walk with this pain, I am taking Advil to help me, and I hope it gets better, I do not want to stop the medication. I hope it helps me with my Osteo. Doing a scan after my first year of treatment to see if my bones have improved."

• Anonymous
• Taken for 1 to 6 months
• September 10, 2022

Tymlos (abaloparatide) "Took Tymlos for 2 months. I didn't know why I was so tired and then I figured out it was the medication. Slept 11 hours per night for a few days and then figured it out that it was from Tymlos so I stopped taking it. Also I gained weight. I would not recommend it to anyone"

• Anonymous
• Taken for less than 1 month
• October 23, 2021

Tymlos (abaloparatide) "Just started first injection today. Nurse came to my house and showed me how to inject. She left around 20 minutes after injection. Almost immediately I started hurting extremely bad in my lower back. I took 2 Tylenol and after close to 2 hours later I am feeling almost normal. As much as I don’t want Osteoporosis I don’t think I can continue this drug."

• Lasybug
• Taken for less than 1 month
• March 15, 2021

Tymlos (abaloparatide) "Take it at night, have slight headache and pressure behind my ears, but not horrible. I have ‘ill feeling’ after injection, but I go to sleep fairly quickly after. Palpitations are there, but it calms down after a while. I am on my first pen about 2 Weeks in. So far, tolerable. However, I am very interested in why the Tymlos hasn’t had more facts available to the public. Why does it cause the pain in the bones ( I am guessing it’s caused from bone growth.)"

• Rafa
• Taken for 1 to 6 months
• January 13, 2021

Tymlos (abaloparatide) "I started Tymlos 1 month the ago. I do have some palpitations but goes away after half hour. I inject before I go to sleep so I just lie down after taking it. Hopefully, this will help my bones. I plan to stay on it for 1 year. Then get a new Dexa to check my T score."

• Colleen
• Taken for 1 to 6 months
• February 13, 2024

Tymlos (abaloparatide) "I am starting my 5th pen and I have also experienced some side effects. They come and go, the very first injection caused terrible nausea about an hour after injection. I then started with the rapid heartbeats, head rush, and slight nausea. I have experimented with doing the injection at different times of the day and have found that I feel much better doing it in the evening after taking a bath and before getting to bed. I am pretty active and found that most of the side effects have tampered off when I am at a relaxed state. I still get a rapid heartbeat for about 10-20 minutes but not as bad as before. In the past two months, I am experiencing little zapping body aches in all different areas of my body. They are not horrible but I do feel them - it's a strange feeling. I just turned 53, and my dexa was -3.3, so I was recommended to start this medication. I was also switched to a different thyroid medication, so I am hoping to see positive results."

• CPurdyB
• Taken for 1 to 6 months
• December 1, 2023

Tymlos (abaloparatide) "I am about to start my third pen. The first three days, I had palpitations, back spasms, and headaches. Someone told me to drink a lot of water, especially before and after the injection. After that, except for one day, I have had no major side effects. I do think there's some extra joint pain with this medication, but nothing that would be enough for me to stop it. I have had several spinal fractures (with kyphoplasty in 6), and my Dexa score in my spine is -3.5. So it is crucial that I continue and not stop. However, I am concerned about what relay drug I will have to take after this."

• JSchw...
• September 19, 2021

Tymlos (abaloparatide) "I have been on Tymlos for 5 months. I noticed after the first few injections a pressure sensation at the top of my spine which has continued to get worse. It starts about 3 minutes after injecting the medicine. I have severe osteoporosis and have tried very hard to deal with side effects. They now include severe headache with nausea and vomiting. Since I have had Menieres Disease for many years, I thought at first that was the problem, so I started a log of what was happening. It seems to be similar to the vertigo of Menieres but it is different. My quality of life has deteriorated simply because of this medication. Yesterday was the last dose I am going to take. The migraine like headache and severe dizziness and vomiting are just too much to deal with on a daily basis."