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Generalized Tonic Clonic Seizures
WHAT YOU NEED TO KNOW:
A generalized tonic-clonic seizure may also be called a grand mal seizure. A seizure means an abnormal area in your brain sometimes sends bursts of electrical activity. A generalized seizure affects both sides of your brain. Tonic and clonic are phases that happen during the seizure. The tonic phase causes your muscles to become stiff. You lose consciousness and may fall down. The clonic phase causes convulsions (repeated muscle contractions). A seizure may last from a few seconds up to 3 minutes. It is an emergency if it lasts longer than 5 minutes.
Call your local emergency number (911 in the US), or have someone else call, for any of the following:
- This is the first seizure you have ever had.
- You have trouble breathing or feeling alert after a seizure.
- The seizure lasts longer than 5 minutes.
- You had a seizure in water, such as in a swimming pool or hot tub.
- You have diabetes or are pregnant and had a seizure.
Call your doctor if:
- You have a second seizure within 24 hours of the first.
- You are injured during a seizure.
- You feel you are not able to cope with your condition.
- Your seizures start to happen more often.
- You are confused longer than usual after a seizure.
- You are planning to get pregnant or are currently pregnant.
- You have questions or concerns about your condition or care.
- Medicines may be given to treat certain health conditions. You may need antiepileptic medicine if your seizures are caused by epilepsy. You may need medicine daily to prevent seizures or during a seizure to stop it. Do not stop taking your medicine unless directed by your healthcare provider.
- Take your medicine as directed. Contact your healthcare provider if you think your medicine is not helping or if you have side effects. Tell him of her if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.
What you can do to prevent a tonic-clonic seizure:
You may not be able to prevent every seizure. The following can help you manage triggers that may make a seizure start:
- Take antiseizure medicine every day at the same time. This will also help prevent medicine side effects. Set an alarm to help remind you to take your medicine every day. If you are a woman, talk to your provider about family planning while you are taking this medicine.
- Manage stress. Stress can be a trigger for epilepsy. Exercise can help you reduce stress. Talk to your healthcare provider about exercise that is safe for you. Illness can be a form of stress. Eat a variety of healthy foods and drink plenty of liquids during an illness. Talk to your healthcare provider about other ways to manage stress.
- Set a regular sleep schedule. A lack of sleep can trigger a seizure. Try to go to sleep and wake up at the same time every day. Keep your bedroom quiet and dark. Talk to your healthcare provider if you are having trouble sleeping.
- Limit or do not drink alcohol as directed. Alcohol can trigger a seizure, especially if you drink a large amount at one time. A drink of alcohol is 12 ounces of beer, 1½ ounces of liquor, or 5 ounces of wine. Talk to your healthcare provider about a safe amount of alcohol for you. Your provider may recommend that you do not drink any alcohol. Tell him or her if you need help to quit drinking.
What you can do to manage tonic-clonic seizures:
The following can help you manage the seizures if you have more than one:
- Keep a seizure diary. This can help you find your triggers and avoid them. Possible triggers include illness, lack of sleep, hormone changes, alcohol, drugs, lights, and stress. Write down the dates of your seizures, where you were, and what you were doing. Include how you felt before and after.
- Record any auras you have before a seizure. An aura is a sign that you are about to have a seizure. Auras happen before certain types of seizures that are in only 1 part of the brain. The aura may happen seconds before a seizure, or up to an hour before. You may feel, see, hear, or smell something. Examples include part of your body becoming hot. You may see a flash of light or hear something. You may have anxiety or déjà vu. If you have an aura, include it in your seizure diary.
- Create a care plan. Tell family, friends, and coworkers about your epilepsy. Give them instructions that tell them how they can keep you safe if you have a seizure.
- Ask what safety precautions you should take. Talk with your healthcare provider about driving. You may not be able to drive until you are seizure-free for a period of time. You will need to check the law where you live. Also talk to your healthcare provider about swimming and bathing. You may drown or develop life-threatening heart or lung damage if you have a seizure in water.
- Carry medical alert identification. Wear medical alert jewelry or carry a card that says you have tonic-clonic seizures. Ask your healthcare provider where to get these items.
How others can keep you safe during a seizure:
Give the following instructions to family, friends, and coworkers:
- Do not panic.
- Do not hold me down or put anything in my mouth.
- Gently guide me to the floor or a soft surface.
- Place me on my side to help prevent me from swallowing saliva or vomit.
- Protect me from injury. Remove sharp or hard objects from the area surrounding me, or cushion my head.
- Loosen the clothing around my head and neck.
- Time how long my seizure lasts. Call 911 if my seizure lasts longer than 5 minutes or if I have a second seizure.
- Stay with me until my seizure ends. Let me rest until I am fully awake.
- Perform CPR if I stop breathing or you cannot feel my pulse.
- Do not give me anything to eat or drink until I am fully awake.
Follow up with your doctor or neurologist as directed:
If you take antiseizure medicine, you will need blood tests to check the level in your blood. The medicine may need to be changed or adjusted. Write down your questions so you remember to ask them during your visits.
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