Venetoclax and Headaches: What Users Say

• Ted...
• Taken for 6 months to 1 year
• December 24, 2024

Venetoclax for Chronic Lymphocytic Leukemia "My husband started Venclexta in February 2024. He has had a lot of fatigue, weakness, days where he feels so bad that he only sits in his chair with his eyes closed. When he feels bad, he doesn't feel safe to drive but often doesn't even feel like going anywhere with me driving. Lymph nodes that were enlarged have gone down, but not totally. It has been 9 months since treatment began. Treatment included 6 months of infusion treatments of some other drugs; not sure what was given. Recently, he has begun to experience a headache on some days, but fatigue seems a little better. No nausea, diarrhea, or significant intestinal issues have been experienced. He did have fever blisters on his lips at the beginning of treatment, but they soon were cured with over-the-counter meds. Praying for remission."

• BNW...
• Taken for 1 to 6 months
• September 8, 2024

For Chronic Lymphocytic Leukemia "Still ramping up, max dose of 400 mg expected this week. Have found the tablets quite easy to swallow and thank you for coating them, as I have some difficulty in swallowing non-coated ones. Can’t understand, however, why there isn’t a 200 mg tablet, as the top dose of 4x100 for the next 12 months is a bit hard to swallow along with my other meds. Side effects have been limited to mild headaches at times, medium constipation, with restlessness a lot of the time. Along with the infusions, hematologist believes it has contributed to a strong response/reduction to my cancerous nodes."

• Pgr...
• Taken for 6 months to 1 year
• August 19, 2024

For Acute Myeloid Leukemia "I have taken venetoclax in combination with 7/3 chemo for my bi-allelic CEPBA-mutated AML, and it has helped for sure! There are some side effects. I originally started off on a 7-day course, and it took me twice as long to recover for the next round of chemo and more blood product transfusions. So we did 3 days. It has not been near as rough, but it dropped my blood counts within 3 days. I don't find chemo as harsh as this medicine, and I recover quicker from just chemo, BUT this medicine has worked wonders for me, and there are medications to combat the symptoms. (Fatigue, neutropenia, bruising, tiredness, weakness, headaches, gum pain)"