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User Reviews for Ibrutinib

Also known as: Imbruvica

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Chronic Lymphocytic Leukemia 11 reviews 35 medications
   
6.4
Summary of Ibrutinib reviews 11 reviews 6.4

Reviews for Ibrutinib

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "My husband took 3 Imbruvica before bedtime and died the next day from Sudden Cardiac Arrest"

   
1.0

Poor Rudy July 7, 2017

0 users found this comment helpful.

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "I began this medicine in October 2016 (age 62) and saw immediate results. Having lost a sister to Leukemia just 9 months prior to my own treatment I decided to begin with this fairly new FDA approved regimen for line treatment. The results were amazing, lymph nodes began shrinking immediately and with 6 weeks none were palpable! Due to onset a-fib, my oncologist would like me to switch to a clinical trial that is using the next generation of the ibrutinib medication which is showing less side affects, particularly with a-fib. The next generation of this drug is showing less side affects, particularly with a-fib so I am considering."

   
9.0

RobinIsBetter (taken for 1 to 6 months) April 12, 2017

9 users found this comment helpful.

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "Shrunk lymph glands in back of neck first week of taking 3 capsules a day second week swollen glands in armpit are gone minor side effects ."

   
10

Genicon (taken for 1 to 6 months) March 25, 2017

8 users found this comment helpful.

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "My 78 year old mother was taking this and in her third month she had vomiting one day back and neck pain for 3 days, then passed away in her sleep, Didn't get a chance to lower the dose."

   
4.0

Nicole73 January 24, 2017

6 users found this comment helpful.

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "I was prescribed Imbruvica for CLL after being in remission for several years. The past protocols had always worked but where very hard on my system. The side effects weren't as extreme as with other treatments. But Imbruvica did not work at all for me. Taking the drug has made my health & quality of life worse and now having stage 4 CLL my prognosis is grim. I lay in the hospital having numerous transfusions that are nothing more then a bandaid for my very soon eminent death."

   
1.0

CLL4 (taken for 2 to 5 years) December 28, 2016

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "Due to my having a variant GI system (with its own side-effects), my oncologist, in an abundance of caution, started me on Imbruvica 1 capsule in the AM, daily. Literally within days, the SIGNIFICANTLY large lymphs in the front and rear of my neck, disappeared. WOW! MY WBC's skyrocketed, but that is typically expected due to the mechanisms by which Imbruvica works. Oversimplifying here -- the abnormal (cancerous) cells, congregate in the lymphs. Imbruvica forces those abnormal cells out into the bloodstream, where they can be attacked and starved of the BTK protein, which they need to thrive and propagate. The "dead" abnormal cells are then flushed out of the body. After 2 months dose upped to 2 capsules daily, and still tolerating well."

   
8.0

FingersCrossed (taken for 1 to 6 months) December 17, 2016

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "My 87 yr old mother took 3 pills in the morning. It lowered her white blood count from 125,000 two 14. 10 is normal. That's the only good thing, I can say about this medication. She had such severe diarrhea and vomiting , that she could not keep any kind of nutrition or food into her system . The drug almost nearly killed her . Her doctor took her off the medication for two weeks , then have her start taking it again at a lower does. Once again soon as she started taking the medication again , the side effects came back and the doctor decided not to continue with medication. Since her last appointment with her oncologist , her white blood cell count is now 50 . Next doctor appointment they're going to try a older less effective drug."

   
10

stevepig2 (taken for 1 to 6 months) October 30, 2016

7 users found this comment helpful.

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "Medication has effectively arrested my father's CLL. From 140,000 WBC to 5,000 within two months."

   
9.0

EddieBoy454 October 27, 2016

6 users found this comment helpful.

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Imbruvica (ibrutinib) for Chronic Lymphocytic Leukemia: "My husband took 3 Imbruvica before bedtime and died from sudden cardiac arrest the next morning."

   
1.0

rspreckelsenbellsouth.net April 17, 2016

28 users found this comment helpful.

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For Chronic Lymphocytic Leukemia: "Been on IMBRIVUCA 3 weeks. Dramatic shrinkage of cervical nodes. Platelets high increased energy. Lucky Canada health care pays for this or I would be dead."

   
10

Teresa691 February 29, 2016

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For Chronic Lymphocytic Leukemia: "Side effects for me: muscle spasms, mouth ulcers, diarrhea, fatigued, dizziness, itchy skin, sore throat, cramps, insomnia, sun sensitivity, and drowsiness."

   
7.0

CLL Patient (taken for 1 to 6 months) July 23, 2014

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