Brukinsa User Reviews & Ratings

• Coz...
• Taken for 1 to 6 months
• December 12, 2023

For Chronic Lymphocytic Leukemia "I was diagnosed with CLL a little over 3.5 years ago at age 70. We were on a 'wait and see' routine up until about 6 weeks ago. My oncologist said I should go on treatment and he recommended Brukinsa. Being a little 'freaked' out about having to go on treatment, I contacted MD Anderson. My wife and I flew to Houston and had an array of blood tests done. 19 vials. The Dr. was very kind and patient and explained CLL and the clinical trials they are now conducting. I asked him what he would do in my situation, he said to stay the course on Brukinsa as it is one of the newest of the BTK inhibitors. So, for right now, I'm sticking to Brukinsa. As far as side effects, I haven't noticed any."

• Vic...
• Taken for 1 to 6 months
• September 26, 2024

For Chronic Lymphocytic Leukemia "My mom, 74 years old, started taking Brukinsa recently on Aug 20, 2024. All swelling lymph nodes on the collarbone and underarms are gone. She is losing a little weight, no side effects. I have noticed some skin dryness and wrinkles around the neck, a little fatigue, but overall, much better than before treatment. Thanks to the lymphoma clinic in Fred Hutch Cancer Center, Seattle, and thanks to the Beigene company and their support team."

• Mar...
• Taken for 1 to 6 months
• April 26, 2024

For Chronic Lymphocytic Leukemia "Taking it since November 2023 for SLL. Within a week, all bulky adenopathy melted away with transient high lymphocyte blood levels, but normal range in a few months. I have mild fatigue and low immune function, but have not been ill otherwise. Constipation managed with Metamucil and diet changes. I noticed slightly increased bleeding during oral care and just noticed petechiae on my legs today, very minor. Labs have been good, but decreasing neutrophils, basophils, eosinophils. 160 mg bid"

• JGT...
• Taken for less than 1 month
• July 9, 2024

For Chronic Lymphocytic Leukemia "I just started Brukinsa 3 weeks ago. I take 320 mg in one dose in the morning. It has not caused any discomforting symptoms. I had lab work done today, and my lymphocyte count went from 171 x 1000 down to 65 x 1000. My platelets are well within the normal range, but my hemoglobin went from 10 down to 9.5."

• Gla...
• Taken for 1 to 2 years
• September 2, 2023

For Mantle Cell Lymphoma "Brukinsa put me in remission within a 6-month timeframe of starting the treatment. Benefits are it has kept me in remission for almost 12 months. Very pleased with the results. As for side effects, I've experienced rashes, musculoskeletal pain, muscle spasms, fatigue, and occasional stomach constipation or diarrhea. I take 320 mg per day, 2 in the morning and 2 in the evening."

• Sid...
• Taken for 6 months to 1 year
• June 6, 2024

For Waldenström Macroglobulinemia "Was totally fatigued and had severe weight loss. Two weeks on Brukinsa, noticed the difference. Taking 160mg in the morning and 160mg in the evening. After taking these for one year, my weight is back to normal, no serious side effects, did have some bruising at the start. Healed quickly."

• Anonymous
• Taken for 1 to 2 years
• February 3, 2024

For Chronic Lymphocytic Leukemia "Side effects come and go but are common, lasting a few hours or a couple of days, like joint and muscle pain, especially to areas that were previously injured. Otherwise, no problem handling them. Remission occurred in six months."

• Luc...
• Taken for 1 to 6 months
• November 16, 2024

For Chronic Lymphocytic Leukemia "Although at last report, white blood cell count went down a little. Having many symptoms worse if cough, runny nose, very nervous, dry mouth, many skin problems arms at times almost black.... tiredness (usually very active), weight gain, swelling of limbs, breasts, etc., top of leg numbness."

• DRT...
• Taken for 1 to 2 years
• March 29, 2024

For Chronic Lymphocytic Leukemia "Continuing to work extremely well after one year. Some fatigue, and presently having persistent nasal congestion and sneezing, but not sure if it is from the medication. All of my blood counts returned to normal after one month, and have remained normal."

• Way...
• Taken for 6 months to 1 year
• July 27, 2024

For Mantle Cell Lymphoma "I have been taking it for 7 months. There are no problems with side effects. I take 80 mg twice a day. There is mild depression of platelets, WBC, and a good neutrophil count. It works great, all tumors disappeared within 4 months."

• Joh...
• Taken for 2 to 5 years
• April 10, 2024

For Waldenström Macroglobulinemia "I have been using Brukinsa for over two years and I am now having difficulties with weight gain and lymphedema in my legs and feet to the point that I am having difficulties walking and getting in and out of a seat, especially in cars. I am looking for help with little success."

• Bri...
• Taken for 6 months to 1 year
• March 6, 2024

For Waldenström Macroglobulinemia "My doctor changed from Imbruvica to Brukinsa approximately 8 months ago. My IgM did improve slightly, but a terrible skin rash appeared all over my body accompanied with uncontrollable itching. I blame Brukinsa for that. I now need advice about what to take for my Waldenstrom's condition with fewer side effects."

• lin...
• Taken for 1 to 6 months
• December 29, 2024

For Waldenström Macroglobulinemia "Been on Brukinsa for slightly over a month and have had no side effects. Energy level is high. No napping and going to bed at 10 PM. Have noticed an old running injury, bursitis, starting to act up again, but do not know if it is due to the drug or increased activity."

• dmp...
• Taken for less than 1 month
• February 1, 2024

For Chronic Lymphocytic Leukemia "I started on Brukinsa on the 5th. I marked improvement in my headaches. I was on Imbruvica since March of 21, starting at 420mg and then reduced to 280mg in hopes of reducing headaches. There was no improvement, so I was taken off it totally on November 15th. I still have issues with bad headaches, but the intensity isn't as bad."

• Lin...
• Taken for less than 1 month
• December 1, 2024

For Waldenström Macroglobulinemia "After 6 B&R chemo sessions, chemo wasabi stopped due to a mutant cell that was blocking its effectiveness. After nearly 2 months, I was put on Brukinsa and have had little or no side effects. Slight runny nose, occasional minor back pain. I feel like myself again. Looking forward to my first lab since starting. I hope it’s working!"

• Gra...
• Taken for 1 to 2 years
• January 11, 2025

For Waldenström Macroglobulinemia "My dose is currently 160 mg once per day. I have few side effects. Some muscle and joint issues, which are resolved pretty well by stretching, exercise, and relaxation techniques. It has given me my life back. I was using a walker when first diagnosed with lymphoma. Now I can walk, hike, and bike for an hour. Fatigue is definitely an issue, so I need to rest in between activities. While I can't just take off for a day like I used to, I am still living a good life. It is crazy expensive, but between Medicare, my supplemental insurance, and help from the manufacturer, I haven't had any copay. I'm so grateful."

• Fra...
• Taken for 1 to 2 years
• February 16, 2025

For Waldenström Macroglobulinemia "With TE thrombocytémie essentielle after 18 years (Hydréa). No longer supported, Hydréa replaced by Anagrelide. Plus MGUS (IgM) => Lymphome B with small cell CD5 négatif (Small B-cell lymphoma) = WM. Anemia. At the same time, change Hydréa to Anagrelide and Brukinsa started 8 months after. No problems, just reduce the Anagrelide dose from 2/day to 1-2-1-2 ... /day (pellets too low with 2/d)). So no problem after 2 years and IgM ~0.0 now. It works very well for my Waldenström disease. Regards."

• Bru...
• Taken for 1 to 6 months
• February 3, 2024

For Chronic Lymphocytic Leukemia "Already 4 months on Brukinsa. All enlarged lymph nodes have disappeared. Very minor side effect - upper right foot skin sensitivity. So far, it has worked very well for me."

• Ste...
• Taken for less than 1 month
• March 3, 2024

For Chronic Lymphocytic Leukemia "4 weeks so far so good. No side effects. Lymphs have gone down."

• Ana...
• April 19, 2024

For Waldenström Macroglobulinemia "I have been taking it for 3+ months and have no bad side effects. It is reducing my M-spikes and most of my blood values have moved back into normal ranges. I couldn't be more pleased!"

• Sim...
• Taken for 1 to 6 months
• May 20, 2024

For Chronic Lymphocytic Leukemia "Rash on face after 1st month; I started to cough out blood after 8 weeks"

• Bud...
• Taken for 1 to 2 years
• May 10, 2024

For Waldenström Macroglobulinemia "Taking it for over a year and I feel great. No side effects except some occasional bruising. IGM numbers are definitely lower than they were to start and approaching normal."

• Anonymous
• Taken for less than 1 month
• June 3, 2024

For Chronic Lymphocytic Leukemia "At times, after taking Brukinsa, seem to feel tired."

• Mon...
• Taken for less than 1 month
• November 20, 2024

For Chronic Lymphocytic Leukemia "I have just started my journey. (Second day on the drug.) I look forward to seeing the results as time moves along. I also look forward to hearing others' comments."

• Est...
• Taken for 1 to 6 months
• September 22, 2024

For Waldenström Macroglobulinemia "After 4 months, blood work improving, m protein levels dropping from 5000 down to 1700, with a hemoglobin rise. No appreciable side effects so far. 2 80 mg twice daily."