Brukinsa User Reviews & Ratings (Page 2)
Brukinsa has an average rating of 8.6 out of 10 from a total of 45 reviews on Drugs.com. 78% of reviewers reported a positive experience, while 0% reported a negative experience.
Reviews for Brukinsa
- Fra...
- Taken for 1 to 2 years
- February 16, 2025
For Waldenström Macroglobulinemia "With TE thrombocytémie essentielle after 18 years (Hydréa). No longer supported, Hydréa replaced by Anagrelide. Plus MGUS (IgM) => Lymphome B with small cell CD5 négatif (Small B-cell lymphoma) = WM. Anemia. At the same time, change Hydréa to Anagrelide and Brukinsa started 8 months after. No problems, just reduce the Anagrelide dose from 2/day to 1-2-1-2 ... /day (pellets too low with 2/d)). So no problem after 2 years and IgM ~0.0 now. It works very well for my Waldenström disease. Regards."
- Nor...
- Taken for 1 to 6 months
- May 18, 2025
For Waldenström Macroglobulinemia "On Brukinsa 2 months 2 pills am/pm Hgb up from 9.6 to 12.6 IGM down from 5200 to 1350. No more difficulty in breathing taking stairs. Energy and focus up doing a lot more. Normal muscle recovery after exercise. Large bruise on left arm from blood pressure cuff. 3x/week will go down to 2x/week. Small paper cut on finger bled a lot more. Small wound on sole of foot taking a long time to heal. Itchy skin rash on forehead using Cortaid. With Medicare and Kaiser California and being on low income PGE Care program cost $0.00 covered 100%. Otherwise cost would be annual deductible plus $234/month for the drug."
Frequently asked questions
- Jon...
- Taken for 2 to 5 years
- August 4, 2025
For Waldenström Macroglobulinemia "Tiredness, some joint pain, and bruising on my left forearm are the side effects I am experiencing. The drug is working on the disease, so all in all, right now the overall experience is positive."
- Bru...
- Taken for 1 to 6 months
- February 3, 2024
For Chronic Lymphocytic Leukemia "Already 4 months on Brukinsa. All enlarged lymph nodes have disappeared. Very minor side effect - upper right foot skin sensitivity. So far, it has worked very well for me."
- Ste...
- Taken for less than 1 month
- March 3, 2024
For Chronic Lymphocytic Leukemia "4 weeks so far so good. No side effects. Lymphs have gone down."
- Sim...
- Taken for 1 to 6 months
- May 20, 2024
For Chronic Lymphocytic Leukemia "Rash on face after 1st month; I started to cough out blood after 8 weeks"
- Ana...
- April 19, 2024
For Waldenström Macroglobulinemia "I have been taking it for 3+ months and have no bad side effects. It is reducing my M-spikes and most of my blood values have moved back into normal ranges. I couldn't be more pleased!"
- Ano...
- Taken for 1 to 6 months
- April 16, 2025
For Chronic Lymphocytic Leukemia "Dosage: 160 mg b.i.d. Significantly improved labs. Side effects have been manageable and include nausea, bruising, cough, musculoskeletal pain, constipation, and headaches."
- Ton...
- Taken for 1 to 6 months
- March 19, 2025
For Chronic Lymphocytic Leukemia "I've been on this treatment plan since December 28, 2024, and so far, well tolerated. Haven't had any side effects from it and was diagnosed with CLL!"
- joh...
- Taken for less than 1 month
- March 15, 2025
For Chronic Lymphocytic Leukemia "Been 3 weeks now. So far, pretty good, just a bit of nausea. Goes away after an hour or two."
- Anonymous
- Taken for less than 1 month
- June 3, 2024
For Chronic Lymphocytic Leukemia "At times, after taking Brukinsa, seem to feel tired."
- Bud...
- Taken for 1 to 2 years
- May 10, 2024
For Waldenström Macroglobulinemia "Taking it for over a year and I feel great. No side effects except some occasional bruising. IGM numbers are definitely lower than they were to start and approaching normal."
- Mon...
- Taken for less than 1 month
- November 20, 2024
For Chronic Lymphocytic Leukemia "I have just started my journey. (Second day on the drug.) I look forward to seeing the results as time moves along. I also look forward to hearing others' comments."
- Anonymous
- Taken for 1 to 6 months
- April 13, 2024
"Light headaches in the evenings, gas. Nothing major for the moment. Shrinking lymph nodes, shrinking spleen."
- Est...
- Taken for 1 to 6 months
- September 22, 2024
For Waldenström Macroglobulinemia "After 4 months, blood work improving, m protein levels dropping from 5000 down to 1700, with a hemoglobin rise. No appreciable side effects so far. 2 80 mg twice daily."
- rob...
- Taken for 1 to 6 months
- February 27, 2025
For Chronic Lymphocytic Leukemia "After 1 month, still very weak, dizzy, and shortness of breath. That's about the worst of it. White blood count still going up."
- Ste...
- Taken for 6 months to 1 year
- December 16, 2024
For Waldenström Macroglobulinemia "Started 160 mg twice daily 8 months ago, IgM down to under 1000 from 5000. Hemoglobin from 8.5 to 15... minimal side effects. So far, so good."
- raf...
- Taken for 1 to 6 months
- January 27, 2024
For Mantle Cell Lymphoma "Other than tingling of skin in my arms and occasional red spots that go away in about a week, I feel good."
- bru...
- Taken for 1 to 6 months
- April 17, 2025
For Chronic Lymphocytic Leukemia "Slowed down and maybe improved energy levels after approx. 90 tablets and six weeks. Recently had plastic surgery and the wound will not heal. Leaking blood still after 40 hours."
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"I take 2 capsules am and 2 capsules pm. 50 mg. They cause me quite testing moments with itch, particularly at night trying to sleep on the lower shins and ankles. It can keep me awake for hours sometimes in bed. I have tried various itch creams from the chemist, but nothing seems to work much. Is there anything for this itch? Also, I get small blood pimples that appear at times, and they can also itch. Occasionally, light bruising appears."