Ustekinumab for Ulcerative Colitis, Active User Reviews
Brand names: Stelara, Yesintek, Steqeyma, Wezlana, Starjemza, Otulfi, Selarsdi, Pyzchiva, Imuldosa
- Jay...
- Taken for less than 1 month
- July 3, 2025
"Had an infusion of ustekinumab 2 weeks ago. It has helped with the urgency of needing the loo, and I haven’t had an accident since, but the side effects for me are outweighing the good it appears to be doing. I am a very busy person, and at the moment I am struggling to get off the sofa. The fatigue is terrible. I also have joint pain, sore throat, hardly any voice, headache, and although my UC is debilitating and horrendous for me, this fatigue is debilitating beyond belief."
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"Have been using since July 2020. Easy to administer. Mild side effects (headache after injection), but worth it because of how well I feel. When I have UC symptoms now, things are better in a few days compared to before Stelara, when symptoms would last weeks."