Upadacitinib for Atopic Dermatitis User Reviews (Page 2)
Brand names: Rinvoq, Rinvoq LQ
Reviews for Upadacitinib
- Sar...
- Taken for 2 to 5 years
- February 17, 2025
Upadacitinib "Rinvoq has changed my life. I do not exaggerate when I say that. I take 15 mg per day, and within the initial weeks of taking the medication, my AD, which covered 90% of my body, had reduced down to nearer 10%. I have not used a steroid cream in 18 months, and my itch was gone within two days of starting the dose. If you miss a day, you do see it come back, so be mindful to take it on time. But after trying 5 other biologics, this has officially changed my quality of life. Initially, side effects included a fever and some nausea, these went away fast, but be aware it can happen."
- Mar...
- Taken for 6 months to 1 year
- September 20, 2024
Upadacitinib "I started Rinvoq about 10 months ago. I had chronic itching, usually had about 4 hours of sleep a night. Tried diets, medications, phototherapy, everything to help. The drug was life-changing for me, within 3 days, I was getting a straight 8 hours. When I started on the drug, I was also going through physio for back pain, it wasn’t perfect, but it was helping. However, over the last 6 months, it’s gotten worse and is now chronically painful. The level fluctuates, but it is always there. I’m currently going to see a chiropractor, but I have a feeling this drug is causing the muscle inflammation (I’ve also had steroid injections into my disks, MRI scans, and X-rays which show chronic inflammation in my lower back and hip). I had to come off for a week due to an infection, my skin started up within 48 hours. I’ve recently tried to lower the dose to every other day (I’m on 15 mg), but again, my skin started up again. I have a consultation next week, hoping for some help!"
Frequently asked questions
- What are the most common skin conditions? (with photos)
- What are the new drugs for rheumatoid arthritis (RA)?
- What is the MOA and half-life for Rinvoq?
- Aus...
- Taken for 1 to 6 months
- June 4, 2025
Upadacitinib "I started on a high dose of oral steroids over 4 weeks to get my skin to where it needed to be while simultaneously taking the lowest dose of Rinvoq. My entire body cleared up while on the oral steroids and stayed that way once weaning off them. Except for my face and scalp. 6 months now and my face, more specifically the eyes and bridge of nose, hasn’t changed. This area seems to clear up a little but then rebounds back to being dry/flaky and now my under-eye skin has split open. I also now get it on my scalp worse than I’ve had before as well. Side effects I’ve noticed: pimples, blind spots, blister-like sores; some are really painful. Burning cold sensation on the tops of my forearms. Abdominal pain which initially I thought was hunger pain so I started eating more and gained weight from it but I realized the pain doesn’t go away even with food. Investigation underway. Fatigue/brain fog. Be aware of your body and look out for side effects."
- Ano...
- Taken for 6 months to 1 year
- July 6, 2025
Upadacitinib "To say this drug was a game changer for me is an understatement. I have struggled with eczema for years, and it had gotten progressively worse as time passed. My quality of life tanked, as I couldn't sleep at night from the persistent itching, in addition to having splotchy red spots all over my body. I tried multiple steroid creams as well as Dupixent (injectable), and while it initially helped, the effects eventually wore off. Once I started Rinvoq, within two weeks, my rash had disappeared and my itching stopped. I've had minimal side effects from it, and my routine lab work doesn't show anything abnormal. I am so grateful for this medication, as it has changed my life for the better!"
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Your review helps others make informed decisions.- Don...
- Taken for 1 to 2 years
- February 19, 2025
Upadacitinib "I never realized how much I was truly suffering until I started taking 15 mg Rinvoq. Everything cleared up on my skin. Also had wonderful relief for gastro issues and IBD. Side effects are troublesome, but the relief I got outweighed the Jake and high cholesterol."
- Jim...
- Taken for 1 to 6 months
- April 20, 2025
Upadacitinib "I have been taking Rinvoq 15 mg daily for about a month and a half. It was the only one of several medications that improved and cleared up my skin condition. In the last week, however, I have developed strong tingling and numbness in both my arms, hands, and up into my rotator. I looked online and found several other people who had experienced the same issues and had to stop taking the medication. I'll be speaking to my doctor this week, but will stop taking the Rinvoq now to see if these side effects abate over the next period of time."
- Jen...
- Taken for 1 to 2 years
- May 26, 2025
"I started Rinvoq after suffering from chronic urticaria and eczema flares which were linked to my hormones. I tried Xolar, Dupilumab, dapsone, and dual treatments to no avail. Only prednisolone worked. I started on Rinvoq 30 mg and felt less itchy, but then after a few months, I started to get sick every month with the flu or COVID, and my stomach was very sore and swollen. I also had whooshing in my ears, my blood pressure increased, and hot flushes and sweats. I went down to 15 mg and still had high blood pressure and bad sweats, and then severe sensitivity to the sun, and my skin was slow to heal. I stopped Rinvoq a week ago, and my skin recovered immediately, and the sweats stopped, whooshing in my head stopped, and my stomach was not swollen. It was amazing. I sleep better, and all itching from heat and sun calmed. I would not recommend this drug at all."
- Anonymous
- Taken for 6 months to 1 year
- March 22, 2024
Upadacitinib "Rinvoq works and subsided my condition. But along with that I’ve experienced acne, weight gain, tiredness."
- Sop...
- Taken for 10 years or more
- October 8, 2024
Upadacitinib "Top product; changed my life; strongly recommend. Very easy to take. Prescribed by my dermatologist."
- mbi...
- Taken for 1 to 6 months
- January 31, 2024
Upadacitinib "It helped clear up welts all over my body but now it has caused dizziness and blood pressure issues."
- Mik...
- Taken for 1 to 6 months
- December 7, 2024
Upadacitinib "Never had any problems until the last couple of years. Could find no relief until the dermatologist suggested Rinvoq. Itching stopped within hours. Skin cleared within 10 days. I am so grateful."
- Ano...
- Taken for 6 months to 1 year
- April 15, 2025
Upadacitinib "It seems to help with the itching, but I have severe constipation, gas, and stomach cramps. I am still taking it."
- Ano...
- Taken for 6 months to 1 year
- April 15, 2025
Upadacitinib "It seems to help with the itching, but I have severe constipation, gas, and stomach cramps. I am still taking it. I also have weight gain."
- Ano...
- Taken for 1 to 6 months
- May 10, 2025
Upadacitinib "Cleared initial symptoms well, however, within 60 days had developed extreme acne on face, neck, and chest that did not respond to treatment."
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Skyrizi
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Dupixent
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Omvoh
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Upadacitinib "I have found no positive result with my eczema and am now concerned about my future health due to the risk of this medication and its side effects. Only natural creams would get rid of the issue! Not all medicine is good! Also, I was hit with shingles, another side effect of the medication, and now I have that to worry about forever. Not impressed. So many other things have been done, like trying to find any creams or steroids that would help me. Meaning, Rinvoq wasn't!"