User Reviews for Tamoxifen
Also known as: Emblon, Genox, Nolvadex, Nolvadex D, Soltamox, Tamofen, Tamone, Tamosin, Tamoxen, Tamoxifen Hexal
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Tamoxifen.
Reviews for Tamoxifen to treat Breast Cancer
"Diagnosed at age 40 (in 2012) with Stage IIa Invasive Ductal Carcinoma. E/P+ HER2 -"
AmyB123 August 15, 2017
1 users found this comment helpful.
"This drug is nonsense. They tell you the side-effects are minimal and easy to deal with - as long as you tell your doctor. Well, it's been three years and the only thing the oncologist has recommended for me is psychotherapy (apparently because I complain too much). Now I have to have a hysterectomy because I have "unusual" growths in my uterus. I look like I'm seven months pregnant and am now having to shop in the maternity department. I'm not pregnant, BTW. Evert joint in my body aches and I sweat at least a gallon a day. I've had to buy a new mattress and pillows since I ruined them (with night sweats). To top it off, my oncologist doesn't think any of this is caused by Tamoxifen. I am tearing out the little bit of hair I have left."
Tamoxitoxic (taken for 2 to 5 years) August 1, 2017
12 users found this comment helpful.
"I don't like this medicine. The more I took it the more I got side effects. I don't feel myself I'm going to ask my Dr if I can get off it. I've only been taking it for 1 year and I hate it."
Anonymous (taken for 6 months to 1 year) May 15, 2017
20 users found this comment helpful.
"I have been on Tamoxifen for about a year now. I have the hot flashes and the sweats, and oh yes the mood swings, but now I'm experiencing severe temporomandibular joint pain (TMJ). I'm wondering if anyone else has experienced this problem on this medication. If so what did you do to make it go away. 2 weeks of this condition is 2 weeks to long. Any advice would be greatly appreciated. Thanks so much for any suggestions you may have."
jwildwone (taken for 6 months to 1 year) May 1, 2017
14 users found this comment helpful.
"I've been on tamoxifen for 3 1/3 years. In the beginning I was fine, but as years went on I began time have extreme fatigue, feels like it's hard to swallow at times, anxiety, can't drive due to lack of focus, and hot flashes. Oh, I forgot that I gained a lot of weight and I take Zumba classes. I told the dr. that I'm having a hard time driving and he just dismisses what I say. The nurse said that there was another patient complaining about the same thing. I have 6 1/2 more years on this medicine. I'm doing my best!"
Lynn-survivor February 24, 2017
23 users found this comment helpful.
"I was on tamixifen for 5 years- It drove me into severe depression-I was delusional to the point of being in a psychiatric hospital for 1 year-no doctor at the time could find out why I was as I was! I had water retention-weight gain of 25 kilos, Fluid on my lungs-which caused coughing to the point I felt I was suffocating-insomnia, joint pain, nausea and hot flushes and to crown it all skin disorders of which the rash and sores made me look like I had HIV. Bicarbonate of Soda and Lemons and ginger have improved my health!"
pineapple1234567 January 16, 2017
17 users found this comment helpful.
"62 yr. old, white female. Stage 2. Tumor and some lymph nodes removed in Feb. 2015. Been on Tamoxifen for 6 days and now the side effects are draining me. Extreme tiredness, itching skin, headaches, arm and leg pain with numbness, dizziness, hot flashes. Having a war with myself about medications and alternative medicine. I was extremely ill with Arimedex, stomach pains radiating to my back. The unconcern of my Oncologist set me off to find alt. methods. I found an excellent alternative med. Dr. And we started cleaning out the estrogen from liver, kidneys, etc.. but having a problem eliminating body fat. My breast surgeon scared me into taking Tamoxifen. Alt. Dr. says there's always other things you can do. I'm torn."
Halfalive (taken for less than 1 month) January 5, 2017
19 users found this comment helpful.
"Just started this 10 days ago. I was so nervous because it seems everyone that posts has a negative side effect. I have none!! Maybe a warm night or 3 but that's been it. It passed 10 minutes later. I also take supplements so that could be helping too. D3, milk thistle, green tea to name a couple."
Stg2survivor November 15, 2016
30 users found this comment helpful.
"I was diagnosed with a small tumor on my left breast (stage one, grade one). Thankfully, early detection at age 41 made my experience much more smooth. The toughest part so far was the early tests and biopsies (only one malignant lump was found). The surgery was a breeze. Radiation was taxing, but I am so thankful that chemo was not necessary. So far, after 3 months of Tamoxifen, I've experienced only one side effect (the occasional hot flash). I have been very lucky so far and hope that cancer never comes back. I was so against taking Tamoxifen, but I am glad that I gave it a try. Stay strong everyone, and I hope this encourages other young bc survivors."
Thankful for Early Detection (taken for 1 to 6 months) October 30, 2016
56 users found this comment helpful.
"I found my lump before Christmas. It was in the milk duct, 2 surgeries weeks apart to remove both lumps, painful. Tamoxifen is horrible! Always sweating, barely sleeping. I already had a hard time with insomnia, now this drug has made things worse. Started taking this in April. I will start taking the drug in the morning instead of at night. Hopefully, I may be able to get some sleep through the night without having to change sheets nightly. After readIng the other posts, this explains my constipation, lack of energy. Will see what kind of meds or herbal product I can take for the hot flashes, getting unbearable."
Aunt. Fran (taken for 1 to 6 months) July 10, 2016
33 users found this comment helpful.
"Its one year im on Tamoxifen . I will manage all side effects that i have as hot flash, join pain , back pain , mood swing . My goal is to live longer and see my son's future . Im 46 year old . I try not to think about pain and side effects till im really get tired from pain . Only thing im scared is pain . The rest i will manage . Good luck to all of you ! Life is beautifull and fight for it ."
AngieKendrick July 4, 2016
41 users found this comment helpful.
"I have been taking Tax for 6months. I won't lie having a mastectomy was easier then the meds, but the alternative is worst . My biggest complaint is fatigue and moodiness , training for an Half Ironman has it's challenges but I think the daily training helps me in so many ways, I don't have joint pain and other major SE. I like the open discussion format as Doctor's are really up in all of the side effects as each person is different . It is nice to hear from others the mood swings , thought I was gong crazy... Hard on family for sure. I just keep on trucking ... Good to hear from others."
Boobya June 12, 2016
25 users found this comment helpful.
"I have been on Tamoxifen for three months. I was put on it because of my increased risk for developing breast cancer. I have had no side effects at all. I also feel much calmer and relaxed. Before my period I would get very emotional and moody. Since I no longer have periods, I no longer experience this. I seem to be craving candy, but probably just trying to blame my sweet tooth on something besides my lack of will power. I have also lost 8 pounds."
No problems April 20, 2016
45 users found this comment helpful.
"I was diagnosed with DC breast cancer in November 2014. After 6 chemo treatments, a double mastectomy and 33 radiation treatments, I have been on Tamoxifen for 7 months. The hot flashes are getting better at times, and I'm taking Gapapentin for my hot flashes, the back and hip pain is horrible , I have put on 20lbs, I go to the gym 3 to 4 times a week and ride my horse 3 times a week, but all forced . I feel bad pretty much all the time. Always sick to my stomach . Working out makes me feel more sick, but I push thru it anyway. No matter what I do I can't drop weight. I'm in the process of loosing my eyelashes for the 4th time . I use to have pretty, thick hair and now it's thin. My memory is horrible. I hate this life."
Vandygirl123 April 15, 2016
42 users found this comment helpful.
"I was on Tamoxifen for 5 years after a Mastectomy for Estrogen based Breast cancer. During the last years and ongoing I have been overwhelmed with fatty tumors. Some are growing at a rapid rate and some that were soft are turning hard?? They are on my rib cage, my abdomen, my legs and 1 or 2 on my arms. I seem to be the only one concerned."
Lisa C. (taken for 2 to 5 years) March 31, 2016
27 users found this comment helpful.
"I have been in tamoxifen for 5 months now and it truly is difficult to isolate the side effects of the drug alone due to the fact that I was peri menopausal prior to being diagnosed with Stage 2 breast cancer with micro metastasis in one lymph node. I am 52 years old. My primary complaint is insomnia. I have become a light sleeper, waking up 10-20 each night. While I am able to fall asleep again, I never feel as though I have had a deep, restful sleep. I take my tamoxifen in the morning after I brush my teeth. A year post diagnosis which included surgery (partial mastectomy), chemotherapy, 25 rounds of radiation and now tamoxifen, I have endeavoured to train for an Iroman race in August. I am getting stronger every day"
Josi and the Pussycats March 3, 2016
33 users found this comment helpful.
"Was for 5 yrs, increased to 10yrs, I'm in year 7. Had 3 lumpectomies within 3 month span, had chemo, radiation, plus 1 year of Herceptin for Ductal carcinoma in situ T2 HER2+ I am alive and plan on staying that way. After much research and talking to doctors, the conclusion is that Chemo and Tamoxifen seem to have precipitated other chronic illnesses, Chronic Fatigue, Fibromyalgia, OsteoArthirtis, Osteopenia, Clinical depression, Gastroenteritis, worsened IBS and PTSD. My legs, lower back & fingers are usually swollen and usually in pain. I wanted off the Tamoxifen, due to the weakness in my legs & Fatigue. No other was as effective in inhibiting estrogen. I still lose my hair, gained 130lbs, I'm in a wheelchair. I'm alive. 3 yrs to go"
Marilyn MM September 15, 2015
33 users found this comment helpful.
"I have been on Tamoxefin for 40 days... Here's my story: I was diagnosed with stage 1 breast cancer (98% estrogen fed) in Alr 2015. I did not need chemo or radiation. I was told after surgery (June 2015) that I had to take "Tomy" for 5 years. I fought the idea, but eventually decided to give it a try. So far, the main complaint I have is fatigue. I take it at night and that's helps... Some joint pain, vaginal discharge (clear mostly) and the BEST thing about Tommy is that it has calms me down. I am about 30% of the energized person I was before. I no longer get feel like I need to solve the worlds problems in a day! So, I can honesty say, that's a big plus! ... WEIGHT CHANGES: I became Vegan and did not loose any weight! :(("
Tough girl proven wrong September 14, 2015
51 users found this comment helpful.
"I have been on tamoxifen for almost a year now. I experience hot flashes. Which can be unbearable at times. I have joint pain which make it hard to walk. I also have gain about 10 to 15 pounds since I have been taking this medicine."
Pammy25 (taken for 6 months to 1 year) September 13, 2015
32 users found this comment helpful.
"I started taking Tamoxifen in September of 2013. The side effects kicked in after about a week. My fingers completely seized up and if I crouched down I couldn't get up again! The joint pain was unbearable so my oncologist decided to take me off it for 6 months. He then introduced it gradually, 10mg a day instead of 20mg. So far so good! After 6 months of that he put me back up to the full dose and the pain didn't return! I've been on it ever since. My periods are here and there but are quite heavy and painful when I do get them. I wish they'd just stop. Just keeping everything crossed that the cancer stays away. Good luck to all you fellow survivors and keep fighting the fight! "
Neekie (taken for 2 to 5 years) August 24, 2015
72 users found this comment helpful.
"I've been on this drug for nine miserable months now. I had said I would try it for one year and I'm not sure I can make that. It appears that quality of life is not something my doctor cares about. It's almost as if he's being paid by the tamoxifen people because he won't even listen to anything negative about the drug. My hot flashes are unbelievable. My joint pain makes it difficult to walk. I haven't slept in nearly a year. This drug makes life not worth living."
I hate Tamoxifen (taken for 6 months to 1 year) August 16, 2015
95 users found this comment helpful.
"I had Stage 1 IDC Breast Cancer, diagnosed in June 2013, mastectomies in August 2013, started tamoxifen October 2013. After experiencing stomach digestive issues I went off it in March 2014 until August, then back on and have been on it ever since. So almost 1 year straight, but another 5 months of it before that as well. My biggest complaint is feeling so wiped out by the end of the day. I take it at night when going to bed, usually 10pm-ish. Does anyone think switching the time I take the pill will matter? I have also noticed a 5-10 pound weight gain. I'm very active and fit - lift weights, run, do crossfit. I have found that the side effects of this drug are forcing me to live and eat cleaner to try and reduce them."
CarrieFitz July 27, 2015
52 users found this comment helpful.
"I have male breast cancer. I do find it uncomfortable to only read about ladies issues, but understandable. I have found that I feel depressed, and mood swings for sure. Upset tummy is common, so try to keep hydrated. Seem to get lethargic, tired around 3-5pm, but take my medication just before bed, 10-11pm. May consider changing this. Given the alternatives and worrying how my family would cope without me as the bread winner, makes the decision to continue to take it an easy one. I am not going to give in to it. I'm 59, and lost my brother to it aged 39. Played my first 70 min game of tennis today in 14 months, and really found it made a difference. So maybe keeping fit is one way of fighting back."
Silverfox 2 (taken for 6 months to 1 year) May 21, 2015
62 users found this comment helpful.
"I've been on Tamoxifen for a year now. A few joint aches but all in all not too many problems. When I started the medicine I was a Pescitarian( only at fish or seafood) I have maybe two hot flashes at night. I take my pill at 5pm daily. I too was told I need to be on it for 10 years. Considering the alternative, I don't have too many bad things to say about it. Glad to be cancer free!! Hope this keeps me that way. Turning 50 in three days!!"
Jillbean34 (taken for 1 to 2 years) January 19, 2015
68 users found this comment helpful.
"I'm on my 6th year taking Tamoxifen. I was on it for 5 years, and stopped - at that time it was thought I should only take it for 5yrs. A year after being off and the new research came out that I should do it another 5 years. I've been back on now for about 6 months and I'm seriously considering stopping. Side effects are so bad that I'm having a hard time getting through life. Mood swings and bone pain are my 2 main issues. The thing is, I'm cancer free and of course want to stay that way. I think that if my Doctors were more realistic (honest) about the side effects it would be a little easier to deal with them. Reading some of the statements here is helpful actually - I feel a little less alone."
Anonymous (taken for 5 to 10 years) October 23, 2014
114 users found this comment helpful.
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- Drug class: hormones/antineoplastics