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User Reviews for Tamoxifen to treat Breast Cancer

Also known as: Soltamox

Tamoxifen has an average rating of 4.9 out of 10 from a total of 59 ratings for the treatment of Breast Cancer. 22% of reviewers reported a positive effect, while 34% reported a negative effect.

Tamoxifen Rating Summary

4.9/10 average rating

59 ratings from 67 user reviews.

Compare all 181 medications used in the treatment of Breast Cancer.

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Reviews for Tamoxifen

Thankful for Early Detection · Taken for 1 to 6 months October 30, 2016

“I was diagnosed with a small tumor on my left breast (stage one, grade one). Thankfully, early detection at age 41 made my experience much more smooth. The toughest part so far was the early tests and biopsies (only one malignant lump was found). The surgery was a breeze. Radiation was taxing, but I am so thankful that chemo was not necessary. So far, after 3 months of Tamoxifen, I've experienced only one side effect (the occasional hot flash). I have been very lucky so far and hope that cancer never comes back. I was so against taking Tamoxifen, but I am glad that I gave it a try. Stay strong everyone, and I hope this encourages other young bc survivors.”

7 / 10
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Eve April 13, 2019

“My mom took this drug for 5 years, and in 2017 was diagnosed with a rare form of uterine cancer called uterine carcinosarcoma. Was her uterine cancer was caused by the tamoxifen? My mother was a beautiful 61 year old woman that was full of life but, sadly I lost her because of tamoxifen. They say its rare to develop uterine cancer from tamoxifen but I just lost my mom. It's not that rare do your research a lot of women have been harmed by this drug.”

1 / 10
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Anonymous · Taken for 5 to 10 years October 23, 2014

“I'm on my 6th year taking Tamoxifen. I was on it for 5 years, and stopped - at that time it was thought I should only take it for 5yrs. A year after being off and the new research came out that I should do it another 5 years. I've been back on now for about 6 months and I'm seriously considering stopping. Side effects are so bad that I'm having a hard time getting through life. Mood swings and bone pain are my 2 main issues. The thing is, I'm cancer free and of course want to stay that way. I think that if my Doctors were more realistic (honest) about the side effects it would be a little easier to deal with them. Reading some of the statements here is helpful actually - I feel a little less alone.”

7 / 10
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I hate Tamoxifen · Taken for 6 months to 1 year August 16, 2015

“I've been on this drug for nine miserable months now. I had said I would try it for one year and I'm not sure I can make that. It appears that quality of life is not something my doctor cares about. It's almost as if he's being paid by the tamoxifen people because he won't even listen to anything negative about the drug. My hot flashes are unbelievable. My joint pain makes it difficult to walk. I haven't slept in nearly a year. This drug makes life not worth living.”

1 / 10
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Jules · Taken for 6 months to 1 year February 25, 2019

“About 3 weeks after starting tamoxifin, I would wake up at night with night sweats and just insomnia and I noticed that I was definitely more hungry and craving junk food which in turn caused me to gain about 5 pounds. I could have lived with these side effects but then I started flying off the handle with my children at the drop of a hat. My reactions were crazy. I am normally generally mellow and easy going. Then after about 4 months I noticed I was having trouble focusing at work and was in a brain fog. It was mild at first but continued to progress to where I would fall asleep regularly at my desk. I decided for the sake of my new job, I am a widow and sole provider, that I needed to go off off it for awhile. After about 2 weeks my life started returning to normal. I occasionally try to take it again but then after a few weeks of starting it the side affects return. I really wish more options were available to me to prevent the recurrence of breast cancer.”

4 / 10
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DOLSSON · Taken for 1 to 6 months January 29, 2014

“I have been on Tamoxifen for four months now & have been told I will be taking it for the standard 5yrs. I have had hot flashes, no period (that stopped after my second Chemo in April 2013), sex drive has disappeared (also from Chemo & Tamoxifen combined) and I have had pelvic pain (tend to be more apparent when I lay on my back), joint pain(in my elbow and where legs join pelvic) and lower back pain. I am hoping that some of these side effects will soon subside. Wow, it is amazing all the different side effects that Tamoxifen causes for people. Reading a lot of these comments has made me now realize that all the pains & aches I have been having, truly are side effects from the Tamoxifen. It's nice to know I'm not alone! ”

4 / 10
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Maria 62 February 4, 2018

“I have been on tamoxifen for nearly 5 years now , and can honestly say I have not experienced any side effects , I have opted to carry on taking this drug for another 5. years to prevent my breast cancer returning, I do have a bit of trouble sleeping but I am putting that down to going through the change . Reading the comments on here I think that I am 1 of the lucky people that it hasn’t had a horrible effect on .”

8 / 10
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10095 · Taken for 2 to 5 years March 5, 2018

“I had Breast Cancer in 2004 Ductal in situ so I was very lucky I had a breast removal then radiation and 5 years on Tamoxifen. I was 48 at the time but very fit and had already gone through an early menopause so the drug did give me symptoms although I had not suffered any when going through the menopause I had hot flushes mild night sweats mood swings and put on a lot of weight! But it was all worth it to survive and I soon got my figure back when I stopped it after 5 years. All I would say is treat these side effects as the menopause and you will find they ease. Avoid spicy, food, alcohol and wear layers of clothes so when you get hot you can slip something off. Stay very active my own weight gain happened when I slowed up my exercise also I found sage tea very good for cooling down. Please, Ladies, stick with it and stay well”

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MK · Taken for 1 to 6 months January 20, 2019

“Was on tamoxifen for five hellish weeks and had every side effect except hot flashes. My body hurt, I couldn't sleep, I was angry all of the time so my oncologist wisely agreed with my decision to stop the drug. Quality of life was so bad.”

1 / 10
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Neekie · Taken for 2 to 5 years August 24, 2015

“I started taking Tamoxifen in September of 2013. The side effects kicked in after about a week. My fingers completely seized up and if I crouched down I couldn't get up again! The joint pain was unbearable so my oncologist decided to take me off it for 6 months. He then introduced it gradually, 10mg a day instead of 20mg. So far so good! After 6 months of that he put me back up to the full dose and the pain didn't return! I've been on it ever since. My periods are here and there but are quite heavy and painful when I do get them. I wish they'd just stop. Just keeping everything crossed that the cancer stays away. Good luck to all you fellow survivors and keep fighting the fight! ”

7 / 10
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Tamoxitoxic · Taken for 2 to 5 years August 1, 2017

“This drug is nonsense. They tell you the side-effects are minimal and easy to deal with - as long as you tell your doctor. Well, it's been three years and the only thing the oncologist has recommended for me is psychotherapy (apparently because I complain too much). Now I have to have a hysterectomy because I have "unusual" growths in my uterus. I look like I'm seven months pregnant and am now having to shop in the maternity department. I'm not pregnant, BTW. Evert joint in my body aches and I sweat at least a gallon a day. I've had to buy a new mattress and pillows since I ruined them (with night sweats). To top it off, my oncologist doesn't think any of this is caused by Tamoxifen. I am tearing out the little bit of hair I have left.”

1 / 10
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No problems April 20, 2016

“I have been on Tamoxifen for three months. I was put on it because of my increased risk for developing breast cancer. I have had no side effects at all. I also feel much calmer and relaxed. Before my period I would get very emotional and moody. Since I no longer have periods, I no longer experience this. I seem to be craving candy, but probably just trying to blame my sweet tooth on something besides my lack of will power. I have also lost 8 pounds.”

10 / 10
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Mel · Taken for 1 to 6 months December 18, 2019

“I had grade 1 breast cancer in Feb and had lumpectomy and 2 lymph nodes removed. I had good news in June that they were all clear after radiation. I'm now been on tamoxafen since July. At first there was no side effects. Then the sweats got worse, I had trouble sleeping, pain in my back and fingers. Then I had a cramp like pain in my leg. I had the all clear from GP that leg was fine. I went to Mexico in August and and my both legs were so painful that I had to limp. In the mornings that I came home and went straight to a&e where I was told I had blood clots in each lung and the right one inflamed. I'm now on blood thinner injections for 6 months and may need tablets after that, all because of tamoxafen I was told. Anyone else experienced this?”

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Jillbean34 · Taken for 1 to 2 years January 19, 2015

“I've been on Tamoxifen for a year now. A few joint aches but all in all not too many problems. When I started the medicine I was a Pescitarian( only at fish or seafood) I have maybe two hot flashes at night. I take my pill at 5pm daily. I too was told I need to be on it for 10 years. Considering the alternative, I don't have too many bad things to say about it. Glad to be cancer free!! Hope this keeps me that way. Turning 50 in three days!!”

9 / 10
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tlcreath September 1, 2010

“Though this medicine may give you a chance at living longer, the mood swings are massive. I feel depressed and have no energy. I am always nauseous. Everything hurts. My sex drive is basically gone and my periods are slight if not altogether absent. I have shrunk inside a bit so now sex is painful. I have hot flashes that keep me awake at night and make me very unhappy during the day.”

1 / 10
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Anonymous March 19, 2014

“I'm 29, was diagnosed with Breast Cancer when I was 26. I probably have been on Tamoxifen for a year. I have a hard time taking it regularly because of the side effects. The hot flashes are almost unbearable, my mood swings push people away, my sex drive has decreased extensively. I am taking this medicine to prevent my cancer from returning. I have a 3 year old boy that I live and breath each day for and the reason I will continue taking medicine. But Tamoxifen does make me miserable.”

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Moore · Taken for 1 to 6 months September 3, 2018

“I was diagnosed for her2-positive breast cancer and October of 2017 I went through chemo as well as radiation chemo which was a horrible radiation that my body tolerated 4 months ago. I was introduced to this drug tamoxifen. I've been feeling horrible every since. I feel like I have had a stroke on my right side my brain hurts I have trouble thinking even completing daily tasks. I wake up to dizzy spells and hot flashes. Blurred vision, change in color vision, stomach pain, Headache.Hot flashes, vaginal discharge. Pain or bone pain. Loss of interest in sex Trouble with sleeping. I will not continue treatment it's not worth it.”

1 / 10
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Stg2survivor November 15, 2016

“Just started this 10 days ago. I was so nervous because it seems everyone that posts has a negative side effect. I have none!! Maybe a warm night or 3 but that's been it. It passed 10 minutes later. I also take supplements so that could be helping too. D3, milk thistle, green tea to name a couple.”

8 / 10
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Anonymous September 12, 2018

“I took Tamoxifen for 3 years. I took myself off of it because of the painful side effects. They began within 3-4 months after starting the med. The worse for me was the bone pain that would be so severe that it would wake me up during the night. Also the severe pelvic pain would be so severe at times it would literally bring me to my knees suddenly. I eventually took myself off the Tamoxifen and within a few weeks all side effects were gone. Within a few months I started to fracture bones and developed osteopenia. 5 years later I am borderline osteoporosis and the cancer never really left. Someone mentioned having pain in their jaw. Now they want me to take Tamoxifen or an aromatase inhibitor again. I am considering taking one of the above only 2-3 days a week. Has anyone done that I would appreciate it if anyone has a comment on taking less of a dosage or less frequency. Thank You”

1 / 10
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Silverfox 2 · Taken for 6 months to 1 year May 21, 2015

“I have male breast cancer. I do find it uncomfortable to only read about ladies issues, but understandable. I have found that I feel depressed, and mood swings for sure. Upset tummy is common, so try to keep hydrated. Seem to get lethargic, tired around 3-5pm, but take my medication just before bed, 10-11pm. May consider changing this. Given the alternatives and worrying how my family would cope without me as the bread winner, makes the decision to continue to take it an easy one. I am not going to give in to it. I'm 59, and lost my brother to it aged 39. Played my first 70 min game of tennis today in 14 months, and really found it made a difference. So maybe keeping fit is one way of fighting back.”

8 / 10
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Guardian angel 43 July 11, 2013

“I was on Tamoxifen for 4 1/2 years after I had my chemo. There were a lot of side effects after stopping estrogen, dry skin, loss of libido, edgy feeling. When I started taking Tamoxifen I felt much better. I didn't feel edgy as the Tamoxifen tricked my body into feeling like it had estrogen. I had hot flashes but did not feel them. My friends would tell me I must have had a hot flash because my face turned red, I highly recommend this medicine. I felt much better on it.”

10 / 10
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AngieKendrick July 4, 2016

“Its one year im on Tamoxifen . I will manage all side effects that i have as hot flash, join pain , back pain , mood swing . My goal is to live longer and see my son's future . Im 46 year old . I try not to think about pain and side effects till im really get tired from pain . Only thing im scared is pain . The rest i will manage . Good luck to all of you ! Life is beautifull and fight for it .”

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Anonymous March 4, 2010

“I have been on Tamoxifen for 10months now..I have had hot flashes, night sweats, mood swings, heavy menstrual bleeding, discharge, headaches and now back pain. But I want to decrease my chance of possibly getting invasive Breast Cancer or DCIS in my other breast..so will continue to take it.”

5 / 10
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K929 · Taken for 1 to 2 years August 8, 2019

“I was diagnosed with breast cancer stage 1a idc at 39 yrs old. I know this is an important part of my treatment and reoccurrence prevention but this drug makes me feel awful. You name the side effect I have every single one. There has to be a better option.”

4 / 10
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Vandygirl123 April 15, 2016

“I was diagnosed with DC breast cancer in November 2014. After 6 chemo treatments, a double mastectomy and 33 radiation treatments, I have been on Tamoxifen for 7 months. The hot flashes are getting better at times, and I'm taking Gapapentin for my hot flashes, the back and hip pain is horrible , I have put on 20lbs, I go to the gym 3 to 4 times a week and ride my horse 3 times a week, but all forced . I feel bad pretty much all the time. Always sick to my stomach . Working out makes me feel more sick, but I push thru it anyway. No matter what I do I can't drop weight. I'm in the process of loosing my eyelashes for the 4th time . I use to have pretty, thick hair and now it's thin. My memory is horrible. I hate this life.”

1 / 10
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This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.

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