Cosentyx and Headaches: What Users Say

• Anonymous
• Taken for 6 months to 1 year
• January 7, 2021

For Ankylosing Spondylitis "I started with Humira, had that for 3 years, then out of the blue, it stopped working. Was then on Benepali and got an allergic reaction to it (eczema under my feet and on my hands, etc.). Was on no drugs whatsoever for 4 months after that (and had the worst pain ever, even worse than how it was before I started with Humira). Then I started with Cosentyx, and it has so far - knock on wood - worked great. I am absolutely pain-free and have more or less no side effects. 'More or less side effects'... I have had the same side effects of all of these drugs (except the allergy). I am fatigued, and every now and then I have some bowel problems and headaches. But I can live with that because I am nevertheless feeling better than with no treatment, and even the fatigue I get from the disease is worse than the fatigue from the treatment. This disease will never go away, and I'm just happy that there are some treatments that actually work."

• Anonymous
• Taken for 1 to 6 months
• January 15, 2017

For Psoriatic Arthritis "Experienced headaches, exhaustion, and UTI symptoms while on this drug. Also, several areas of psoriasis seem worse, redder, and painful. Did help slightly with accompanying joint pain but not enough to warrant tolerating the side effects."

• Dan...
• Taken for less than 1 month
• July 31, 2021

For Non-Radiographic Axial Spondyloarthritis "I have psoriatic spondylitis that is now worsening over the last two years to PSA. Cosentyx was the first drug I started on. I found the injection hard to push in without it burning. The biggest things that hit me within a couple of days were bone-crushing fatigue that had me holding onto furniture and the wall and bedbound by day 4. I ran labs and it tanked my B12 by 400 points within a week. I also have hormone records at the time, and my testosterone and thyroid took a nosedive AFTER one dose of this injection. Then the headaches, vision issues, and pain, though not as severe as the fatigue, were worrisome. I decided to stop the drug at that point. Any drug that is hitting me in multiple spots and is keeping me from performing my responsibilities is NOT a drug I will continue to inject in myself."

• Anonymous
• Taken for 1 to 6 months
• April 8, 2023

For Psoriasis "I have just recently started Cosentyx injections on 7th Feb. I've done the starter pack for 4 weeks, which was 2 injections per week, and now the monthly dose of 2 injections per month. I've had a few side effects including headaches, tiredness, weight gain, night sweats, mouth sores, and frequent urination without burning. I'm trying to give this medicine a chance to get positive results from pustular psoriasis on my foot, as the blisters are unbearable and painful. I can't even walk when I have a flare, but I'm praying this medicine will help me."

• Fan...
• Taken for less than 1 month
• September 5, 2025

For Psoriatic Arthritis "So far, it's going well. I am beginning to notice an improvement in my tendonitis and joint pain. I have a headache, sore throat, and loss of appetite, but these are manageable, and I've only had two injections so far."

• Anonymous
• Taken for 2 to 5 years
• June 23, 2022

For Psoriasis "I've been on Cosentyx for 2 years now, has helped with psoriasis greatly but does nothing for my psoriatic arthritis. Injection day I get a bad headache, aches, and fatigue."