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Kisqali for Breast Cancer, Metastatic User Reviews

Kisqali has an average rating of 8.5 out of 10 from a total of 23 reviews for the treatment of Breast Cancer, Metastatic. 83% of reviewers reported a positive experience, while 4% reported a negative experience.

Kisqali rating summary

8.5/10 average rating

23 ratings from 24 user reviews.

Compare all 49 medications used in the treatment of Breast Cancer, Metastatic.

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Reviews for Kisqali

  • Anonymous
  • Taken for 1 to 6 months
  • March 6, 2023

"Have been on Kisqali for two months. In the first week, three tablets every day but due to side effects of diarrhea, nausea, and fatigue reduced it to one. Still suffer the above but not as severely. I do have Fulvestrant injections on monthly basis. I am hoping with perseverance side effects will decrease. I had breast cancer twenty-five years ago with metastasis in the last twelve still not on the organs. I am 83 years old."

5 / 10
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52 Report
  • Cindy
  • Taken for 2 to 5 years
  • April 22, 2023

"I have been taking Kisquali since 1/3/20 and it is now 4/23. I'm experiencing unexplained blurry and double vision, yet the oncologist isn't aware of this side effect. Add to that, when you research this product online and side effects such as blurry vision in hazy vision, it is nearly impossible to find anything from real people and their experiences on Kisqali. I recommend this drug to anyone who has metastatic breast cancer. Please be proactive in your health journey because most oncologists are not always aware of the full side effects."

8 / 10
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36 Report
  • MJano
  • Taken for 2 to 5 years
  • November 6, 2019

"I started a trial on ribociclib (Kisqali) in July of 2017. Two plus years later, I am still stable after seeing a steady decrease in the size of my marker nodes for the first 18 months. Side effects for me have been minimal, and my quality of life is excellent!"

9 / 10
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100 Report

Frequently asked questions

  • Quick...
  • Taken for 1 to 6 months
  • January 24, 2021

"Metastatic BC tumour showed up behind sternum. I’ve been on medication for almost 2 months. Expected the worst but no negative side effects whatsoever. So far bi monthly blood work and ECG’s give me the green light. WBC count within range. I take 600 mg Kisqali along with 2.5 mg Letrozole. Then hit the mountain and hike for an hour. Feel great. Still work part time. I’m 65. I hope this continues."

10 / 10
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73 Report
  • Thrifty
  • Taken for 1 to 6 months
  • May 17, 2019

"On Kisqali for breast cancer mets and after 3 rounds the tumor markers are down and one lesion in left rib has completely cleared up and another in the sternum has shrunk from 4 cm to 2 cm. Lots of side effects but minor compared to IV chemo which I had 15 years ago. Some hair loss, constipation, joint pain, blurry vision on occasion. Still give it 10 out of 10"

10 / 10
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86 Report

Are you taking this medicine?

  • Anne
  • Taken for 6 months to 1 year
  • June 1, 2023

"I had BC 17 years ago it returned in my lungs in 2022. I’ve been on Kisqali and Aromasin for 9 months. My tumor marker is now down to 50, from 167 when I started, I do not have any organ metastasis, just a few tiny lesions in L4 and L5 which have since mostly gone. I have a Zometa infusion every 90 days. I had no side effects for the first few months, however I feel like this drug and it’s side effects are cumulative because now I have neuropathy and my ears are ringing very loudly, although it is not consistent every day. I have no stomach issues at all, some blurry vision now and again and mild dizziness periodically. I do get short tempered, but again not all the time. Overall Kisqali and Aromasin has worked for me and I hope it will continue to work, I live a reasonably active life and I am very grateful for these drugs and I have no hesitation in recommending them to anybody who is in the position I am in."

9 / 10
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25 Report
  • Mumsy
  • Taken for 2 to 5 years
  • March 16, 2021

"I have been on Kisqali since September 2018, with no disease progression . Tumour markers in the “normal” range. Side effects; nausea, diarrhoea, joint pain, some hair loss in the early stages, the occasional rash or skin sensitivity, fatigue. Having said all of this I am living my life, working full time and travelling when possible ....life is good!"

10 / 10
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52 Report
  • AmyPic
  • Taken for 1 to 6 months
  • March 4, 2024

"Two breast tumors and bone metastasis, and started with Anastrozole and radiation to the bone area because they were close to breaking. After radiation, continued Anastrozole and started Kisqali, but had to quit in the third cycle due to acute liver problems. I lost 22 pounds during Kisqali. I was moved to Ibrance plus daily Anastrozole, which I have been taking for 27 months thus far. Bones with metastasis are regenerating. Ibrance works. One tumor is scar tissue in MRI, second almost gone. After the two rounds of Kisqali, they did see shrinkage of the breast tumors, and at the time felt it was too bad Kisqali gave me liver problems. I am glad there are alternative treatments."

8 / 10
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8 Report
  • plutt...
  • Taken for 1 to 6 months
  • February 7, 2018

"I made it 5 rounds before my liver enzymes just wouldn't go down. It shrunk everything by at least half! My RBC and neutrophils are right on the line. Not sure what's next for me -- I was on the Kisqali/Femara combo with monthly injections of Xgeva and Zoladex. I struggled with constipation and dried out everything -- but that might be from being forced into menopause. If you happen to be on this combo: Some hair thinning, unexplained blurry and double vision, rage!, dementia, balance problems, sleep problems, and thyroid issues -- but from what I've heard, a million times easier than old school chemo. (I have had a brain MRI and it was all clear) Stage 4 de novo, ER+ Her2- Original tumor 8cms with mets to ribs and hip"

8 / 10
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79 Report
  • DMano
  • Taken for 2 to 5 years
  • November 9, 2020

"De novo diagnosis 3/21/18, started 600mg with 2.5 mg Femara on 3/23/18. Single bone met on right humeral head. Complete remission in July 2019 (after 16 months). 32 months since diagnosis, still clear scans. Some hair thinning at first, along with occasional nausea, blurry vision ( mostly in the am) joint pain and fatigue. Fatigue is the worst part for me, but my quality of life has not changed at all."

10 / 10
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46 Report
  • Diana
  • Taken for 1 to 6 months
  • November 5, 2023

"The first couple of months were rough as far as tolerating it. Now at month 6, I am doing much better. I have lost a lot of hair including eyebrows, eyelashes, pubic hair, leg hair, etc. I can live with that as long as the drug is working and I am alive. I have lost weight as sometimes food just doesn't taste right and I don't want to eat it - other days food is fine. The doctor asked if I wanted to switch to another drug, but I declined. As long as Kisqali is working, I will work through the symptoms. The bad news - I will be on this for a minimum of 5 years, maybe longer. I am 82 years old and will do whatever is necessary. Thank goodness for my excellent health insurance."

8 / 10
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11 Report
  • Chris...
  • Taken for 1 to 6 months
  • March 23, 2024

"I am on 400 mg Kisqali, a reduced dose because my QTc is marginally long. It has been okay – better than Verzenio in terms of fatigue, not as good as Ibrance in terms of side effects and effectiveness. I have been on it for two cycles. So far, no signs that it is working. Staying on it for two more cycles before another PET/CT to see if it is shrinking tumors, especially one that is pressing on my lung and caused atelectasis. Nervous because other meds have worked immediately, dramatically, and this is not. I have read that Kisqali may take longer to kick in. Fingers crossed because next is chemo. Kisqali is supposed to be more effective than other CDK4/6 inhibitors and to work for a longer time. I find it easy to use, and side effects are tolerable. My blood counts are normal, my QTc is not too high. A little eczema, quite a bit of fatigue, but not the kind that knock you down. Just taking naps."

7 / 10
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5 Report
  • Mum
  • Taken for 1 to 6 months
  • May 22, 2024

"I was previously on Ibrance 100mg for nearly three years when it stopped working. My doctor put me on Kisqali about one month ago. I noticed having less fatigue and brain fog. Too soon to know how well it is keeping my cancer from progressing."

8 / 10
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2 Report
  • Anonymous
  • Taken for 2 to 5 years
  • December 10, 2021

"Have been on Kisqali since May 2017 with no progression. First diagnosed January 2011 and metastatic September 2016 with tumor on L3 vertebrae - 10 rounds radiation. Started anastrozole November 2011 and will never go off. No problems other than hair thinning and occasional fatigue. Only down side is my co-pay"

10 / 10
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24 Report
  • Jenn
  • Taken for 1 to 6 months
  • March 21, 2024

"I started on Kisqali after finding out I had de novo breast cancer which had metastasized to my bones. My first dose was in September. I am still taking it now in March with significant improvement with my scans. I do have the side effect of thinning hair but that's it."

10 / 10
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4 Report
  • Georgia
  • Taken for 6 months to 1 year
  • May 19, 2023

"9 months taking Kisqali. Scans show no progression. Side effects I have experienced are a skin rash, some hair loss, hallucinations and or nightmares, stomach pain after taking pills last about 1/2 hour, and a dry mouth. Otherwise, they are very easy to take. I take 400mg daily"

10 / 10
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11 Report
  • cindy
  • Taken for 1 to 2 years
  • September 28, 2023

"I have been on Kisqali and fulvestrant for probably a year now for breast cancer with metastasis to the lungs. My cancer number has gone from over 100 to 36. It seems that my hair is thinning a lot more. No nausea, vomiting, or other side effects. Maybe anxiety, but not sure if it is that or other meds. My vision is also becoming distorted. I can still see, but it is more blurry."

9 / 10
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6 Report
  • Beatr...
  • Taken for 5 to 10 years
  • December 21, 2023

"I've been on Kisqali + Femara for 6 years, with no side effects other than low blood cell counts. A very easy medicine to take. I have bone mets and I am thrilled that there has been no disease progression since I began this course of treatment, and the severe pain I had in my back went away within a few months of starting the meds."

10 / 10
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4 Report
  • lobular...
  • Taken for 1 to 2 years
  • December 15, 2023

"Reduced tumor presence significantly. Now 20 months on it. After initial dramatic CA27.29 decrease, now seeing a slow upward trend. Have dry eyes, alopecia, increased AST/ALT, constant headache, vaginal dryness, right-sided low rib pain, bruise easily, bone pain, and muscle strength loss. However, oddly, I feel much better than this written description indicates."

7 / 10
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4 Report
  • Juneday
  • Taken for 1 to 6 months
  • May 26, 2018

"I've completed 5 cycles of kisqali with monthly injections of faslodex and zometa. Kisqali has been great with the only side effect being constipation."

9 / 10
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70 Report
  • Patti
  • Taken for 6 months to 1 year
  • September 27, 2020

"Been on Kisqali (ribociclib) since November 2019 and had minimum side effects. Tumour markers continue to drop. Will be having a PET scan soon. Will get back with results."

10 / 10
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39 Report
  • Sunday
  • Taken for 1 to 6 months
  • July 9, 2022

"Completed 5 rounds with no side effects but now my bilirubin is a little high so dosage decreased to 400mg. Hoping and praying bilirubin goes down so I can keep taking this miracle drug."

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18 Report
  • Cara
  • Taken for 6 months to 1 year
  • October 1, 2021

"Kisqali worked at first. All my numbers went down. Then they spiked up all at once."

3 / 10
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21 Report
  • Anonymous
  • Taken for less than 1 month
  • February 26, 2021

"With Breast Cancer, Metastasis I am feeling very much better, while using Kisqali. But do have body pains but that can be manageable. Now I can easily run my job and home affairs."

8 / 10
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22 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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