User Reviews for Botox to treat Migraine Prevention
Botox has an average rating of 6.1 out of 10 from a total of 136 reviews for the treatment of Migraine Prevention. 52% of reviewers reported a positive experience, while 37% reported a negative experience.
Reviews for Botox
"It has been 3 months since my botox injection for migraines. And I am so sick: dizzy depressed insomnia anxiety extreme fatigue head feels like it is going to explode. I always feel like I want to throw up. My blood pressure is 100 over 50. Nothing relieves my pain. The neurologists actually yelled at me when I told her how sick I was. She said no way was it the Botox. Botox makes me nauseous I can't stand up. I just want it out of my body. Wish I never did this. I'm so scared"
"Botox for migraines ruined my life. I lost my ability to swallow, lost control of my neck muscles, breathing difficulty, dry eyes, drooping lids, severe stomach cramping, vomiting, diarrhea, waking up through the night not breathing, body was in a constant panic attack for 5 months, rashes, tingling, spasms, high heart rate, low grade temp, the list goes on. The nerves never healed to my esophagus and now I'm 2 years out on a pureed diet at 31. Please read about the black box warning and side effects because I sure wish I did."
Frequently asked questions
- Where do they inject Botox for migraines?
- Does Botox for migraines also help with wrinkles?
- Dysport vs Botox: What's the difference?
- How many units of Botox are used for migraines?
"After 18 years of chronic cluster migraines, lasting 2-5 days each and occurring 2-3 times a month, I think that I have used every medication possible for prevention with no luck. Then every possible nasal spray, injection, and medication to end the migraine, they got better, but never went away and when I did not have a migraine I still had a headache. I had 3-4 days a month when I felt no pain in my head. I have just had my 4th Botox treatment, so at the 1 year mark, my migraines are mostly gone, maybe 1 during the 3 months and only lasting 2 days max. I have some soreness in my neck for a day or 2 after my Botox, but this cannot even compare to my chronic cluster migraines. I did not ever think that anything would give me this kind of relief."
"The Botox not only was highly ineffective for me, but also left me with horrible neck and shoulder pain. My first Botox was over a year ago, a week after that I woke up with a frozen neck and shoulders pain. I was waiting for the 3 months mark for a relief, but it never came. It seems that the muscles that were injected became paralyzed and other ones started overcompensating, and thus became very tight and painful. Neck MRI came normal. 4 months ago I was talked again into the Botox and the neck pain got only worse. On top of that I am having this horrid nerve-like pain on the left side of my head. Besides, the Botox never helped with my migraines. So please be careful, cause you may end up worse than before..with a new kind of pain."
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"It has been 15 months since my only botox injections of 151 units. My headache is 1000 times worse than before the botox. No meds help. Lost about a foot of my hair. Nauseous anxiety insomnia chest pains ringing in ears feels like boa constrictors is squeezing my arms hard to swallow. It took my happiness away. Can't even get a botulism poison test. U have to go thru the CDC. And if you're not on a ventiltor at the ER then no test. The doctors lie to us to line their pockets and we are thrown to the curb. How do they sleep at night?"
"My migraines became so severe and frequent that I was taking more abortive medications than my insurance covered. I also tried countless preventative medications but could not cope with the strange side effects of these pills. Four years ago, I started seeing a different neurologist at the military hospital and she recommended trying Botox injections. At first, I was quite hesitant. My first set of injections were practically painless. The sensation is similar to plucking eyebrow hairs, but nothing like getting a bikini wax! I've continued Botox every 3 months and my headaches are down to maybe 1 per month and they no longer affect my life as a busy mom. Botox has been a miracle for me!"
- How much does Botox cost?
- How does Botox work for migraines?
- How long does Botox last for migraines?
- What is the new FDA-approved alternative to Botox?
"I had a horrific response to the Botox I had for migraines. I ended up 5 days in the ER after most recent set of injections. Severe heart palpitations, low blood pressure, difficulty breathing, feeling faint, weak, dizzy, rash all over my body, muscle weakness, difficulty swallowing, tightness in my throat, severe dry mouth, tingling in my hands, feet, limbs, etc. I will NEVER get these injections again. There have been days I can barely get up, so severely fatigued and weak. Stabbing random pains, difficulty sleeping, chest tightness and pain, back, head and neck pain, it has completed halted my way of daily life. Severely puffy eyelids and one is droopy. It has been almost a month since injections and I am still no where near normal. I was told the only thing they can offer me is life support at the hospital if I stop breathing on my own. This has been terrifying. It has caused sudden extreme anxiety, which I didn't have at all before. My neurologist made it sound like the worst that could happen is a droopy eyelid."
"wow! I am shocked by how many other lives have been destroyed by the Botox injections for headaches or migraines. I am also one of the victim (assuming the lucky one) who is 90% back to normal after 3.5 years of which the first two years I was almost disabled from the horrific side effects of 200 units for HD's. This drug must be banned by FDA. I am lucky to recovered after spending fortune travelling to Mayo Clinic getting care from the best doctors on planet. I hope everyone suffering would find a relief. I wish we could report these to FDA so this drug would be just a last resolution not the first go to HD treatment."
"I was referred to a specialist after 20 years of migraines. She spoke with me about botox for migraines which at that point in my life I was desperate for any cure. The day I had it done I had a severe migraine. The neurologist told me it would be more painful and it would probably make my side effects worse BUT that it would only last a couple weeks at max. It lasted 3weeks of stiff neck and soreness. But after a month it was worth the soreness and stiff neck because the botox kicked in and for some reason helped me stay migraine free for a whole YEAR!? I'd recommend this to anyone desperate for some relief."
"I had migraines for years. I tried Imitrex and similar meds but ended up with rebound headaches. It was a vicious cycle. Narcotic meds also did not work. Botox was a miracle for me. Within two weeks my migraines had disappeared entirely! The Botox lasted for 4-6 months. I changed neurologists though last month and he had a different method of injection, using twice as much Botox (200 units instead of 100). Two days later I developed horrible neck pain that progressed from sore to being barely able to hold my head up. I could not look down, bend, brush my teeth, or even turn my head. My head felt as if it weighed 200 pounds. Doctor said it would go away in 2 weeks! 10% of folks get this "side effect." I am still suffering."
"Botox is your last resort, they said. Before botox I had 3-4 migraines a week. I didn't like the frequent medicine but I could usually catch it early and hadn't vomited for years. 32 botox shots prescribed at my 1st appointment (kickbacks, anyone?) and 3-4 migraines/week turned to 6-7/week. I managed to avoid sumatriptan for 3 days this month with the help of massive doses of caffeine and pain meds I take for a degenerative, painful condition. Always had neck pain, now it's 10x worse in a cramping spasm nightly and 24/7 pain way. Deafening tinnitus (ears ringing), bp and heart rate up, possibly due to botox pain levels. I breathe shallowly, catch myself doing it, and bizarro heart flutters and faint/dizzy spells I've never felt at 42 years old. My head has not stopped hurting for a minute since botox, and they're weird migraines - they feel different than my typical migraine and are much harder to treat. Scalp feels swolle. I'm glad I tried, but my miracle drug, it is not!"
"I had Botox treatments for my migraines for about a year and a half. I was thrilled as it completely took away my migraines and I had no side effects. I had my life back. Then last August I went to get my regular 3 month injections at 4 p.m. By 7 p.m. that evening I experiencing dizziness. By the next day I had a severe headache, next pain, dizziness, trouble swallowing, pain in my shoulders, etc. It was terrible. My doctor told me he didn't think it was from the Boxtox, but that I probably caught a virus at the same time I got the shots. Seriously? Here I am, 3 months later, and I can hardly hold up my head. I have headaches, shoulder pain, neck pain, pain and numbness going down my arms. The dizziness has never gone away."
"40+ years of migraines, foods, weather, you name it, day after day. Pills, ER, you name it. Finally tried Botox.. Didn't notice improvement first two cycles. Wits end. Started to help a little on 3rd, then wore off after two months. This time, full 200 units, no migraine for over a week so far.. That's miraculous!"
"Horrible migraine hours following treatment. Started out like someone hit me in back of the head with a baseball bat. Then the horrible nonstop headache set in. Ended up at ER the first day because nothing stopped pain. Woke up the next day with excruciating headache. Worse than any of my terrible daily migraines. The neurologist did not call back. Long story short. Went to ER 2x in 5 days. Neurologist was completely unhelpful and never spoke with me. After 6th day I barely made it thru work. There is severe cramping in neck and in between shoulders. Where the muscles were paralyzed the other muscles in the area are over compensating for the "Botoxed" areas. I WILL NEVER again do Botox. It made a bad situation completely unbearable"
"I dumbly took Botox for migraines after not researching the potentially dangerous and fatal side effects. Botox is a dangerous neurotoxin that can cause the symptoms of botulism if it spreads. This is exactly what has happened to me. Side effects included extreme muscle weakness, dropping eye lids, difficulty swallowing and breathing and as well as vertigo, ringing in the ears and burning and numbness in my arms and legs. Side effects lasted longer than the 3-6 months I was told they would by doctors. Do your research before trying Botox."
"I have failed all treatments for my migraines. Botox was my absolute last resort. I just went for my 3rd session & have to say it's totally worth it. I've gotten up to 2 full months headache free. It's so wonderful to feel normal again!"
"I have had migraines for 31 yrs beginning after hysterectomy. I average 16 migraine days every month that last from 4 to 72 hrs. I've tried every treatment except Depakot, which I refused because of the lasting bad side effects. I had the first of 3 Botox treatments in last month and had 11 days of migraines. Was hoping for less. My eyelids are droopy, vision blurred in right eye, and just now am able to raise my eyebrows just a little. I've read that these side effects go away by the time I get the next treatment. If it affects my eye sight every time, and I still have this many migraines, I'm questioning whether to continue treatments. "
"My wife started having chronic migraines after our 3rd child. We spent 3 years trying 3 classes of migraine medication with almost no benefit. We finally decided to try Botox injections. It have some relief noted after 6 months ( 1 treatment every 3 months). After 18 months she went from 12 migraines a month to 1. About 1 year ago our doctor moved and we tried to go without injections and they have slowly started back (now 10 per month). She is with a new doctor and we hope to see the benefit again. Having seen the benefit first hand, it may not be for everyone but I have read the studies and it absolutely can have benefit for someone with chronic daily migraines."
"I had the 32 Botox injections five days ago for migrianes. It’s probably too soon to tell if they will help. However, I want to mention that the injections were unbelievable painful. I’ve had cosmetic Botox injections in my face. Yes, they sting a bit. However, the migraine Botox injections were horrible. The doctor said many patients don’t make it through the whole 32 injections. I have never experienced that type of pain from a shot. Is this normal?"
"I've been experiencing migraines since about 12 years old, I tried every medication and been in/out of hospitals. I'm 46 now and tried botox. I received my 2 series and my first was okay, but 1 month before , had a migraine for 2 weeks. Now, just this past week was in the emergency room, because I was crawling on the floor , my head was hurting so bad, and I was vomiting all night. I was still having around 7-8 headaches in the month. I will not be going for the 3 shot. I was still on the preventive, taking 2 different pills for onset. This seems like to much medication. I'm so frustrated with this. I'm just going to settle this is my way of life ;( "
"I'm very grateful the FDA approved this! I've suffered with debilitating migraines for 25 years now and have tried every medication prescribed and OTC, unfortunately the only thing that would take away the pain are narcotics. Since using Botox treatments my migraines are under control and down to approximately 4-5 a month compared to 20-25. I feel as though I have a life again and not living hour to hour, not having a life in fear of having a migraine. Also VERY grateful to have good insurance that pays for this."
"I had a constant 24/7 headache for two years straight before trying Botox. I tried every other conceivable medication to no avail, but Botox cut my pain to a third of its previous level. I still get injections every four months or so, but it's been three years and I still have the much lower pain level, can work, and am thankful everyday for Botox."
"Botox was the best thing I ever did for my headaches. I got my botox 2 weeks ago i had chronic migraines. I had a migraine when i went and one a day after. The doctor told me it may take 7 days to have the full effect. since the second migraine only 1 day after botox i haven't even had 1 migraine. Its a miracle. I'm a new woman. They don't inject it in cosmetic areas so you don't have to worry about a weird looking face I'm only 27.. I don't need botox so I was worried about using it for treatment there are risks of droopy eye. I did not have a bad experience I had the most extreme experience of no migraines. I have to share. Do this for a miracle"
"Have had intractable migraines for 38 yrs-just had 31 injections for migraine a month ago. Within 3 days I began having muscle spasms in neck/shoulders 24/7. Went back to neurologist and he gave me Lidoderm Patches (12 hrs on 12 hrs off). They help somewhat but the adhesive breaks out my skin. I chose to wear them during the day so I can function at work. My head feels so heavy that my neck muscles don't feel that they can support it so I have to lie down in my car at work every few hours to relieve pressure. Am supposed to have a 2nd round of injections in 2 months but have decided the side effects are worse than my 3-4 migraines wk. At least I had a few days without any pain before. "
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"My daughter got Botox around 10 a.m. on Jan. 25, 2021. She went home and was dead by 3 pm. It traveled and took away her ability to breathe. We asked the doctor to give us a batch number, but she refused. My daughter has had Botox for a year, no problem. This time, it killed her."