Ocrevus for Multiple Sclerosis User Reviews (Page 5)

• Wil...
• Taken for 2 to 5 years
• December 27, 2020

"Diagnosed with PPMS 4 years ago. Have been undergoing Ocrevus infusions since 2018. There has been no increase in lesions since starting the treatments. There is no trace of cancer in any of my relatives, past or present. In August 2020, I was diagnosed with breast cancer. My oncologist says breast cancer in a male over 70 years old is extremely rare. My dilemma is, do I continue the treatments and risk additional cancer developments, or stop the treatment and let the MS progress? Once again, a no-win decision!"

• Leo...
• Taken for less than 1 month
• November 26, 2020

"Had my first Ocrevus 1/2 infusion, get my next one in 3 days. No negative side effects beyond fatigue during infusion, from Benadryl. I have noticed that my legs feel a bit lighter, and in the last 4 days, my feet do not drag as much when walking. Hoping this continues! Time will tell..."

• jba...
• Taken for 1 to 6 months
• December 10, 2020

"I just started taking Ocrevus in September. I was diagnosed with MS later in life at 52 after 5 years of not knowing what was wrong with me. The doctor said Ocrevus was the best option on the market. I have had no real issues, and I am hopeful that in time I will see benefits. I would say I am more tired and there are no real changes that are significant. Most doctors in this area I am finding are just good at guessing. Neurologists seem to be very cold in their help to patients. Good luck to everyone, and have a safe holiday season."

• Bid...
• Taken for 1 to 6 months
• February 23, 2020

"I was diagnosed in May last year with MS. I am 33 M. I suffered optic neuritis, then vertigo, then optic neuritis, loss of movement in my right hand, with optic neuritis being a constant even still now. My right hand is able to grab and move things now, but I have the weirdest sensation, like a tingling numbness. My back is aching, and I have now got a kidney infection that has kicked my symptoms off even more, and my mental health is at an all-time low. I had Ocrevus in November and have continued relapsing, no remittance since before May. Now I am worried as these reviews are terrible."

• lan...
• Taken for less than 1 month
• October 13, 2024

"I am newly diagnosed with MS and have experienced two flare-ups in 4 months. I have reduced feeling in both lower legs but feel so lucky this is the only long-term effect I have so far. I just had my second loading dose of Ocrevus. During the first dose, I had a slight facial reaction where my jawline became very itchy and red, but this went away by slowing the rate down and having a small break. My second dose had no reaction at all. I haven’t experienced any flu or cold feelings, but do feel pretty knackered. The antihistamine didn’t knock me out like it seems to for others, the steroids also didn’t keep me awake that night. I am wholeheartedly optimistic and believe that the treatment will work to slow everything down because it has to. I worry about the future, but I think that MS forces you to live in the present, which is no bad thing. Hopefully, in the next 6 months to a year, Ocrevus will evidence that it’s working for me. Best of luck on your choice too."

• Dod...
• Taken for 1 to 6 months
• October 11, 2024

"I took my first full dose of Ocrevus, and I have nausea, diarrhea, fever, chills, tiredness, and no appetite for a week. The infusion went great, it was the aftereffects that have me concerned. My doctor told me it was a GI issue, and there was nothing he could do for me, yet he is the one that prescribed the infusion and should know how to handle any side effects if he is going to use the product. I did really well with the small dosages at first. I was really tired for about 48 hours but had no other side effects."

• Amy...
• Taken for 1 to 2 years
• December 29, 2019

"Ocrevus has done nothing to stop the progression of my MS. I talk to several other people who are taking it, and nobody has had success past the initial optimism. I have one friend whose wife decided not to take it because her doctor informed her she could stop her heart, and he does not believe the reports that it is worth the risk. She said the drug companies have to charge so much to create shareholder value and stockpile money for lawsuits when things go wrong. I am getting ready for a new year, with new insurance and all the authorizations. I am looking for alternatives because I want to skip it in 2020."

• Dad...
• Taken for 2 to 5 years
• June 7, 2020

"I work in the porn industry, and I have MS. As soon as I started getting the infusions, I immediately started feeling signs of erectile dysfunction, and now I can't control my bladder. I guess my porn career is over with because of this drug."

• Cod...
• Taken for 1 to 2 years
• February 14, 2020

"The swelling for me has been unbearable. Depression as well. The company should be more clear on side effects. It was the latest and greatest. I hope it works for everyone better than me, but if you have a choice, steer clear. It’s horrendous. I’ve been on Copaxone, Avonex, Tecfidera, and Ocrevus. I wanted to give Ocrevus a try. Huge mistake for me. Tecfidera was fine. Going back as soon as the O is gone. Never again."

• Lau...
• Taken for 5 to 10 years
• August 29, 2024

"Been on Ocrevus for 7 years. It stopped relapses, however, now my immune system is shot. Shingles at a young age of 34, followed by cellulitis. Neurologist says it’s all due to using it for more than 5 years. Now on to the next drug."

• Tcm...
• Taken for 2 to 5 years
• October 31, 2021

"I started this after 5 years of Tysabri. Being JC+, we were worried about PML. At first, it seemed good, but I started noticing my walking and endurance were getting worse. I went from using a cane for long distances to all the time and contemplating a walker most of the time. Also, foot drop is really bad, it went from occasional to all the time. My hand is becoming clumsy, and I'm experiencing numbness. I went in for my 5th full dose and to speak to the neurologist about other options, but he told me I couldn’t take the dose because my T cells were too low. It works well for some, but be aware that these types of reactions are happening for others."

• Mar...
• Taken for 1 to 2 years
• September 12, 2021

"After my dx, I chose Rebif. One year later, my neurologist suggested a new treatment that would alleviate the muscle aches, tiredness, stomach pain, runny nose, skin discoloration, and elevated liver function test associated. When I started this drug, I tolerated the introductory split dose but should've stopped after the 1st full dose WHEN I STILL HAD THICK HAIR BEYOND MY SHOULDERS! Every infusion to follow is split in half, they say the symptoms will subside. They didn't, they got worse, and now I'm somewhat of a weak hermit. My stomach and calves hurt, I don't recognize my face or my handwriting, and when I talk to them about the side of my face that droops, the hemifacial trigeminal twitching, they attribute it to caffeine! My skin is dry, my scalp itches, and I develop a rash on my chest, neck, and ears after infusions. I can see my scalp, my hair is thin, I have headaches, no strength, and zero energy. I don't care about lesions, and I don't mind wearing face masks."

• Bil...
• Taken for 2 to 5 years
• December 23, 2020

"I was diagnosed with PPMS in 2017. In 2018, I began being treated with Ocrevus infusions. Subsequent MRIs revealed no additional lesions. This past fall, I was diagnosed with breast cancer and had the tumor surgically removed. I am 71 years old. There is no record of cancer by anyone in my family. My oncologist stated he never heard of a male developing breast cancer at my age. My neurological team says there was evidence of breast cancer in women during the Ocrevus trial period. My dilemma is, do I risk additional cancers, or do I stop the Ocrevus treatments and allow the PPMS to proceed uninhibited."

• Joh...
• Taken for 1 to 2 years
• June 2, 2022

"I have had one year on Ocrevus after being railroaded into it. Side effects include stiffness of lower limb joints, swelling to both legs, cystic acne to both sides of my chin just below the edges of my mouth. It's difficult being 50 and having to fight acne. I don't think I will carry on with it, as the side effects are not good and are present 24/7."

• Joa...
• Taken for 5 to 10 years
• May 28, 2024

"I was the first person on the second Ocrevus trial eight years ago. It's been a real game-changer. No new lesions, maybe some exacerbations of old symptoms at times, especially if I get an infection. I'm grateful that I was chosen to trial this drug. It's my third drug. Copaxone was first, I reacted badly with my skin. Tecfidera was second, that lowered my white lymphocyte count dangerously low and I felt awful, had rashes all over my body, and itching. My disease was bordering onto primary, my neurologist was running out of options, then he mentioned this new drug trial and my ears pricked up immediately. Ocrevus has definitely changed my symptoms for the better, so I have no regrets."

• Lin...
• Taken for 1 to 2 years
• May 16, 2024

"I just got my third full dose! I had problems with my first half. I got really sick, but my second half was fine! I have to say I was having problems with insurance covering it, so I had to go like a week over, and I started having vibrations, tingling, and different things going on. I got my infusion, all stopped. I have a huge amount of energy after I get my infusion! I wonder if anyone else has that, but overall, I believe it’s a great drug."

• MWT...
• Taken for less than 1 month
• March 3, 2022

"So my mother took Ocrevus, she was diagnosed with MS in 2008. MS was a constant battle for her. One of her specialists prescribed Ocrevus to her. When she told me and my wife about the drug, she explained what the drug did, and basically it gets rid of your immune system, and the drug was so potent that you could not let the pill touch your skin. She would have to put on a nitrile glove before removing the pill from its container. Well, after she finished the cycle of meds, her health declined catastrophically and fast. Within a year, my mother was dead at 52 years old. I strongly urge you all to stay far away from this medication. It is not a miracle drug, it is a dangerous drug. The medication destroyed her heart, and at the end of her life, she was in agonizing pain. She couldn't breathe, couldn't walk, and had in-home hospice care. Unless that's what you want, I would tell any doctor that recommends this to get lost."

• The...
• Taken for less than 1 month
• August 20, 2021

"I am a 33-year-old male who has had MS symptoms for 4 years now, but didn't know what the symptoms were caused by until recently getting diagnosed 3 months ago with MS after seeing different doctors this last year and getting tests done to figure out what was wrong with me. After getting diagnosed, my neurologist offered me Ocrevus. It took a little over a month to get my insurance to cover the costs of the infusion. Once that was said and done, I just got my first half-infusion a few days ago and go back to get my second half-dose in 2 weeks. The first half-infusion went well and had no worsening symptoms. It's still too early to tell, but I'm hoping for positive outcomes with the future infusions ahead. I'll let you know how it goes."

• Gra...
• Taken for 1 to 2 years
• May 18, 2022

"My fiancée has had MS since 2007. She was diagnosed with RRMS and was on a couple of the other MS medications and was on Tecfidera for 8 years, and in early 2020, she said she was feeling off, like the Tecfidera wasn't working anymore. Shortly after telling me that, she had a really bad relapse that lasted about three weeks. During those 3 weeks, I tried desperately to reach her previous neurologist, but he would not return our phone calls. She got to the point where her health was deteriorating so severely I had to get her admitted by ambulance to the hospital BECAUSE that's the only way they would help her. When I finally got her in the hospital, her absent doctor shows up at her room in the hospital and proceeds to tell us that she was fine and Tecfidera was still working. Got her another doctor and got her on Ocrevus, and we definitely have seen some positive results. Her daily life has improved 100%. We are happy it is working for her. ❤"

• Hol...
• Taken for 2 to 5 years
• November 10, 2021

"Diagnosed with advanced RRMS in 2016 at age 30. Started Aubagio and took that daily for a year or so. No help whatsoever, neurologist recommended Tysabri. Didn't mind the monthly infusions, and my body tolerated it well. No new lesions, but I tested positive for the JC virus a year in, so the doctor switched me to Ocrevus. Have been taking this for the last 2 1/2 years. Have also been tested for the JC virus 1-2 times a year. It was nice to only have infusions twice a year, but the headaches and horrible acid reflux I would get afterward kept me up for days. Noticed thinning hair and major depression, irritability, mood swings lately. The weeks leading up to my infusions, I have daily headaches, dizziness, and fatigue. It has kept my lesions at bay, I don't feel much better. I'm always tired. Keeping tabs on the JC, the doctor was sending me for the wrong tests. The new test shows JC+ again at 2.4, way over. He says stay on Ocrevus, but I'm discontinuing so as to not get PML."

• Bel...
• Taken for 6 months to 1 year
• December 19, 2024

"When I first started treatment, it was awful. During the first two infusions, I developed a rash and a headache, and they had to stop the drip for 30 minutes to an hour before restarting. Physically, it wrecked me. I ended up needing anti-anxiety medication because the experience was so overwhelming. The fatigue was unbearable—I couldn’t move some days and had to take modafinil just to get out of bed. My body felt so heavy, I’d get out of breath easily, and even yoga became impossible—I’d have to run out to throw up. It felt like poison, and there were moments I wanted to give up. But my neurologist told me to stick with it for 12 months before considering a change. As hard as it was, I trusted them. Now, looking back, it’s amazing to say I wouldn’t change my treatment. Over time, things improved, and it’s been life-changing. It was the hardest thing I’ve ever done, but it was so worth it."

• Pet...
• Taken for 2 to 5 years
• June 24, 2023

"I’ve been on Ocrevus for 5 years, and my only relapse in that time was a pseudo-relapse after my first half dose. After infusions, I typically feel very fatigued, bad headaches, but after 2-3 days, I normally get better and feel awesome. My last infusion, 2 weeks ago, I felt horrible for about 5-7 days. This is my 5th MS therapy and the only one that’s worked this far. Considering my symptoms haven’t been worsening, with no new symptoms and no significant relapses, I would definitely recommend anyone with RRMS talk to their doctor about starting this therapy."

• TLC...
• Taken for 1 to 6 months
• October 5, 2021

"Was diagnosed with MS in 2004 at the age of 26. Started on Betaseron, left knots at the injection site. Copaxone, my body got used to, so I was switched to Tecfidera. Was on Tecfidera for 10 years, loved this med, no flare-up until my last year on it. I was feeling a little weak in my legs, so my neurologist put me on Ocrevus. The first infusion went well, just a little fatigue and headache. Took the second half dose two weeks later, everything was good until a couple of days later, my right leg went completely out. My right arm was so weak I didn't want to lift it. I had an MRI done because of my relapse, it showed I had a new lesion on my brain. This is my first relapse in 10 years. I don't know if it was the change in medicine or if it was just time for me to relapse since it has been so long. My leg was completely out for almost two months, and my arm still has little use. I am going to physical and occupational therapy now. My leg has gotten 70 percent better. Arm at 18 percent, scared to do the next dose. Help?"

• eye...
• Taken for 1 to 2 years
• June 16, 2021

"I have had very minor side effects while taking Ocrevus for the past year and a half. The only side effects I have experienced have been redness at the infusion site and itchiness, which does not bother me as much as losing my vision for a week, my sense of smell, or taste. Since I have been on Ocrevus, I have been fine, no relapses, nothing. I am a happy patient. I have not had a relapse since 2019 and have no new lesions or worsening of current lesions. That sounds like remission for me, but unsure until July 27, 2021, when I see my neurologist."

• Eri...
• Taken for 6 months to 1 year
• January 19, 2022

"I got diagnosed with MS in 2016. I was on Copaxone first, but I just kept getting new lesions. Lost full control of the right side of my body. I got it back mostly via steroids. I switched to Ocrevus for about a year. In that time, I had UTIs more often than not. I even got a gum infection from a routine dental cleaning. I was absolutely miserable. I switched to Tysabri and haven’t had a UTI since. I hope this helps someone."