Nivolumab User Reviews & Ratings (Page 2)

• Mom...
• Taken for 6 months to 1 year
• December 10, 2015

For Melanoma "My mother received this treatment as part of a clinical trial for advanced stage 4 melanoma. She was given 9 months to live. As a reality of taking this 'miracle' drug for melanoma, she ended up with adrenal failure and advanced diabetes. She died within 7 months. This is not a cure or a means of 'living longer.' Drug companies need to stop feeding on the time patients have left and leave them be. Honestly... do you want to sit with your loved one during their last days and talk and laugh and enjoy your time? Or watch them receive a multitude of medications in a coma state and die?"

• KJa...
• Taken for 1 to 6 months
• May 6, 2018

Nivolumab for Non Small Cell Lung Cancer "My husband was given Opdivo for stage IV non-small cell lung cancer. Three days after his third treatment, he became seriously ill (short of breath, fatigue, increased oxygen requirements) and was hospitalized. His oxygen needs increased from a baseline of 5L to 13L upon admission. Three days later, his oxygen needs increased to 30L, and he passed away 10 days after his third treatment. I believe that Opdivo contributed to his death at age 57. Looking back, he should never have started this medication."

• kde...
• Taken for 1 to 6 months
• February 3, 2023

Nivolumab for Urothelial Carcinoma "My dad was diagnosed with bladder cancer that spread to his prostate, and in August 2022, he had both removed. In October 2022, he started taking Opdivo. After two treatments, he developed a rash and was treated with steroids. In mid-November, he had another treatment along with a steroid IV to counteract another rash. However, he gradually worsened. He developed a fever, became weak and tired, lost his appetite, experienced severe back pain, and had a cough. He had another treatment at the end of December. At the end of January 2023, we took him to the emergency room where he was diagnosed with pneumonia in his lungs, a kidney infection, a blood clot in his right leg, and a blood clot near his heart in his lung. He also had mild fluid surrounding his heart and gastroparesis. It is February 3rd and he is still in the hospital. The doctors have confirmed through dye and X-rays that gastroparesis is a side effect of Opdivo and not caused by a blockage or mass. They are trying to figure out how to treat him as steroids are not working. Our experience with Opdivo has been thumbs down. If only we had known beforehand."

• Jes...
• Taken for less than 1 month
• March 29, 2018

Nivolumab for Non Small Cell Lung Cancer "My dad had lung cancer, and it had spread to his liver. His doctor recommended starting Opdivo because chemo was no longer an option. He got his first treatment on July 24, 2017. He began having constipation issues, severe stomach pain, no appetite, within a week of having the first treatment. He was admitted to the hospital on August 5th and died on August 14th. He was suffering and miserable his last few weeks of life. I believe this medication contributed to his death. I think a person's body needs to be in a specific state for it to be successful. By reading the reviews, it works wonders on some, and others die very shortly after starting treatment."

• Bro...
• Taken for 6 months to 1 year
• March 11, 2020

Nivolumab for Non Small Cell Lung Cancer "My husband had been fighting this horrible disease (NSCLC) for two years. At one point, the doctor said he was in remission. But the doctor still wanted him to try Opdivo. I honestly believe the Opdivo was what finished him. He had been on the Opdivo for three months when the doctor said sorry, but you have three months left and we are not going to continue the Opdivo. Basically, he said go home and die. Unfortunately, he died two weeks later."

• Sis...
• Taken for 6 months to 1 year
• July 14, 2018

Nivolumab for Non Small Cell Lung Cancer "I am sharing my sister's experience with Opdivo. She had stage 3 NSCLC (non-small cell lung cancer). She started Opdivo after a little over 2 years of chemo. The first year on it went great. All her scans showed no cancer. Then, all of a sudden, all her blood counts dropped. She was then diagnosed with AML (acute myeloid leukemia) due to the Opdivo. She lived a month after that. The doctors said the Opdivo gave her a year she wouldn't have had with chemo. There is that, but it's only a chance to live longer with Opdivo. I don't believe it is a cure now. We are thankful for that one good year."

• Cha...
• Taken for 6 months to 1 year
• February 18, 2023

Nivolumab for Renal Cell Carcinoma "December 25, 2021, diagnosed with stage four clear cell renal cell carcinoma that had gone to my lungs (non-small cell lung cancer). Softball-sized tumor on my right kidney and numerous ping pong ball-sized tumors in both lungs. No outward signs that I was ill. January 19, 2022, received my first infusion. Combo Opdivo with Yervoy by infusion. Two weeks into the first infusion, I developed a facial tumor that tested out to be clear cell renal cancer in origin. Doctors wanted to start me on Cabometyx, but I declined. One week later, just prior to my second infusion, that tumor had vanished and was only a small subdermal bump (subsequently, all evidence of that tumor was gone). I just received my 15th infusion today (4 combo Opdivo/Yervoy at 3-week intervals and now my 11th Opdivo 480 mgs once a month). My tumors, both in my lungs and on my kidney, have shrunk by 60%, and I’ve had almost no side effects (slight fatigue, minor itching, some muscle/bone pain). It’s working for me."

• Cab...
• November 18, 2017

Nivolumab for Melanoma, Metastatic "Surgery to remove polyp. Follow-up surgery to remove nasal and sinus mucosal melanoma. Proton beaming to clean up remaining mm in nose/sinus. Metastasis in bones, brain, liver, kidney, gallbladder, and spleen. Opdivo started, and after 6 infusions, observed reduction in size of tumors everywhere. Continue another 6 infusions until next scan."

• Zhi...
• December 20, 2017

Nivolumab for Non Small Cell Lung Cancer "I would not be alive today without Opdivo. A year and a half ago, I was diagnosed with lung cancer. I weighed 95 lbs., and I already had radiation and chemotherapy. I had no appetite and was continuing to lose weight. My doctors put me on Opdivo in October 2016. It is now December 2017, and I feel fabulous! My scans have been great, and my weight is 145 lbs. I feel better and look better than I have in years. Thank you so much for saving my life."

• Pau...
• Taken for 1 to 6 months
• June 19, 2018

Nivolumab for Melanoma "Everything was going well on the 2-week treatment for 8 weeks, then the doctor tried to do a monthly dose, and my sugar skyrocketed to almost 500. I was hospitalized and had to start insulin shots! Still on shots for about a week, hoping things get back to normal after the Opdivo is out of my system, just not sure how long that will take."

• Gra...
• December 4, 2015

For Non Small Cell Lung Cancer "36-40 hours after the 3rd treatment, muscles and legs were so weak could not support self or move feet. Could barely shuffle. 4 days in hospital and all tests and scans normal so had to be the Opdivo. Will not take that again, not worth inability to walk."

• Sca...
• Taken for 1 to 6 months
• October 12, 2018

Nivolumab for Non Small Cell Lung Cancer "My mom is 78 years old with stage IV lung cancer. She has had 6 treatments with Opdivo so far; minimal side effects. She was on Pemetrexed for 2 years, then in remission for almost 18 months. Her oncologist wanted to try Opdivo. A 93-year-old gentleman who comes to the same cancer clinic biweekly has been on Opdivo for 2 years now for melanoma. His daughter stated that he has minimal side effects from the medication."

• scr...
• Taken for 1 to 2 years
• April 8, 2023

Nivolumab for Melanoma, Metastatic "I had a large lymph node that was melanoma, and also a lesion in my lung. After 5 treatments of Opdivo alone, I have no evidence of disease (NED). I have remained NED for 3 years and counting. The only side effects were fatigue and a non-itchy skin rash. Had 24 treatments, ended 18 months ago."

• Jne...
• December 27, 2017

Nivolumab for Non Small Cell Lung Cancer "My husband has Stage 4 non-small cell lung cancer. He is 82 years old. He has been on Opdivo for 18 months. It has kept his cancer in remission with no new metastasis. He has some itching, but no other side effects. It has been a wonder drug for him."

• Dan...
• April 24, 2019

Nivolumab for Small Cell Lung Cancer "Writing this review on my father's behalf, may he rest in peace. He got diagnosed with stage 4 small cell lung cancer with metastasis in the liver and lymph nodes. After his first round of chemo, they did a new CT scan and PET scan, miraculously, the doctor said the cancer is reduced to scarring and continued the radiation preventively. Three months later, he is back in the hospital and things are not looking good, yet stable. From the first dose of Opdivo, it was a rapid decline. He passed away within 24 hours of the second dose on Feb 14. He couldn’t eat or sleep, he couldn’t talk or walk, his face was dropping, and he had a cough that wouldn’t give up. I can’t help but feel that they used my dad as some sort of lab rat to test this on. I know that cancer is terrifying, and I know that you may feel there are not many options, but please consider finding another option than this medication. My father was strong even in his final moments, but I genuinely feel he would still be alive if not for these meds."

• Pat...
• Taken for 5 to 10 years
• February 13, 2021

Nivolumab for Non Small Cell Lung Cancer "My husband, a smoker for 60+ years, was diagnosed with NSCLC in 2015. After several months of traditional ineffective chemo, his doctor recommended the newly discovered Opdivo. That was late 2015. It is now Feb 2021, and he is still going strong with no/minimal side effects. As I’m sure many fortunate patients can attest, every day is a blessing!"

• jma...
• Taken for 1 to 2 years
• February 8, 2021

Nivolumab for Melanoma, Metastatic "I had stage 4 melanoma in my lymph glands, lung, liver, and bladder. After one year on Opdivo, 98% of the cancer was gone. I stayed on Opdivo for another year, and my last scans showed no C-cells. Currently, I'm off Opdivo until my next scans are done. Yes, it did save my life. And yes, there are side effects, but they outweigh the other."

• tay...
• Taken for 1 to 6 months
• May 17, 2022

Nivolumab for Melanoma, Metastatic "Devastating life-threatening side effects. Started mouth breakouts, muscle, joint, and tendons swollen to the point of needing a wheelchair. Started 80 mg steroids to stop destruction of joints. After a month on 80 mg, started reducing steroids, then pituitary gland swelled, crushing optical nerves in both eyes. Permanent vision loss with blindness in one eye. Vision went from 20/20 to 20/200 in the left and 20/40 right. Thyroid damage came next, followed by sugar levels monitoring to start insulin. This week, it seems to be starting in the lungs and heart. Rapid heartbeat with skipping, and 3-month follow-up CT scan now shows lung damage. I ask for quality of life over quantity and was told this was safe and steroids could control side effects. Consulting with other doctors, they say 15-20% survive metastatic melanoma, and they do not know if those treated with Opdivo and survive are the same ones that would survive without taking it. Destroyed my life and will lead to an earlier death."

• Pow...
• January 19, 2017

Nivolumab for Non Small Cell Lung Cancer "I have been taking Opdivo since March 2016. My cancer is now in my liver, and the medicine seems to be keeping the cancer strictly in my liver, due to a PET scan in 12-2016. I have developed a red rash and found that lotion and creams do help. Lately, I have noticed my nails looking strange, and the thumbnails look like they may come off. Have not discussed with my doctor, and will do so at the next appointment. My cancer started in a knot on my neck and in my lung as stage 4. I only have the cancer in my liver. I am unsure as to what I will do considering that cancer has been contained to my liver only. I have had cancer since August 2013."

• GCP...
• Taken for 1 to 6 months
• February 3, 2020

Nivolumab for Renal Cell Carcinoma "Opdivo was the end for my husband!!! The doctors had been pushing this drug at us for 2 years. My husband finally decided to try it, and 7 weeks after his first infusion, he passed away due to complications from the medication!!! It caused pseudo-diabetic symptoms, respiratory failure, and numerous other complications!!! I would not recommend this treatment for anyone!!! I feel that they faked their trial runs to get funding for their experimental treatment!"

• For...
• Taken for 1 to 6 months
• November 24, 2021

Nivolumab for Renal Cell Carcinoma "Daddy was on this for about 6 months. Would have been longer if his cancer didn't spread to his brain. This does not cross the blood-brain barrier. This was the best medicine he ever took. Took in combination with Yervoy. Daddy had clear cell RCC. It was in his stomach, liver, lung, and right atrium (heart) at the time. This medicine got rid of the cancer in his stomach, atrium, and lungs. I highly recommend this medicine. Daddy was still working as an automotive mechanic while taking this medicine. Side effects were minimal. The only thing is his immune system seemed to be more weak. That was it. He also had no kidneys left from the cancer. So he was on dialysis. I wish he could have stayed on this."

• ilo...
• January 9, 2018

Nivolumab for Colorectal Cancer "I have small intestine cancer/stage 4. I have been on Opdivo for 1 full year because I could not tolerate chemo anymore. It took 9 months for pain relief, and 4 months ago, my CT scan showed that my tumors have shrunk 30 percent. Opdivo has saved my life! I have only diarrhea as a side effect. I am so grateful that my doctor put me on this as I would not be alive. I have gained 20 lbs and don't feel as if I have cancer. I can't wait to get my next CT scan."

• DaB...
• Taken for 6 months to 1 year
• March 18, 2024

Nivolumab for Melanoma, Metastatic "Received 12 months of Opdivo, 23 treatments from April 2018 to April 2019. Skin rash in splotches on hands, arms, stomach, and feet. Severe bone and muscle pain, weakness, and fatigue, stomach issues, loose bowels. All throughout treatment. I am now almost 5 years from the last treatment, but I continue to have bone and muscle pain, and from time to time I get rashes popping up randomly. My biggest complaint is that I continue to be tired and have bone/joint pain. All my treatments and blood work were in the right arm as I had lymph nodes taken from the left arm, so no blood pressure, no needle sticks, etc., in the left arm. Right arm held up well with all the treatments and blood work. Now my right shoulder and nerves down my arm bother me a lot. My final comment is, Opdivo worked. Thank God I am still here on this earth."

• ein...
• Taken for 1 to 6 months
• September 15, 2015

For Non Small Cell Lung Cancer "Been on Nivolumab since July 31, every 2 weeks. As of Sept. 14, I've lost about 10 lbs, have loss of appetite, cough, and fatigue. I will be starting acupuncture today (9/15) and believe this will help me. I went through 6 weeks (every day) of radiation and chemo last year and started acupuncture at the very beginning of treatments and never had any side effects except loss of hair, and I walked 2 miles every day while undergoing treatments. I'm very encouraged and believing that Nivolumab will eliminate my cancer. I can't compare the side effects of my treatments last year with Nivolumab because of the timely manner of acupuncture."

• Lta...
• Taken for 1 to 6 months
• July 8, 2018

Nivolumab for Head and Neck Cancer "My father was on Opdivo for 77 days. He became sick with all of the side effects (pneumonia, inflammation of the brain), as well as ultimately losing the use of both of his legs. In my opinion, the drug only increased his life by 77 painful days, and it did nothing effective at all. I do not recommend using this drug at all."