Hydrea User Reviews & Ratings

• Meredes...
• January 4, 2012

For Thrombocythemia "I am on Hydrea due to Ediopathic Thrombocytopenia with platelet counts over 2 milion. I am very young (21) and taking Hydrea for 1 year and a half now. Though it has sinked my platelets I have recurrent anemia and infections (most recently in the lungs). In the beginning I was very tired, legs shook, skin would easily bruise, drugged up feeling from time to time, depressive, muscle pain, burning in legs which was severe and decreased after 5 months, brain fog, stomach pain (still common). Most common symptom would be enlarged spleen with pain. I've had brutal neurological side effects that have been decreasing slowly with time. Nevertheless, Hydrea compared to Anagrelid and Interferon is by far the medicine I tolerate better. "

• smili...
• Taken for 10 years or more
• May 23, 2018

For Sickle Cell Anemia "Hello. I have Sickle Cell Disease-SS Hemoglobin. My hematologist started me on Hydrea in 2001 & I'm still on it. I'm in my early 40's & it had helped me. I take 4 capsules 500 mg now, but in 2001, my blood count was extremely low. Once on it, it had increased my red cell count, while my white cell count decreased (which it's suppose to do). I have less amount of hospital admissions now. But I have to admit, even though doctors may think it's like a "cure", it's NOT! I've lately been having small pain crisis in joints that made me go to ER but not admitted about 3 months out of entire year. My RBC & WBC counts are still looking good. You HAVE to keep your doctor appointments & tests while on this medication. I do have extreme nausea & have to skip a day sometimes. This medication may work on one Sickler but NOT on another. Now we have another alternative. I hope my experience will help other Sicklers see pros & cons. But we FINALLY have a choice now!"

• Hemen...
• November 28, 2016

For Chronic Myelogenous Leukemia "I was asked by my Doctor in Mumbai, India, to take Hydroxyurea 500 for 10 days and I got this Capsules of Hydrea from the store.my platelets were 650000 to start then After taking the capsules for 10 days the platelets count came down to 570000. I was advised to further continue the capsules for another 30 days. After 30 days the platelets count was 432000. I have not experienced any side effects."

• BreeM
• January 19, 2014

For Sickle Cell Anemia "Im 18 years old and even though I wasnt a sickle cell patient who had many pain crises , my doctor had still been suggesting me take hydrea since I will be starting college soon ( I guess just to be safe). Since taking it, I havnt had any severe pain crises, but I swear everyday it feels like my back is in a small pain crises. Which is scary because I never know if it's going to become a full blown crises. Im always having to take pain meds, or missing school because of this. Im thinking about if I should stop taking it for a while to see if the hydrea is whats causing this pain. because it can be my birthcontrol pills causing it but I highly doubt it. I wish there were more reviews on hydrea so I could know if it was just me."

• dr_so...
• August 2, 2011

For Sickle Cell Anemia "Hydroxyurea significantly improves the frequency of sickle cell crisis, but it has a long list of adverse effects. But if the dose is monitored properly and complete blood count of patient is done on regular basis, than some of the adverse effects can be easily identified and managed accordingly."

• Joe
• Taken for 6 months to 1 year
• August 25, 2022

"500 mg a day has brought my counts down to 700 after 6 months (was High Platelets >1200). No noticeable side effects from the drug, in fact the condition wasn’t noticeable either. Hematologist just started me taking 2 extra pills a week, trying to get the count down to 450. I’m not worried and thankful."

• Mea
• Taken for 1 to 6 months
• September 6, 2021

For Solid Tumors "I was diagnosed with Thrombocythemia 2 years ago when I had a heart attack with high platelet count of 1200. The Hematologist placed me on Hydrea and I had severe side effect, discussed with Hematologist but was advised the only treatment available. Stop using after the side effects was too severe, but count only increased and had to be placed on Hydrea again, by the end of 3 month course I couldn't even get out of bed or do anything for myself and the platelet count just fluctuated the whole time and the Hydrea just affected the rest of my cells & health severely, got more weak day after day. I then read on the site of a lady who used Agrylin – discussed with my GP and she contacted the Head of the Heama team, went for 2nd bone marrow biopsy and the medical aid approved Agrylin for use – I’m on this now for 4 months and my health is almost back to normal, no side effects my overall health much better, platelet count dropping on low dosage not fluctuating anymore - strongly suggest you try this"

• gabon...
• December 14, 2009

For Sickle Cell Anemia "Haven't been hospitalized since I started taking it. But I did gain a little weight."