Mycophenolate mofetil and Indigestion: What Users Say

• kta...
• November 19, 2019

Mycophenolate mofetil "I've had SLE lupus with nephritis for over 10 years. CellCept is a miracle drug for me. It is the only drug that stops protein loss in my kidneys, it stops my hair loss and aching bones. My skin issues are severe, and CellCept with Plaquenil truly has cleared the constant issues. I used to have rashes and hives nonstop. Four months on this drug, and it cleared up. The side effects are present though: insomnia, extreme fatigue (I can sleep 10 hours if not setting an alarm), digestive problems (I went plant-based to stop the IBS from this drug, and it is now manageable). You will be immunosuppressed - I had an infection that left me in the ICU. You have to take care of your body when you are on this drug. Wash your hands, eat healthy, do not be around sick people. Everyone in your life needs to get the flu shot. Any deep cleaning at the dentist or oral surgery means you have to be on antibiotics because your body is just slow to heal itself on CellCept. The side effects are worth it though."

• Pau...
• Taken for 1 to 6 months
• March 18, 2023

Mycophenolate mofetil "Diagnosed with ocular myasthenia gravis (OMG) 18 months ago - specifically double vision. Prescribed Mestinon (pyridostigmine) at outset along with corticosteroid (prednisone). Vision stabilized over time to varying degrees. Concerns raised over long-term use of steroids. Accordingly, 4 months ago, prescribed mycophenolate (CellCept) 1000 mg twice a day. No change initially, however, after 4 months, some noticeable improvement in reduced/stabilized double vision (diplopia). Some side effects I had were indigestion, blood pressure fluctuation, sweating, abdominal pains (sharp, but fleeting), and cramps in the extremities, but also in the stomach area."

• Dog...
• Taken for 2 to 5 years
• January 23, 2018

For Organ Transplant, Rejection Prophylaxis "Increase from 1g to 1.5g twice a day has given me indigestion. Otherwise, OK."