Mycophenolate mofetil and Anxiety: What Users Say

• Arv...
• October 28, 2009

For Lupus "I was diagnosed with Systemic Lupus Erythematosus in November of 2006. I've been taking CellCept 2000mg a day since then. It has helped me tremendously! I hadn't experienced any real side effects until recently. I started having anxiety attacks after being put on the generic version of CellCept."

• Sme...
• October 17, 2014

For Nephrotic Syndrome "I was reluctant to take this medication but essentially had no choice when faced with the possibility of losing my kidneys. It saved my kidneys and also helped greatly with my other SLE symptoms (joint pain, neuropathy, and lung issues to name a few). I also can't tolerate steroids, so luckily CellCept combined with Plaquenil has kept things under control without having to add Prednisone in the mix. I did experience some issues with dizziness, hair loss, and insomnia, but they have tapered off after being on it for a year now; still have problems sleeping at times though and am now experiencing some anxiety. I'm also concerned about the long-term effects ie. lymphoma risks and it's very expensive, but overall it saved my life."

• dam...
• Taken for 6 months to 1 year
• June 6, 2020

For Organ Transplant, Rejection Prophylaxis "CellCept is easier on your kidneys than Prograf, so that is a plus. It can increase your risk of cancer, which is scary. But if I had the choice, I would be on CellCept instead of Prednisone. It does cause depression and anxiety for some people, and I am one of them. But almost all of the transplant drugs do. Prednisone seems to be the worst of the bunch, though. Weight gain, blood pressure goes up some on this, insomnia, tiredness is a big one. But you have to take something. I don't know about all of the alternatives to this drug, but if it doesn't work, then ask. I will say my biggest problem with the drug has been that I developed the BK virus, which is dangerous, and I had to come off of CellCept to allow my body to fight the virus. So that is something to watch. Take your pills - it is better than rejection or damage. But always ask for alternatives. Pricey, so go with generic!"