Mycophenolate mofetil User Reviews & Ratings (Page 2)

Brand names: CellCept, Myhibbin

Mycophenolate mofetil has an average rating of 7.9 out of 10 from a total of 55 reviews on Drugs.com. 70% of reviewers reported a positive experience, while 11% reported a negative experience.

Reviews for Mycophenolate mofetil

daman...
Taken for 6 months to 1 year
June 6, 2020

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "Cellcept is easier on your kidneys than Prograf so that is a plus. It can increase your risk of cancer which is scary. But if I had the choice I would be on Cellcept instead of Prednisone. It does cause depression and anxiety for some people and I am one of them. But almost all of the transplant drugs do. Prednisone seems to be the worst of the bunch though. Weight gain, blood pressure goes up some on this, insomnia, tiredness is a big one. But you have to take something. I don't know about all of the alternatives to this drug, but if it doesn't work then ask. I will say my biggest problem with the drug has been that I developed the BK virus which is dangerous and I had to come off of Cellcept to allow body to fight the virus. So that is something to watch. Take your pills - it is better than rejection or damage. But always ask for alternatives. Pricey so go with generic!"

7 / 10

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7 Report

Anonymous
March 29, 2010

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "I had a liver transplant Feb '06 and have taken 1000mg twice a day now for a couple years. Before that dosage changed a bit to get correct dosage. I also take tacrolimus (prograf 1mg twice a day) I have had no side effects--expensive but luckily I have a plan."

8 / 10

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18 Report

Emmy
Taken for 2 to 5 years
February 2, 2020

For Autoimmune Hepatitis "I have been on Mycophenolate mofetil for 3 years after having a major reaction to Imuran. This drug plus Budesonide has my autoimmune hepatitis under control and my liver functions are in the normal category."

10 / 10

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7 Report

Anony...
January 27, 2010

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "I had a liver transplant in 2001 and was put on both CellCept and Prograf. When my creatine reached 2.1 I was taken off Prograf and put on 2000 mg a day of CellCept. I have had no side effects. I only problem is the cost, I am now on Medicare and will be in the donut hole after 4 months."

9 / 10

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15 Report

MommaK
Taken for less than 1 month
April 14, 2023

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "CellCept gave me just severe diarrhea that I ended up back in the hospital with severe dehydration and anemia. Was switched to Envarsus XR with Zortress and prednisone. Envarsus was switched to Prograf. A biopsy showed Thrombotic microangiopathies (TMA) (very small blood clots), which can be caused by tacrolimus, so I was switched to Cyclosporine. Everolimus caused my cholesterol to go very high so was switched to Imuran. Imuran messed up my blood with an extremely low platelet count. So now I am just on cyclosporine and prednisone, with fingers crossed and prayer."

3 / 10

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2 Report

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Anonymous
February 16, 2011

CellCept (mycophenolate mofetil) "I was diagnose MG for three years, having plasma weekly but still not response. Currently taking cellcept, it seems response well within two days. Hopefully it help my symtoms so I don't have to have plasma weekly"

9 / 10

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13 Report

franz...
January 20, 2010

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "I had a liver transplantation in 1997, and been on Sadimmun Neoral for 13 years. In 2009 my Doctor decided to switch to Cellcept because my creatinine level rose from 1,3 to 1,7 (Kidney). I have been on both Neoral and Cellcept over the whole Summer of 2009. I did not feel well and finally in Nov. 2009 I had a Hyper Blood-sugar shock of 1402, Was hospitalized, now I am slowly recovering with Insulin BS 100-200. Ii switched back to Sandimmun 25-0-50 but my Doctor wants to switch again to Cellcept. I'm afraid to get a Hyperglycemia again."

6 / 10

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12 Report

goodp...
December 13, 2009

For Autoimmune Hepatitis "Front-line anesthesiologist with auto-immune hepatitis. Immune-competent enough to resist patient pathogens in operating room, but Cellcept preventing my immune system from destroying my liver. Costs me $1200/mo before deductible. "

7 / 10

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8 Report

Hughes
Taken for 10 years or more
January 12, 2022

For Myasthenia Gravis "Have had MG since 2000 and until I was given cellcept after about 2 years, I did not improve much. I started at 2000 mg and gradually reduced over 15 years to 250 mg. I am now in my 80s and doing fairly well. I think it saved my life. My Dr says there is still mg in my system from reading my blood test so am staying on the mycophenolaye."

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2 Report

Bad...
Taken for less than 1 month
December 29, 2020

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "I am having severe diarrhea on Cellcept which has my electrolytes out of whack to the point of having to go to the local ED for fluids and supplements. I'm taking 2g daily in 4 doses. The more I drink, the worse it gets so I am in a catch-22 situation. I am also on Envarsus and prednisone as anti-rejection meds. I'm also taking Septra which may be contributing to my problem."

3 / 10

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DiegoM
Taken for 1 to 6 months
April 29, 2022

For Myasthenia Gravis "Unfortunately I did not have a good experience with mycophenolate. I had frequent bouts of watery diarrhea and constant nausea. I lost about 10 pounds. I took 500mg at night. I was also taking Mestinon. I only took it for 5 weeks but just could not tolerate the side effects. I was taking it because I had neck weakness and realize I didn’t take it long enough to show any results but could not see myself experiencing diarrhea and constant nausea for months."

2 / 10

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Upset
September 7, 2018

For Organ Transplant, Rejection Prophylaxis "The Insurance company is stating that a drug I have been on for years "is that it’s not for my Heart Transplant". I’m taking Mycophenolate acid and they don’t want to pay for it !! Cigna part D is giving us a hard time. We have sent 3 appeals and had three denials. "

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kilke...
Taken for 2 to 5 years
May 25, 2013

For Multiple Sclerosis "I have been taking this medication since 2010 after my worst episode and my first episode since taking it began two months ago. I'm taking it alone with no other Multiple Sclerosis related treatments except that we are now trying hydrocortisone since it is a natural steroid."

9 / 10

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2 Report

mishu
Taken for 1 to 2 years
July 4, 2021

For Organ Transplant, Rejection Prophylaxis "I think this is the immunosuppressive drug with least side effects. Good to reduce prednisolone and tacrolimus. For stomach related issues can take psyllium husk. If you are fatigue try checking cmv infection."

9 / 10

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PaulK
Taken for 1 to 6 months
March 18, 2023

CellCept (mycophenolate mofetil) "Diagnosed with ocular myasthenia gravis (OMG) 18 months ago - specifically double vision. Prescribed Mestinon (pyridostigmine) at outset along with corticosteroid (prednisone). Vision stabilized over time to varying degrees. Concerns raised over long-term use of steroids. Accordingly, 4 months ago, prescribed mycophenolate (CellCept) 1000 mg twice a day. No change initially, however, after 4 months, some noticeable improvement in reduced/stabilized double vision (diplopia). Some side effects I had was indigestion, blood pressure fluctuation, sweating, abdominal pains (sharp, but fleeting), and cramps in the extremities, but also in the stomach area."

8 / 10

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Anonymous
December 9, 2008

CellCept (mycophenolate mofetil) for Myasthenia Gravis "Taking Cellcept for my Myasthenia Gravis has allowed me to live a symptom free, normal life."

10 / 10

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72 Report

Anonymous
January 5, 2009

CellCept (mycophenolate mofetil) for Pulmonary Fibrosis "I have been on 3000mg this drug for about 3 months. Little side effect. "

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68 Report

Anonymous
April 12, 2008

CellCept (mycophenolate mofetil) for Myasthenia Gravis "I have Myasthenia Gravis and I have been taking Cellcept for two years. It saved my life."

10 / 10

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58 Report

suesan
April 6, 2009

CellCept (mycophenolate mofetil) for Lupus "I was diagnosed with LUPUS on March 9, 2009 and put on Cellcept. I do have some of the side effects which I am working through. Hopefully this will be my answer to a long and happy life."

9 / 10

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32 Report

Anonymous
April 9, 2008

CellCept (mycophenolate mofetil) for Autoimmune Hepatitis "This drug saved my little brother's life."

10 / 10

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34 Report

Cobus
Taken for 5 to 10 years
July 26, 2017

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "Had heart transplant 8 years ago an have been on cellcept & prograf . 500mg cellcept & 1mg program a day and feeling excellent with no side effects . "

10 / 10

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Anonymous
July 22, 2009

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "But too expensive. I'm 27 years old with no insurance and I'm paying close to $1000 a month."

8 / 10

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21 Report

RQr
June 11, 2015

For Myasthenia Gravis "very expensive once you hit the donut hole..but it does help"

7 / 10

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12 Report

Kay...
October 16, 2009

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "I have had a heart transplant. This drug has kept me alive for the last 18 months. Thank you. Fortunately I have suffered no side effects."

10 / 10

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17 Report

jaymo
November 2, 2009

CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis "Had kidney transplant almost 3 years ago, seems to be working great for me."

9 / 10

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12 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.