Mirvetuximab soravtansine and Fatigue: What Users Say

• CSC...
• Taken for 1 to 2 years
• January 31, 2025

For Peritoneal Cancer "I have been on Elahere for over one year. Initially, I was receiving an infusion every three weeks, but after the sixth infusion and increasing side effects, I went to every six weeks and reduced the dosage. So far, my CA-125 is holding steady, lower than 15! I wouldn’t be able to handle the side effects if I was getting it every three weeks. I have high blood pressure, eye issues, now resolved, abdominal pain, severe constipation, managed with lots of stool softeners and laxatives, neuropathy, and fatigue. I keep wanting to stop but am afraid that it will come back if I do. Elahere is the first thing that has kept me in remission for more than three months. I am grateful."

• CBE...
• Taken for 1 to 6 months
• March 27, 2024

For Ovarian Cancer "I started Elahere in February 2024 and experienced side effects, constipation, fatigue, loss of appetite, and several days after the treatment I had diarrhea. Three weeks later, before my second treatment, I had my blood work done and my CA125 went up from 47 to 94... very disappointing. I had my second infusion in March 2024, I had less fatigue, less loss of appetite, still had constipation for a couple of days, and the diarrhea started after that, plus I now have this itchy burning sensation in my right shoulder blade in my back that I did not have before. I am also doing Prednisolone Acetate 1% eye drops, which I do one drop in each eye four times a day to help with any eye problems, so far, so good. Praying my next CA125 shows better results next month."

• Tan...
• Taken for 1 to 6 months
• July 22, 2024

For Ovarian Cancer "Only have had two infusions so far. Prior to 2nd infusion CA125 dropped from 190 to 160. Had diarrhea, gas, headache, fatigue, SOB, and vertigo for several days after each infusion. 1 week after 2nd infusion, had extreme eye dryness, itchy, blurred, painful, and cloudy vision."