Elahere and Nerve Pain: What Users Say
Reviews for Elahere
- Mic...
- Taken for 1 to 6 months
- January 30, 2025
For Ovarian Cancer "I just received my third dose of Elahere. My 1st dose, my marker was 173, after 2nd dose, 183. Oncologist giving it one more try. I did experience blurry vision and light sensitivity but followed up with the eye doctor, and he was not concerned. Neuropathy is relentless! I have been on Taxol, Carbo, Doxil, Gemzar, and Avastin, and am praying Elahere will work."
- CSC...
- Taken for 1 to 2 years
- January 31, 2025
For Peritoneal Cancer "I have been on Elahere for over one year. Initially, I was receiving an infusion every three weeks, but after the sixth infusion and increasing side effects, I went to every six weeks and reduced the dosage. So far, my CA-125 is holding steady, lower than 15! I wouldn’t be able to handle the side effects if I was getting it every three weeks. I have high blood pressure, eye issues, now resolved, abdominal pain, severe constipation, managed with lots of stool softeners and laxatives, neuropathy, and fatigue. I keep wanting to stop but am afraid that it will come back if I do. Elahere is the first thing that has kept me in remission for more than three months. I am grateful."
Frequently asked questions
- KWO...
- Taken for 1 to 6 months
- August 29, 2023
For Ovarian Cancer "Had the 4th infusion of Elahere six days ago. Therefore, we don't yet know the efficacy of the treatment. Of the side effects listed in the 'Elahere Side Effects' document, to date, I have experienced more than half of them, including fever, nausea and vomiting, severe constipation along with a very sore lower abdominal area, blurred vision and loss of acuity, some eye pain, severe headache, muscle and joint pain, neuropathy, some pain when urinating, some weakening of legs, cough and hoarseness, decreased appetite, among others. Most of the painful side effects are fairly well controlled with medications."
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For Ovarian Cancer "In November 2024, my ovarian cancer came back very aggressively to my peritoneal area. In 2020, I was diagnosed with stage 3C ovarian cancer that metastasized to my abdominal lining (peritoneal). I have had three recurrences since then. I'm platinum resistant. When I started Elahere, my CA125 was 2870. I had cancerous nodules about 3 cm in diameter in the lining of my abdomen. After my first infusion, it went down to 1800. After my second infusion, it decreased to 207. After my third infusion, it decreased to 54. After my fourth infusion, it decreased to 27. I receive my infusions every 3 weeks and will have a CT scan near the end of this month. I do have some neuropathy that is mild to moderate in my toes and fingertips, which I manage with Nervive and magnesium oil. Elahere has also raised my glucose levels. I manage that with Metformin. I hope this information helps everyone."