Lenalidomide and Itching: What Users Say

• Ste...
• Taken for 1 to 6 months
• November 8, 2024

For Multiple Myeloma "I suppose I tolerated the Revlimid 25 mg okay during the few months before having a stem cell transplant. I did, however, experience times of fatigue and a general feeling of sickness, not to the stomach, but as if I had the flu. Now, 1 year later, I just started a maintenance dose of 10 mg. Same general not feeling well symptoms, but I had forgotten about the itchiness on my scalp, no rashes, just crazy itching. I still have an appetite and get around okay."

• Lei...
• Taken for 6 months to 1 year
• September 23, 2025

For Follicular Lymphoma "I've been taking this since May of 2025. Every side effect you list, I have suffered from it. The worst is severe itching legs, arms/scalp, and horrible diarrhea. The ease of use is fine, I take it in the evening each day at the same time with a small meal. I have a timer on my phone. 20 mg for the 21-day cycle. I pray that it has helped. Only time will tell and my scan results."

• Ano...
• Taken for 5 to 10 years
• March 30, 2025

For Multiple Myeloma "First time I took Revlimid, I also took a steroid. I was taken off the steroid when my face turned red till it finally got up to my eyes. Taking Revlimid then on, I did not have any reactions. On it for 10 years, I was taken off when my m-protein was at 0.2 standstill. Off for 6 months, I was started on lenalidomide and had terrible itchiness! I waited to be able to get the next refill of Revlimid. I had such a good response till 2 capsules of Revlimid were taken this time, I have little spots rather than the large areas I had on lenalidomide."