Lenalidomide and Weakness: What Users Say

• Sam...
• Taken for 1 to 2 years
• January 25, 2020

Lenalidomide for Multiple Myeloma "My daughter was taking Revlimid for 18 months with good results as that Kappa level went to almost zero. She looked so good, her hair had grown back, kept her job, and was so happy. Suddenly, she became weak, was unable to stand, and tests in the ER indicated she had leukemia. She died in 4 months. I was told that her taking Revlimid led to the leukemia. How can this happen so quickly? It is listed as a side effect."

• Ano...
• Taken for 1 to 2 years
• July 7, 2025

For Follicular Lymphoma "I have been on this medication for 14 months. It has helped my condition. As of right now, it has worked, and my spots have disappeared. My side effects include no smell, weakness, and numbness in my right hand/fingers. I am tired, but I still work and do what I need to do. I do have stomach pains and bowel issues at times."

• Ver...
• Taken for 1 to 2 years
• August 17, 2025

Lenalidomide for Multiple Myeloma "I am on 5 milligrams of Revlimid. I have lower back pain, night sweats, loss of appetite, dry mouth, voice changes, mood swings, always tired and weak, insomnia, having a hard time standing up for very long periods of time. It’s hard dealing with it, but I have to keep taking it for maintenance treatment. I have been in remission for two years. Done July 20, 2025."

• RTO...
• Taken for 1 to 6 months
• December 11, 2022

Lenalidomide for Myelodysplastic Diseases "When I started taking Revlimid I was extremely weak, tired and had no appetite. Eventually, those side effects became more intermittent. Currently, I still have required transfusions with angina and SOB."