Lenalidomide and Fatigue: What Users Say

• Ren...
• Taken for 10 years or more
• January 21, 2021

For Multiple Myeloma "I have been taking Revlimid 10 mg as maintenance after my stem cell transplant in 2011. I have had some side effects such as fatigue and IBS. I am still in remission 10 years later. My oncologist is considering taking me off. I'm nervous and haven't decided what to do. My fear is that my cancer will come back without the Revlimid. I also realize the seriousness of the possibility of more severe side effects happening the longer I continue to take it."

• Tri...
• Taken for 1 to 2 years
• January 3, 2018

For Multiple Myeloma "Diagnosed with Multiple Myeloma (MM) in October 2015. Starting in December, I received radiation treatments plus Velcade along with Dex. In the summer of 2016, I received Auto SCT at MD Anderson (a truly wonderful hospital), and have been on a maintenance dose (5 mg) of Revlimid ever since. I take it every day for three weeks, then off one week. My numbers have been slowly improving with every monthly visit to my oncologist. So in that aspect, it appears the Revlimid is doing its job. On the downside (and this is only minor), I tend to experience a lot of fatigue for the last ten days of each 'on' cycle."

• Bob...
• Taken for less than 1 month
• October 10, 2021

For Multiple Myeloma "Prior to MM diagnosis, 8 months of extreme pain in right shoulder, moving to left shoulder, hips, and shins. Very painful, constant moving from area to area. Was diagnosed with arthritis, prescribed Diclofenac Sodium 1% gel (prescription). Instead, used a small amount to the area of pain, relief was almost instant. Discovered CKD III disease, referred to oncologist on 7/27/21, admitted to the hospital the same day, bone marrow biopsy, markers indicated confirmation of MM. On 8/2/21, first chemo prior to discharge from the hospital. Weekly chemo scheduled and started 200 mg twice daily of Acyclovir, weekly IV mix of bortezomib and cyclophosphamide. Velcade stomach injection. Oral 40 mg dexamethasone on IV day. Stopped IV on 9/8/21. Continued weekly Velcade stomach injection and 10 mg Revlimid on 9/11/21, take one capsule for 14 days, stop for 7 days, and 40 mg dexamethasone on days 1, 8, and 15 of the cycle. Now: Revlimid mid-cycle #2. Side effects include some fatigue. Previous pain moving joint to joint is gone."

• Ste...
• Taken for 1 to 6 months
• November 8, 2024

For Multiple Myeloma "I suppose I tolerated the Revlimid 25 mg okay during the few months before having a stem cell transplant. I did, however, experience times of fatigue and a general feeling of sickness, not to the stomach, but as if I had the flu. Now, 1 year later, I just started a maintenance dose of 10 mg. Same general not feeling well symptoms, but I had forgotten about the itchiness on my scalp, no rashes, just crazy itching. I still have an appetite and get around okay."