Lenalidomide and Blood Clots: What Users Say

• Iow...
• October 31, 2013

For Multiple Myeloma "After several cycles of Velcade, Revlimid, and a steroid, my doctor switched me to Revlimid alone. I have had no side effects of note. The Velcade really knocked me out. Shortly after a stem cell transplant, I had a small blood clot that caused double vision, but that resolved itself in about a month. Now I take a blood thinner (Jantoven). Two and a half years after my transplant, my myeloma is extremely well-controlled, and I'm guessing that Revlimid is a big part of the reason. The main issue I have with Revlimid is the astronomical price; my insurance pays 75% of the cost. A grant from a nonprofit foundation has been a huge help in covering the out-of-pocket."

• Ell...
• November 4, 2015

For Multiple Myeloma "My sister had multiple myeloma, she took this drug for about 2 months. She developed a blood clot in her heart and died 2 days ago from a cardiac arrest while she was at the hospital. Her quality of life before this was zero while taking Revlimid."

• Vir...
• Taken for less than 1 month
• August 21, 2016

For Multiple Myeloma "I had 2 blood clots as a result of a hairline fracture in my ankle. Consequently, I was given Coumadin on April 14. I started Revlimid on May 7. On May 25, I had a new blood clot even though my INR was 3.7 - in range to prevent clotting. I was hospitalized and missed a Memorial Day party. The doctors were baffled and thought the Coumadin was not effective. I disagreed, stopped Revlimid immediately, and stayed on Coumadin. I flew to and from Italy this month with no blood clotting...the food was fabulous although I miss some eating great salads. (Kidney issues prevent the other blood thinning remedies)"